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Crohn's Disease Forum » Surgery » Strictures & Obstructions » Small intestine resection - glad you did it?


05-22-2017, 09:13 AM   #1
rorho19
 
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Small intestine resection - glad you did it?

I'm newbie facing first surgery for two strictures suffered 4 yesrs of constipation etc am in inflammatory remission on AZATHIOPRINE but need surgery for pain of food going through strictures ....let me know if you had this done and were really glad you did...
05-23-2017, 06:30 AM   #2
DEmberton
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I'm really glad I did it. I couldn't have carried on like that.
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20cm Terminal Ileum and Ileocaecal resection July 2014
125mg Azathioprine
05-23-2017, 06:45 AM   #3
B-chole
 
Join Date: May 2017
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I had to have an emergency reduction surgery when I was 17.(3 1/2ft removed) The hardest part for me is dealing with malnutrition and the fact that I can't be away from a restroom. My surgery was 18 years ago. I was completely in remission for 12 years. I don't regret having the surgery because I was on deaths door
05-24-2017, 02:48 PM   #4
The Real MC
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No regrets on my resection. The alternative would had been far worse.
05-25-2017, 02:38 AM   #5
rorho19
 
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Yeah I guess I have to realise that I am getting to the point where there is no alternative, I have dropped from 14 1/2 stone to 13 over 3 years and being 6 foot 3 tall 14 stone was thin. Guess I'm going to starve to death if I don't have the surgery.

RR
05-25-2017, 03:58 AM   #6
DEmberton
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I'm a 6 foot tall man, and I went from about 13 stone to 9 over 2 years, and was seriously skinny, as well as anaemic and pretty ill. After surgery I gained 2 stone back in the first 2 months just eating normally. Amazing really. It would have been nice to have stayed about 12, but now I'm back to 13 and feeling like I need to lose some flab.

I would avoid things getting that bad.
05-25-2017, 06:45 PM   #7
Layla
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Yes, I'm glad I had the surgery. Like you I had trouble eating due to strictures and I was very pleased to avoid emergency surgery which would have been inevitable if I hadn't had the planned operation.
This way I could make sure I was as fit as possible and could also choose the surgeon so I could get laparascopic surgery rather than open. It was a no brainer for me.
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Layla
Diagnosed with UC in 1994, CD in 2014, "IBS" in between
Lactose intolerant, IgA deficient and Arthritis.
Resection due to strictures in 2014
Currently taking: amitriptyline, zinc, multi vitamin, b12 shots, Vit D, B complex, magnesium, calcium, Psyllium and the occasional iron infusion, probably sarting a medical trial soon

Previously on Remicade, Humira, Prednisone, Azathioprine, MTX, Pentasa, Asacol, Salofalk
10-19-2017, 03:42 PM   #8
Nadene
 
Join Date: Oct 2017
Location: Pittsburgh, Pennsylvania
To Layla,

Was you surgery laproscopic? I am having the laproscopic surgery in a few weeks, for the same exact reasons, it would be inevitable for me also. Did you have to do a low residue diet, and what to expect after surgery.
10-19-2017, 05:52 PM   #9
Layla
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To Layla,

Was you surgery laproscopic? I am having the laproscopic surgery in a few weeks, for the same exact reasons, it would be inevitable for me also. Did you have to do a low residue diet, and what to expect after surgery.
Yes it was, that's why I preferred a planned surgery, rather than as an emergency which would have been open surgery most likely.

No I didn't need to do anything diet wise, before or after. I didn't even need to clean out my bowels before surgery!

Good luck with it all.
10-20-2017, 04:15 PM   #10
Nadene
 
Join Date: Oct 2017
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I don't have to clean out my bowels, but I do have to do a clear liquid diet the day before. How was your recovery?
10-20-2017, 06:55 PM   #11
Layla
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I don't have to clean out my bowels, but I do have to do a clear liquid diet the day before. How was your recovery?
I was off work for about 2-3 weeks and then did some work from home. I was pretty weak the first week but after that I started improving rapidly. I can really recommend to get as fit as possible before the op, it makes a big difference in recovery time!
10-21-2017, 06:56 AM   #12
Nadene
 
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I already eat right and work out, what else do you recommend, to prepare, to get fit?
10-21-2017, 06:55 PM   #13
Layla
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I already eat right and work out, what else do you recommend, to prepare, to get fit?
Seems you're already doing all the right things!
The only other thing I remember doing was preparing soups and other easy to digest things in advance and freezing them, to use for after the op in case I couldn't be bothered to cook. That was very helpful, it made life much easier just defrosting something.
10-22-2017, 06:56 PM   #14
lgpcarter
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I had a laparoscopic resection last July and am really glad I did. I had been dealing with partial obstructions for a year, and I couldn't stand it anymore and scheduled the surgery.

It went very well, 25 cms removed of mostly large bowel. In hospital 5 days (took a while to poop!) and back to eating normally only a couple of days out of surgery.
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Diagnosed in with Crohn's in large and small bowel in 2000.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Entyvio every 4 weeks, Imuran 50 mg, Flagyl and Cipro 500 mg twice a day
Previously: Remicade, Humira, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone
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