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08-10-2017, 06:31 AM   #1
Catherine
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Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

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Update on my Sarah

For those who don't know Sarah's story she was dx with Crohn's at 16.5 years is now 22. She has been imuran all that time.

She has been home for 6 weeks after spending the last 2.5 years working and travelling around U.K. And Europe.

She is currently in small flare and taking steriods.

She has a new job starting next week, if her employer can get the flight organisated for Wednesday, otherwise the flight will be Sunday. We will know tomorrow.

There is no chemist in town so we need to get 6 months medication organisated. No specialist, No hospital, No doctor.
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Catherine
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
08-10-2017, 06:10 PM   #2
pdx
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Join Date: Dec 2014
Location: Portland, Oregon

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Thanks for the update! I'm glad that she was able to come home for a visit, but I'm sorry to hear that she's flaring. I hope the flare can be controlled quickly.
__________________
Daughter E (15) dx with Crohn's 12/18/14 at age 12

Current treatment:

Remicade started 12/24/14 (currently on 9 mg/kg every 6 weeks)
Oral methotrexate restarted 12/2/16 (15 mg weekly)
vitamin D, folic acid, multivitamin, Prozac

Past Treatment
90% EN via NG tube 2/9/15 - 4/2/15
50% EN via NG tube 4/3/15 - 4/18/15
Supplemental EN via NG tube 5/7/15-6/19/15
Budesonide 3/3/15-6/30/15
Oral methotrexate 3/13/15 - 5/14/16 (15 mg weekly)
Topical clobetasol for Remicade-induced psoriasis
08-10-2017, 08:08 PM   #3
Tesscorm
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Location: Ontario

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Sorry to hear she's flaring! But, hopefully, she's already feeling better.

And I hope you had a nice visit with her and she was feeling good for most of it!

__________________
Tess, mom to S, 22
Diagnosed May 2011

Treatment:
May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
08-10-2017, 09:07 PM   #4
Maya142
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Wow!! She is so grown up now - 22 !! Sorry to hear she is flaring - hope they can get it under control quickly.
__________________
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
08-10-2017, 10:29 PM   #5
Catherine
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Location: Melbourne, Victoria, Australia

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It good to have Sarah home.

Her flight from Brisbane has been arranged for Wednesday. She will fly out of Melbourne on Tuesday.

She is moving in outback South Australia on a contract to until January. Lots of organise, medication and blood tests and finding somewhere for the three monthly blood test.
08-15-2017, 11:07 PM   #6
Catherine
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Location: Melbourne, Victoria, Australia

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Sarah is on her way to her new job.

She is current travelling across Queensland by mail plane. She employer will pick she up and drive her the job in outback South Australia.

We managed to locate the nearest RFDS base, which is a nurse at mine operation. The base is less than 50 km away but over 3 hours by car.

The nearest town to over 200 km away, with a population of just under 300 people.

There is no mobile phone coverage
She employer provide internet access via satellite.
09-11-2017, 07:16 PM   #7
DustyKat
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Location: New South Wales, Australia
How is Sarah going, Catherine?
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Mum of 2 kids with Crohn's.
09-12-2017, 08:06 AM   #8
Tesscorm
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Location: Ontario

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Wow, it sounds like it will be quite an interesting job! What does she do?

And, glad you were able to organize it all! It sounds like there was quite a bit of coordination to arrange all. But, it's also inspiring to see how crohns has not ever stopped her from her ambitions!! From her competitive swimming to working in the outbacks!! You must be very proud!
09-14-2017, 08:08 AM   #9
Catherine
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Location: Melbourne, Victoria, Australia

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She is working in a hotel as bartender. The settlement has a population of 12. The hotel has 12 staff in the dry season, in October staff drops to 4.

She seems ok, its hard stay in contact, it was easier when she was overseas. There is no mobile coverage and she has 2G of satellite internet access per month.
09-14-2017, 09:21 AM   #10
Jmrogers4
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How exciting for her! Glad you were able to get everything organized. Love that she is out there living her life to the fullest.
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Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
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