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04-12-2017, 05:50 AM   #1
skittle
 
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Join Date: Nov 2016
Location: New Zealand
Mercaptopurine

I saw the GE today as the pentasa I'm on isn't working. He's put me on mercaptopurine at a low dose because I have a low enzyme level. I'm also staying on the pentasa and currently on prednisone as well.

Am interested to hear others experience with the mercaptopurine.
04-12-2017, 01:48 PM   #2
Jabee
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Join Date: Oct 2016
Location: Massachusetts

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Unfortunately I developed severe pancreatitis from mercaptopurine. Only a small percentage of people react this way, so I wouldn't worry about it. I'm glad to hear your GI has put you on something in addition to the pentasa; it really only treats the surface of the bowel and crohn's affects all the layers. A lot of people take it for years and find it works very well. Good luck!
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