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05-11-2017, 04:57 PM   #1
ronroush7
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Epi pen

I received a call today. I had to purchase an epi pen before my first treatment tomorrow. Has this happened with anyone else?
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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
05-11-2017, 06:25 PM   #2
my little penguin
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Have they given you instructions on how to use an epi pen and when to administer it

Are you getting your infusion at a hospital clinic with doctors present ?
Typically if they are in a hospital setting they have vials of epinephrine on hand and don't need an epi pen
Epi pen is for home care
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05-11-2017, 06:31 PM   #3
ronroush7
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It is at an infusion center and they also mentioned epinephrine?
05-11-2017, 06:42 PM   #4
Maya142
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My kiddo had two infusions of Entyvio (we had to stop because of drug-induced Lupus). We were not required to get Epi pens. Epinephrine is what is in Epi pens - it's used to stop an allergic reaction.

Usually hospitals and infusion centers have it on hand - I haven't heard of people having to get their own Epi pens before infusions. We were actually told that it's quite rare to react to Entyvio - it's not like Remicade, where allergic rxns are relatively common.
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
05-11-2017, 07:27 PM   #5
ronroush7
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Maybe the speciality pharmacy had to get the epinephrine.

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