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07-13-2017, 10:04 PM   #31
my little penguin
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Join Date: Apr 2012

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Hope it works
07-13-2017, 11:12 PM   #32
pdx
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Join Date: Dec 2014
Location: Portland, Oregon

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I really hope that splitting the dose helps. Is there any possibility of upping the dose if she's still showing symptoms after 3 months, or is she already at the max?
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Daughter E (15) dx with Crohn's 12/18/14 at age 12

Current treatment:

Remicade started 12/24/14 (currently on 9 mg/kg every 6 weeks)
Oral methotrexate restarted 12/2/16 (15 mg weekly)
vitamin D, folic acid, multivitamin, Prozac

Past Treatment
90% EN via NG tube 2/9/15 - 4/2/15
50% EN via NG tube 4/3/15 - 4/18/15
Supplemental EN via NG tube 5/7/15-6/19/15
Budesonide 3/3/15-6/30/15
Oral methotrexate 3/13/15 - 5/14/16 (15 mg weekly)
Topical clobetasol for Remicade-induced psoriasis
07-13-2017, 11:36 PM   #33
Maya142
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We could up it...if insurance agrees! But really hoping we won't have to. She's doing a bit better today - less BMs and no abdominal pain - so fingers crossed!
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Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
07-14-2017, 12:02 AM   #34
Jakefriesz1
 
Join Date: Jan 2016
Location: Key largo, Florida
saccharomyces boulardii kills CDiff. You can get it at your health food store. Remove the dairy, sugar, gluten. Start taking probiotics and healthy organic veggies.


07-14-2017, 07:45 PM   #35
Jelly loves Peanut butter
 
Join Date: Nov 2016
Location: Southern California

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Hope your daughter is feeling better soon. Prayers that the cimzia will work for her!
07-30-2017, 05:16 PM   #36
Jelly loves Peanut butter
 
Join Date: Nov 2016
Location: Southern California

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How is your daughter feeling with splitting the cimzia dose?
07-30-2017, 07:09 PM   #37
Maya142
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She's doing ok - we had a mix up with the dosing a couple weeks ago and when she should have gotten 400 mg, she was given half a dose (200 mg). So this Friday (when the official split dosing was supposed to start), she was given a double dose instead.

Now we are on the right dosing - she will get 200 mg every two weeks.

Her Crohn's has improved definitely - less diarrhea. Her arthritis seems to be very, very slowly improving (we think -- maybe...). So fingers are crossed!

M has figured out that the shots hurt a lot less in her stomach vs. her thighs. She still says they are nowhere near as bad as Humira, but they do sting.

The nurses says Cimzia is very viscous and hard to push. It feels like a longer shot than the other biologics she's been on (Humira, Simponi etc). But it's not too bad.
07-31-2017, 12:06 AM   #38
Jelly loves Peanut butter
 
Join Date: Nov 2016
Location: Southern California

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Hope she continues to improve!
07-31-2017, 12:58 AM   #39
pdx
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Join Date: Dec 2014
Location: Portland, Oregon

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Fingers crossed here too!
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