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Crohn's Disease Forum » Support Forum » Burden on the health care system


05-11-2017, 09:25 PM   #1
MizzSarah
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Burden on the health care system

Since I was 14 I was in and out of doctors. Spent countless hours at specialists only for it to be a waste of time. No diagnosis--I became the sick girl who wanted answers but never got that. Fast forward nearly 7 years I got a diagnosis. I'm happy that doctors have been able to piece together things but now that they have---my already complicated medical history is growing. I see my GP almost every two weeks and at this point it's just so very inconvenient now. I go in--I have another diagnosis--and I'm sent on my way. I feel bad for my doctors but they are greatly benefiting from my frequent vists. I hate it. I saw doctors earlier this week then the next day I get a call saying I have to go back because of abnormal readings.. From a girl who simply wanted doctors to find anything---to a burden on the system this incredibly sucks.

Anyone else feel this way? How do you deal with feeling like a burden?

My doctor wasn't kidding when he said when you open a door new things come at you like a swarm of bees.
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Crohns Disease
2014
Meds: Humira & Entocort
2nd Gen affected
05-11-2017, 09:32 PM   #2
ronroush7
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You are not a burden. There are lots of people who care for you.

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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
05-12-2017, 08:18 AM   #3
Cheesy79
 
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Since I was 14 I was in and out of doctors. Spent countless hours at specialists only for it to be a waste of time. No diagnosis--I became the sick girl who wanted answers but never got that. Fast forward nearly 7 years I got a diagnosis. I'm happy that doctors have been able to piece together things but now that they have---my already complicated medical history is growing. I see my GP almost every two weeks and at this point it's just so very inconvenient now. I go in--I have another diagnosis--and I'm sent on my way. I feel bad for my doctors but they are greatly benefiting from my frequent vists. I hate it. I saw doctors earlier this week then the next day I get a call saying I have to go back because of abnormal readings.. From a girl who simply wanted doctors to find anything---to a burden on the system this incredibly sucks.



Anyone else feel this way? How do you deal with feeling like a burden?



My doctor wasn't kidding when he said when you open a door new things come at you like a swarm of bees.


I'm kind of nervous to answer this. Partially because I feel the same way sometimes. I've had IBD all my life but I was not diagnosed until I was 20 years old. I never had a chance to work and I live on Medicaid. I hate being dependent on the government and having to work around them. I feel neglected. I've had to call my state rep Medicaid when I feel they neglect me. But when I call the state reps they get right on it, meaning Medicaid. So I understand you feel like you're a drain but you're not. When my mother was alive, she was overwhelmed it but I misconstrued that. Now I'm isolated from family. My dad is in Missouri and I'm in Texas. (I never moved). My brother helps me in some way but he's extremely hard on me. But both of them love me. What you're feelings sometimes aren't facts. The fact is you are a human being and people love you. You may be a sister, daughter, granddaughter, and so on. The health care system has changed so much. It hasn't always been this way. People want to see you better no matter what it takes. Don't ever think you're a drain. Ron, Ronroush7 was right. He's a great guy and he truly cares. We all care. People are only concerned and please don't misinterpret concern as being a drain.


Adding to this: I think the health care system is a drain on me. When I can't get out of bed and I'm spending hours on the phone with then...
05-14-2017, 08:32 AM   #4
zHassanz
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I get these feelings at work, because I have to take lots of sick leaves.

One time I was deprived a promotion simply because my health state wasn't stable, although I was in remission back then.

I know how it feels, but just thinking of it this way makes you feel even worse. You are not a burden, you are already suffering from a nasty disease, so no need to view yourself that way!
05-15-2017, 02:40 PM   #5
MizzSarah
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That is a great fear of mine... I put in the necessary paperwork this year to ensure I have a job and cannot be terminated. I still don't feel any safer. I'm always worried.



I get these feelings at work, because I have to take lots of sick leaves.

One time I was deprived a promotion simply because my health state wasn't stable, although I was in remission back then.

I know how it feels, but just thinking of it this way makes you feel even worse. You are not a burden, you are already suffering from a nasty disease, so no need to view yourself that way!
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