Share Facebook
Crohn's Disease Forum » Support Forum » Undiagnosed Club » Hi, I'm looking for some answers


05-23-2017, 06:50 AM   #1
Angel88
 
Join Date: May 2017

My Support Groups:
Hi, I'm looking for some answers

Hi,
I'm new to the forum and looking for some answers
For about a year now I've had blood with every bowel movement and mucus and when I went for a Colonoscopy I was printed off a sheet that told me I had mild patchy colitis in three sections of my bowel and rectum I was told to wait to see someone who would give me treatment for it. Well when I went to that appointment it was as if she didn't know I'd even been for a colonoscopy she told me I could live with it and it was probably a hemmoroid and she wanted to book me in for a surgerical procedure to check for inflammation and do biopsies if there wasn't a hemmoroid. Because I was feeling out of sorts out didn't occur to me until I left that I'd already been proven to have inflammation and had numerous biopsies from each inflamed section. I still don't know if they showed anything. She wouldn't even look at the pictures because what I'm passing is hard to describe she just said I've seen it all before i don't need to look at the pictures. Well I felt pretty let down after all that. Cancelled the procedure that seems unnecessary. Since this it's just got worse I am now passing what appears to be like pink tissue. I've never seen anything like it before. I'm also passing candida and have gone on to a gluten free diet. I'm due at a different Colon specialist next month to try and find out what's going on but I need to know if any of this sounds like crohn's? I'm absolutely exhausted, hurting and I've had rheumatoid arthritis since I was three.

Sorry to go on but I'm desperate to find answers. I'm going for full bloods next week and hoping something is picked up in those. No one has asked me for a stool sample.. Should I request it?
What tests should I ask for does anyone know?

Thanks to everyone who takes the time to read this and answer Evie xxx
05-23-2017, 07:02 AM   #2
Sorebutt26
Senior Member
 
Join Date: Apr 2017
Location: United Kingdom
Hi,
I'm new to the forum and looking for some answers
For about a year now I've had blood with every bowel movement and mucus and when I went for a Colonoscopy I was printed off a sheet that told me I had mild patchy colitis in three sections of my bowel and rectum I was told to wait to see someone who would give me treatment for it. Well when I went to that appointment it was as if she didn't know I'd even been for a colonoscopy she told me I could live with it and it was probably a hemmoroid and she wanted to book me in for a surgerical procedure to check for inflammation and do biopsies if there wasn't a hemmoroid. Because I was feeling out of sorts out didn't occur to me until I left that I'd already been proven to have inflammation and had numerous biopsies from each inflamed section. I still don't know if they showed anything. She wouldn't even look at the pictures because what I'm passing is hard to describe she just said I've seen it all before i don't need to look at the pictures. Well I felt pretty let down after all that. Cancelled the procedure that seems unnecessary. Since this it's just got worse I am now passing what appears to be like pink tissue. I've never seen anything like it before. I'm also passing candida and have gone on to a gluten free diet. I'm due at a different Colon specialist next month to try and find out what's going on but I need to know if any of this sounds like crohn's? I'm absolutely exhausted, hurting and I've had rheumatoid arthritis since I was three.

Sorry to go on but I'm desperate to find answers. I'm going for full bloods next week and hoping something is picked up in those. No one has asked me for a stool sample.. Should I request it?
What tests should I ask for does anyone know?

Thanks to everyone who takes the time to read this and answer Evie xxx
Hi Evie

How frustrating for you. I can't help much I'm afraid as I'm going through the diagnosis process myself currently.

But ask for a Faecal Calprotectin stool sample. This will show the levels of inflammation in the colon. (IBS does not inflame, where as IBD does, so it a good starter to differentiate) xxx

05-23-2017, 07:07 AM   #3
Angel88
 
Join Date: May 2017

My Support Groups:
Sorry you're going through it too. Thanks for replying and I will ask for that. Hopefully I will get answers soon and I hope you get diagnosed soon too

Hi Evie

How frustrating for you. I can't help much I'm afraid as I'm going through the diagnosis process myself currently.

But ask for a Faecal Calprotectin stool sample. This will show the levels of inflammation in the colon. (IBS does not inflame, where as IBD does, so it a good starter to differentiate) xxx
Reply

Crohn's Disease Forum » Support Forum » Undiagnosed Club » Hi, I'm looking for some answers
Thread Tools


All times are GMT -5. The time now is 03:25 AM.
Copyright 2006-2017 Crohnsforum.com