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Crohn's Disease Forum » Your Story » New member from Jersey....


06-05-2017, 07:34 PM   #1
RemyM
 
Join Date: Jun 2017
New member from Jersey....

Hello everyone

I am also from Jersey, my twin sister was disagnosed a couple of years ago with Crohn's disease and I have just been diagnosed myself. However, her diagnosis could not be found with usual procedures and had to go to England to have another. Mine was, however, diagnosed quite quickly with standard procedures in Jersey. She still struggles with her symptoms and I have different symptoms to her but struggle a lot myself. After suffering for a few years she went through the doctors at the hospital, who tried to say she had a wheat intolerance, lactose intolerance, ibs and even thought she may have just had it in her head she was sick, so she went through a private doctor who sorted her out within a few months. I went straight to the private doctor as I didn't want to go through what she went through at the start. It bothers me that people assume identical twins don't seem to stand a chance if one has it than so can the other but now I can't say anything as I have it now too. I'm glad my sister has someone who can understand now and vica versa but I'm still worried about having it and it effecting my life a bit too much because I see how it effects hers,


Thanks
RemyM
06-05-2017, 08:16 PM   #2
ronroush7
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Join Date: Oct 2013
Location: vienna, Virginia

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Welcome. I wish you the best
06-13-2017, 10:19 AM   #3
JessPeper
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Join Date: May 2017
Location: Wisconsin Rapids, Wisconsin

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I'm glad you didn't have to wait for a diagnoses. As terrible as it is that you both have this ugly disease, you both know what the other is going through and can support each other. I think it's sometimes harder to support someone when you don't know first hand what they're going through.

Best of luck to you and your sister.
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Dx with CD 4/16

Ileocecectomy 3/17

Reoccurrence 8/17


Current Medications: Lialda 4.8g daily, Azathioprine 100mg daily, Prednisone 20 mg daily. B12, Folic Acid, Primal Defense probiotic.
06-14-2017, 03:07 AM   #4
RemyM
 
Join Date: Jun 2017
I'm glad you didn't have to wait for a diagnoses. As terrible as it is that you both have this ugly disease, you both know what the other is going through and can support each other. I think it's sometimes harder to support someone when you don't know first hand what they're going through.

Best of luck to you and your sister.


Thank you
07-06-2017, 04:51 PM   #5
RemyM
 
Join Date: Jun 2017
I'm glad you didn't have to wait for a diagnoses. As terrible as it is that you both have this ugly disease, you both know what the other is going through and can support each other. I think it's sometimes harder to support someone when you don't know first hand what they're going through.

Best of luck to you and your sister.

Thank you, I am so so glad she has someone. She spent a long while going through something that none of us could understand. Her symptoms are becoming very bad though and she's having to go on different medication now.
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