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Crohn's Disease Forum » Treatment » No meds left to try please help!!


07-01-2017, 10:26 PM   #1
hredner
 
Join Date: Aug 2016
Location: Nashville, Tennessee
No meds left to try please help!!

I have tried 6mp, humira, remicade,cimzia, entyvio, stellera,entocort,prednisone and had a resection. I am currently hospitalized and crohns is in my stomache, duodenum and anastomosis site where my terminal ileum was. No meds left to try they said. Alternative therapies only. I will take any recommendations !!! Please!!!
07-01-2017, 11:16 PM   #2
Layla
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Join Date: Oct 2014
Location: New Zealand

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I feel for you!
One thing you might be able to try is to be part of a medical trial. That's what's next for me once Remicade fails me, which is likely to be soon.

I think there's a list somewhere for medical trials but you could ask your GI if he/she is part of any or are aware of any in your area.
Good luck!
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Layla
Diagnosed with UC in 1994, CD in 2014, IBS in between
Lactose intolerant, IgA deficient and Arthritis.
Resection due to strictures in 2014
Currently taking: Remicade, amitriptyline, zinc, multi vitamin, b12 shots, Vit D, B complex, magnesium, calcium, Psyllium and the occasional iron infusion

Previously on Humira, Prednisone, Azathioprine, MTX, Pentasa, Asacol, Salofalk
07-02-2017, 08:26 AM   #3
my little penguin
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Join Date: Apr 2012

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There is the Crohns exclusively be diet with partial enteral nutrition
It's still in trials
But basically some formula and restrictive diet of only list food


http://www.crohnsforum.com/showthread.php?t=71686

Have you tried full een ?
Exclusive enteral nutrition-formula only no food
That is used in kids with some success similar to steriods but no side effects
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Crohn's Disease Forum » Treatment » No meds left to try please help!!
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