Ladies Remicade and your period - Crohns Disease Forum - Support group and forum for IBD, Ulcerative Colitis and Crohn's Disease

cheeky · 12-04-2009, 03:26 PM

hey ladies on remicade,

has your period stopped or been irregular since you began remicade?

so i had my third 'loading' infusion of remicade a couple weeks ago, and i just realized that my period is a itsy bit late, when usually it's like bang on time... the most late it's been is by one day. except when i've been on prednisone, it came a few days late.

so out of curiosity i googled 'remicade and period' and saw a woman's thread about her period stopping after her third remicade infusion.

so i called the special care pharmacy about it, and the pharmacist said that she has had several women call in and mention that their period stopped or there was some change since the third dose of remicade.

she wasn't sure if it goes back to normal after but says that she can't say much about it because the people who do supportive research haven't documented anything about it.

imisspopcorn · 12-04-2009, 04:11 PM

I have been curious about other female related issues since I started the Remicade. I get extremely painful breasts right before my cycle. And my PMS synptoms seem worse....Anyone else have these symptoms???? If my period stops, that would be the best thing Crohn's has ever done for me, it really messses up my week!! Thanks for posting this thread Cheeky.

Jennjenn · 12-04-2009, 05:10 PM

When I get my period it seems to be right there every month (which I guess is a good thing since I am 29!!!) but that time of the month is when I feel even worse. I know it comes on time every month. I just started last month taking birth control to stop the prevention of cysts forming. Last year I had a cyst that burst and I was so afraid and in a lot of pain I thought it was my intestines. The pain was around the same area of where my surgery site was. I was so relieved to find out that my ileum was still intact. That cyst really hurt! I feel that they looked at me like I was crazy because when they told me that it was a cyst that burst that was cuasing the pain I said Oh great as long as its not my intestines may I go home now! My doctor also said since my symptoms of crohns increase around this time that birth control would also help with that.
I am on Remicade also but I dont think that it has altered anything relating to my period.

cheeky · 12-04-2009, 05:18 PM

You're quite welcome imisspopcorn! : ) hopefully we find out something new...

JennJenn, funny I'm also 29 and my name is also Jenn : P My period has always been super regular all my life, but since I've had Crohn's i've developed cysts on my ovaries and now with the third dose of Remicade (and previously on Prednisone) my cycle is a little behind schedule.

maybe it will show up, I'd HATE to have it be irregular after years of being able to count down to the exact day. ARGH! plus i'm going on vacation at the end of the month so i don't want any surprises.

cheeky · 12-04-2009, 05:25 PM

HAHA OOPS!!! NEVERMIND, it just showed up. funny.

Jennjenn · 12-04-2009, 05:29 PM

Well thats good that it just showed up! At least you will not have that surprise now on your vacation!

imisspopcorn · 12-04-2009, 05:52 PM

It just needed a good reminding!

pewpewlasers · 12-04-2009, 07:47 PM

I don't know about the remicade but what I do know is that since I started getting Depo-Provera injections every three months, my period has stopped which is awesome.
My symptoms always seemed to be amplified around that time. So glad I don't have to deal with that anymore.

Claire617 · 12-04-2009, 10:15 PM

I have been on remicade but my period stopped a few months before that anyway, haven't had one in ages, most probably due to being underweight and low iron. Have to agree though I don't miss the extra added stomach pains!

CrohnieCarolyn · 12-05-2009, 09:30 AM

I have always been right on time too and in the last year I keep missing almost every other one - the doc. checked my hormone levels and said it wasn't early menopause - I'm 45 - and this started before the Remicade - about 4 months prior - so who knows - I don't mind missing them at all!

s.a.m. · 12-05-2009, 12:31 PM

Quote:

Originally Posted by cheeky

hey ladies on remicade,

has your period stopped or been irregular since you began remicade?

