Share Facebook
Crohn's Disease Forum » General IBD Discussion » Low Grade Dysplasia question


06-20-2017, 03:32 PM   #1
laura11103
 
Join Date: Jun 2017
Location: New York, New York
Low Grade Dysplasia question

Hello. I was diagnosed with UC 3 years ago. It's been completely under control with Lialda and Canasa. I see my gastro doc every few months.

Had a routine colonoscopy in April. The UC is in remission and all looked good except one of the random biopsies showed Low Grade Dysplasia which surprised my dr. There are no polyps or anything.

We did a 2nd colonoscopy (with chromo dye) in hopes to locate the dysplasia on May 5th and she saw nothing and pathology came out completely clear, no LG dysplasia anywhere and she took twice the number of biopsies.

Seemed like good news.

She sent both pathology reports to a 2nd pathologist (NYU) and they confirmed exactly what the first pathologist found. They confirmed the dysplasia was definitely there in the 1st colonoscopy and definitely clear in the 2nd colonoscopy.

Which leaves us at a loss. So we are going to do aggressive surveillance until they find it. I have a 3rd colonoscopy scheduled for 7/14 and she'll use a white light and chromo if she thinks it'll help. The hope is to find the stupid dysplasia and then hopefully find a surgeon who will do a partial resection.

Why do they do biopsies but not know WHERE they are biopsying? Only thing she knows it's in the left colon.

Any advice? Thoughts?

Thank you!
Laura
06-21-2017, 01:35 PM   #2
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I hope they find it soon.
06-21-2017, 02:08 PM   #3
laura11103
 
Join Date: Jun 2017
Location: New York, New York
Thanks. It's hard to know what to hope for. I guess the new hope is it's become a polyp or something that can be located and removed. Can't say I really want to go through major surgery cutting out my colon. So difficult since I feel 100% fine, but I don't want to wake up one day with colon cancer.
Reply

Crohn's Disease Forum » General IBD Discussion » Low Grade Dysplasia question
Thread Tools


All times are GMT -5. The time now is 07:15 PM.
Copyright 2006-2017 Crohnsforum.com