Share Facebook


09-08-2017, 08:27 AM   #1
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Stelara under 18

Insurance is dening Stelara due to Ds age
He is 13

Anyone have any papers/links/studies showing it's effective for kids with Crohns under age 18 ???
Thanks
__________________
DS - -Crohn's -Stelara -mtx-IVIG
09-15-2017, 09:22 AM   #2
Jmrogers4
Moderator
 
Jmrogers4's Avatar
Wasn't vtfamily's son on stelara?
__________________
Jacqui

Mom to Jack (18) dx Crohn's 2/2010
Vitamin D -2000mg
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Centrum for Him teen multivitamin
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
09-15-2017, 10:57 AM   #3
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Insurance only wants peer reviewed studies or papers unfortunately
So far only found three for very small pediatric Crohns studies and one on JSpA .
Which makes appealing it difficult
09-16-2017, 08:10 AM   #4
Jabee
Senior Member
 
Jabee's Avatar
 
Join Date: Oct 2016
Location: Massachusetts

My Support Groups:
I suspect you have already discovered this study; since they're beginning it in January is it too late to try to get your son into this study? What does insurance want him to take instead?

https://clinicaltrials.gov/ct2/show/NCT02968108
11-27-2017, 11:55 PM   #5
vtfamily
Senior Member
 
vtfamily's Avatar
 
Join Date: Mar 2013
Location: Palmdale, California

My Support Groups:
Yes, Gus started Stelara at 12 yrs old...he is almost 18 now, and still doing great with Stelara. Our GI Doc is happy to talk to any Peds GI if desired, just send me an email at [email protected] and I'll give you his contact information.

I can't believe insurance is still balking since Stelara was approved last year.

Best to all.
Cheryl VT
11-28-2017, 07:40 AM   #6
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
Thanks
Vtfamily

He was able to start Stelara in August and get it approved for injections in October after lots of insurance hoops
Took the full 8 weeks to get it approved
From infusion to first injection
Reply

Thread Tools


All times are GMT -5. The time now is 02:05 AM.
Copyright 2006-2017 Crohnsforum.com