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4 years now

Hi im new to the forum, im 23 and currently live in Oregon. I was diagnosed with crohns 4 years ago after a large surgery due to my crohns. Pretty much I had a 5 by 6in cyst that got pushed onto my ovarian. Killing my ovarian, which sent toxins into my body and caused me to be 24hrs within death. Eight months later I had another cyst in my abdomonim that was 4 by 5in, which I had surgery on that as well. Since my surgerys my crohns has gotten worse, and my symtoms are way more frequent. Ive had crohns since 5th grade, at that time they didnt know that was what I had and I got really sick and lost lots of wieght. Now that ive been diagnosed they realized that was what I had. At the moment I feel lucky I have a sit down job cause I dont know how I could ever stand for long hours at a time. I have taken noticed that I have lots of back pain when my stomach is having issues. I have read lots of forums and guess doctors dont know why it is, just know its due to inflammation. Also I have many bowl movements a day :poo: , and are wattery each time. I maybe have 4 solid bowl moments a year, sucks. I also sometimes gets lots of air in my stomach which makes it hard to breath at times; like at the moment actually. I have tried so many types of medications like remicade with no relef. I did though take this bacterial medication that did sofen the symtoms. I have read up on it and guess some people with crohns end up with lots of bacteria in there intestines. My crohns effects my large intestines unfortunatly and so I think this is the case for me. Sometimes I feel I know more about my disease then my doctor does, he resently was persistant on trying to get me on a new medication which I said no to numerous times. So I am now looking for a new crohns specialist. Anyone know of any good ones in Oregon? I never really felt on going onto the forums to talk about it but its been getting so bad latley so it feels good just to type it out and talk to people who are going throught simular stuff like me. Look forward to your replys.
 
Hi Angeleye...welcome to the forum. I can't help you out with the doctors in Oregon, but I just wanted to give you a big welcome and I hope that you are able to find lots of good information here. There are plenty of people with all different experiences and lots of great support. I hope you are feeling better soon!
 

imisspopcorn

Punctuation Impaired
:welcome: I'm glad you posted. There are a ton of supportive and knowledgeable people here...Also a good place to get a laugh. Feel free to let your frustrations loose....I hope you stick around for a while.
 

farm

Captain Insaneo
Let it out. It helps!
Welcome to our little family, kick your shoes off and stay a while.
 

merrywidow

mum with a dogdy tum
Angeleye005 said:
Sometimes I feel I know more about my disease then my doctor does
definatly understand that feeling. i cant help you with your search though, i live the other side of the pond.
welcome to our forum though
 
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