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Crohn's Disease Forum » Your Story » Hi, I'm looking for some answers


05-22-2017, 06:06 PM   #1
Angel88
 
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Hi, I'm looking for some answers

Hiya,

I've just joined this forum as I'm looking for help. I need some help with some issues I'm having.

I hope no one minds as I'm undiagnosed as yet.
For about a year now I've had blood with every bowel movement and mucus and when I went for a Colonoscopy I was printed off a sheet that told me I had mild patchy colitis in three sections of my bowel and rectum I was told to wait to see someone who would give me treatment for it. Well when I went to that appointment it was as if she didn't know I'd even been for a colonoscopy she told me I could live with it and it was probably a hemmoroid and she wanted to book me in for a surgerical procedure to check for inflammation and do biopsies if there wasn't a hemmoroid. Because I was feeling out of sorts out didn't occur to me until I left that I'd already been proven to have inflammation and had numerous biopsies from each inflamed section. I still don't know if they showed anything. She wouldn't even look at the pictures because what I'm passing is hard to describe she just said I've seen it all before i don't need to look at the pictures. Well I felt pretty let down after all that. Cancelled the procedure that seems unnecessary. Since this it's just got worse I am now passing what appears to be like pink tissue. I've never seen anything like it before. I'm also passing candida and have gone on to a gluten free diet. I'm due at a different Colon specialist next month to try and find out what's going on but I need to know if any of this sounds like crohn's? I'm absolutely exhausted, hurting and I've had rheumatoid arthritis since I was three.

Sorry to go on but I'm desperate to find answers. I'm going for full bloods next week and hoping something is picked up in those. No one has asked me for a stool sample.. Should I request it?
How did you all get diagnosed?

Thanks to everyone who takes the time to read this and answer Evie xxx
05-22-2017, 06:50 PM   #2
ronroush7
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First of all, I don't think you were treated right. I would be concerned about the blood and mucus with each stool. I am not sure about giving a stool sample. I hope you get answers soon.
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05-22-2017, 06:56 PM   #3
Angel88
 
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Thank you I hope so too. And no I don't think I was treated right either. Thanks for taking the time to reply to my post xx
05-22-2017, 09:20 PM   #4
Jabee
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Oh my goodness! First, there is an undiagnosed support group on the forum, and if you post your questions there I am sure you will receive lots of good advice. The link is just below.

http://www.crohnsforum.com/showthread.php?t=13113

Second, it seems to me that the specialist you saw clearly wasn't paying attention to you or your case at all. She should have given you the chance to tell her what tests you had and tried to get her own copy of the report. The colonoscopy showed "patchy colitis" which means patchy inflammation of the colon. There's been blood in your poop, you already have one autoimmune disease (the rheumatoid arthritis) and now you are passing what looks like pink tissue. Crohn's causes areas of inflammation anywhere in the intestine tract, and is often patchy, while ulcerative colitis affects only the colon and presents in a contiguous segment. I really think you need to see the colon specialist sooner. Can you call the office and let them know what's going on? Moreover, crohn's and ulcerative colitis are usually diagnosed with scopes, CTE or MRE scans, or a capsule endoscopy, not surgery; I'm honestly not sure what she was thinking. I think the doctor you saw really mishandled your case and you may be sicker than you were at your colonoscopy as a result. Please let us know how you are getting on.
05-23-2017, 06:43 AM   #5
Angel88
 
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I didn't know there was an undiagnosed section. Thank you so much for the link and your advice. Unfortunately they can't see me any sooner this appointment was already made on an urgent basis. Also thank you for telling me how crohn's is diagnosed I am gonna have a good chat with the new specialist and I'm also taking in info for them and won't leave the room till they listen this time. I will keep you updated how I get on. Thanks for all your help
05-23-2017, 06:59 AM   #6
B-chole
 
Join Date: May 2017
Location: Texas
Hugs!I've been in your shoes. I was only 17 and for 6 months I was in horrible pain,couldn't eat.. My father has crohns and we told my dr that. He told my mom and I that crohns is a mans disease. My crohns was only found because it had gone through my intestine and killed my appendix,it ruptured and they found the crohns when the rushed me to surgery. I almost died.17 days in the hospital. My point in saying all that...if you start hurting to badly,or anything gets worse, go to the emergency room
05-23-2017, 07:05 AM   #7
Angel88
 
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Omg! That's awful what you've been through! So frightening, I didn't know it could affect your appendix! I will most certainly take your advice, thank you so much for replying, hugs! Xxx

Hugs!I've been in your shoes. I was only 17 and for 6 months I was in horrible pain,couldn't eat.. My father has crohns and we told my dr that. He told my mom and I that crohns is a mans disease. My crohns was only found because it had gone through my intestine and killed my appendix,it ruptured and they found the crohns when the rushed me to surgery. I almost died.17 days in the hospital. My point in saying all that...if you start hurting to badly,or anything gets worse, go to the emergency room
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