Hey Cheeky,

I have been on Remicade since May, and I just became irregular, but this just started the last couple months. Prior to this I was like clockwork. Thanks for posting this, because I had never thought it might be due to the Remicade.

For those who are talking about developing cysts, is that Crohns related?

cheeky · 12-05-2009, 02:19 PM

Personally, I think the cysts can be Crohn's/IBD related... I did a thread a while back and I think I had mentioned seeing this:

http://www.ncbi.nlm.nih.gov/pubmed/3051875

imisspopcorn · 12-06-2009, 04:27 AM

Great! Another lovely thing to worry about.....It never ends. Why can't a side effect of Crohn's be increased breast size or your eyelashes grow thick and beautiful????

dustydshook · 12-06-2009, 02:46 PM

I am not on remicaid i am on humira however, I have noticed that when i am predisone my period is twice as heavy as normal and i pass a lot of blood clots. any one else with this problem? Kinda been a little embarrassed/afraid to ask. I also have had cysts which my gyn said was nothing to worry about.

cheeky · 12-06-2009, 08:29 PM

Quote:

Originally Posted by dustydshook

I am not on remicaid i am on humira however, I have noticed that when i am predisone my period is twice as heavy as normal and i pass a lot of blood clots. any one else with this problem? Kinda been a little embarrassed/afraid to ask. I also have had cysts which my gyn said was nothing to worry about.

actually when i spoke to the special care pharmacy, the pharmacist mentioned that women on humira have also mentioned period changes.

so far, i've noticed my period is a bit heavier than usual, but other than that... i think i'm ok.

when i was on pred, my period was a few days late at first, but nothing unusual that i remember.

only thing that bothered me was when i was on imuran, the first few months, i had a lower libido and mild skin problems.

at first my doctor said my cysts aren't that big, but i'm waaaaay overdue for an ultrasound because she wanted me to get a followup ultrasound when she realized my cysts were still there when i had a ct scan... but i don't have any serious pain, so i'm not worried.

12-04-2009, 03:26 PM	#1
cheeky Senior Member Join Date: Jan 2009 Posts: 394	Ladies Remicade and your period hey ladies on remicade, has your period stopped or been irregular since you began remicade? so i had my third 'loading' infusion of remicade a couple weeks ago, and i just realized that my period is a itsy bit late, when usually it's like bang on time... the most late it's been is by one day. except when i've been on prednisone, it came a few days late. so out of curiosity i googled 'remicade and period' and saw a woman's thread about her period stopping after her third remicade infusion. so i called the special care pharmacy about it, and the pharmacist said that she has had several women call in and mention that their period stopped or there was some change since the third dose of remicade. she wasn't sure if it goes back to normal after but says that she can't say much about it because the people who do supportive research haven't documented anything about it.

12-04-2009, 04:11 PM	#2
imisspopcorn Punctuation Impaired Join Date: Aug 2009 Posts: 5,945	painful breasts, remicade I have been curious about other female related issues since I started the Remicade. I get extremely painful breasts right before my cycle. And my PMS synptoms seem worse....Anyone else have these symptoms???? If my period stops, that would be the best thing Crohn's has ever done for me, it really messses up my week!! Thanks for posting this thread Cheeky. __________________ ~~~~~~~~~* Instead of hiding in the darkness of a grey cloud, why not look for the silver lining?

12-04-2009, 05:10 PM	#3
Jennjenn Senior Member Join Date: Feb 2009 Location: N.Y. Posts: 580	When I get my period it seems to be right there every month (which I guess is a good thing since I am 29!!!) but that time of the month is when I feel even worse. I know it comes on time every month. I just started last month taking birth control to stop the prevention of cysts forming. Last year I had a cyst that burst and I was so afraid and in a lot of pain I thought it was my intestines. The pain was around the same area of where my surgery site was. I was so relieved to find out that my ileum was still intact. That cyst really hurt! I feel that they looked at me like I was crazy because when they told me that it was a cyst that burst that was cuasing the pain I said Oh great as long as its not my intestines may I go home now! My doctor also said since my symptoms of crohns increase around this time that birth control would also help with that. I am on Remicade also but I dont think that it has altered anything relating to my period. Last edited by Jennjenn; 12-04-2009 at 05:27 PM.

12-04-2009, 05:52 PM	#7
imisspopcorn Punctuation Impaired Join Date: Aug 2009 Posts: 5,945	It just needed a good reminding! __________________ ~~~~~~~~~* Instead of hiding in the darkness of a grey cloud, why not look for the silver lining?

12-04-2009, 10:15 PM	#9
Claire617 Senior Member Join Date: Nov 2009 Posts: 195	I have been on remicade but my period stopped a few months before that anyway, haven't had one in ages, most probably due to being underweight and low iron. Have to agree though I don't miss the extra added stomach pains! __________________ Diagnosed Feb 2003 Surgery Apr 2010 Life is finally looking great again

12-04-2009, 05:18 PM	#4
cheeky Senior Member Join Date: Jan 2009 Posts: 394	You're quite welcome imisspopcorn! : ) hopefully we find out something new... JennJenn, funny I'm also 29 and my name is also Jenn : P My period has always been super regular all my life, but since I've had Crohn's i've developed cysts on my ovaries and now with the third dose of Remicade (and previously on Prednisone) my cycle is a little behind schedule. maybe it will show up, I'd HATE to have it be irregular after years of being able to count down to the exact day. ARGH! plus i'm going on vacation at the end of the month so i don't want any surprises.

12-04-2009, 05:25 PM	#5
cheeky Senior Member Join Date: Jan 2009 Posts: 394	HAHA OOPS!!! NEVERMIND, it just showed up. funny.

12-04-2009, 05:29 PM	#6
Jennjenn Senior Member Join Date: Feb 2009 Location: N.Y. Posts: 580	Well thats good that it just showed up! At least you will not have that surprise now on your vacation!

12-04-2009, 07:47 PM	#8
pewpewlasers Senior Member Join Date: Oct 2009 Location: Chandler, AZ Posts: 289	I don't know about the remicade but what I do know is that since I started getting Depo-Provera injections every three months, my period has stopped which is awesome. My symptoms always seemed to be amplified around that time. So glad I don't have to deal with that anymore.

12-05-2009, 09:30 AM	#10
CrohnieCarolyn Senior Member Join Date: Sep 2009 Posts: 248	I have always been right on time too and in the last year I keep missing almost every other one - the doc. checked my hormone levels and said it wasn't early menopause - I'm 45 - and this started before the Remicade - about 4 months prior - so who knows - I don't mind missing them at all!

12-05-2009, 02:19 PM	#12
cheeky Senior Member Join Date: Jan 2009 Posts: 394	Personally, I think the cysts can be Crohn's/IBD related... I did a thread a while back and I think I had mentioned seeing this: http://www.ncbi.nlm.nih.gov/pubmed/3051875

12-06-2009, 04:27 AM	#13
imisspopcorn Punctuation Impaired Join Date: Aug 2009 Posts: 5,945	Great! Another lovely thing to worry about.....It never ends. Why can't a side effect of Crohn's be increased breast size or your eyelashes grow thick and beautiful???? __________________ ~~~~~~~~~* Instead of hiding in the darkness of a grey cloud, why not look for the silver lining?

12-06-2009, 02:46 PM	#14
dustydshook Member Join Date: Sep 2009 Location: Maryland Posts: 76	I am not on remicaid i am on humira however, I have noticed that when i am predisone my period is twice as heavy as normal and i pass a lot of blood clots. any one else with this problem? Kinda been a little embarrassed/afraid to ask. I also have had cysts which my gyn said was nothing to worry about. __________________ Dusty Shook I honor the place in you where the whole universe dwells and I honor that place in me. When you are in that place and I am in that place, we are one. Namaste The light that is within me bows to the light that is within you.