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#1 |
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Captain Insaneo
Join Date: Jun 2009
Location: NC
Posts: 6,359
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Well it’s been just about a year now that my current flare started up. During this flare I have had my ascending and transverse colon removed, started Remicade, and have learned fun terms such as “random vomiting”, “obstruction”, and “corticosteroid induced mania”.
I have been in fights with pain, chronic diarrhea, fatigue, and insomnia. For the most part I have lost these fights. Once an entire year passes you start to loose hope that remission will become part of your vocabulary again. Trying out all the different medications was almost as fun as the bough’s of depression; landing me in the hospital only twice. I have learned to dread going to the bathroom because of the intolerable pain, but to always ensure one is close by as it is inevitable. I have learned that anemia sucks and knowing that you are anemic and seeing yourself bleeding everyday is bewildering. Also, and more importantly, I have become a member of Crohns Forum, made life-long friends, and have learned more about my disease than I ever would have through my medical care. I have learned that no matter how bad it gets, it could be worse. I have learned that my symptoms are manageable and one day I will reach remission. I have learned that even though depression goes hand in hand with this disease; it’s treatable and livable. I’ve learned that you have to have a sense of humor with this crap. Literally. I have also seen that I am very lucky despite this disease. Slowly but surely I am learning to control Crohns rather than have Crohns control me.
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#2 |
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Senior Member
Join Date: Aug 2009
Location: North Carolina
Posts: 2,994
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Very nicely said Farm!! Always the optimist.....it is what makes you YOU!
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#3 |
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Your Story Forum Monitor
Join Date: Oct 2009
Location: North Western, ONT
Posts: 3,604
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Yeah good thing he is cute too eh? LOL
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#4 |
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Senior Member
Join Date: Aug 2009
Location: North Carolina
Posts: 2,994
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THAT boy? Nah...he's my brother! I can't think of him that way LOL!
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#5 | |
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Captain Insaneo
Join Date: Jun 2009
Location: NC
Posts: 6,359
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Quote:
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Have you sharted lately? (Just wait.) |
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#6 | |
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Your Story Forum Monitor
Join Date: Oct 2009
Location: North Western, ONT
Posts: 3,604
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Quote:
Well you could be like the Red Green show where he says "if the women don't find you handsome, they might find you handy" something like that, only heard it once.
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#7 |
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Captain Insaneo
Join Date: Jun 2009
Location: NC
Posts: 6,359
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As long as they 'find' me, I'm good!
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#8 |
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Senior Member
Join Date: Aug 2009
Location: New Zealand, Dunedin
Posts: 3,672
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Yay Farmie - you are an inspiration!
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Farting is FUN
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#9 | |
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Senior Member
Join Date: Oct 2009
Location: Chandler, AZ
Posts: 289
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Quote:
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#10 |
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Captain Insaneo
Join Date: Jun 2009
Location: NC
Posts: 6,359
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It's amazing the strength I've obtained from you guys! I hope I help you guys out just a fraction of what you all have given me.
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Have you sharted lately? (Just wait.) |
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#11 |
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Senior Member
Join Date: Aug 2009
Location: North Carolina
Posts: 2,994
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You've helped me alright - you've helped me get a leg up on way too many laugh lines....
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#12 |
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Senior Member
Join Date: Nov 2009
Location: Norcal
Posts: 134
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So true Farm. My plan is to learn more from this disease than it has taken. So far I'm learning to be gentler with my own failings, to look beyond appearances, that I can survive much more than I ever thought I could, that I'm one helluva Mama Bear, and... one I'm still struggling with... asking for help when I need it.
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~Rhonda She was not quite what you would call refined. She was not quite what you would call unrefined. She was the kind of person that keeps a parrot. ~ Mark Twain |
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#13 |
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Moderator
Join Date: Jan 2008
Location: Illinois, USA
Posts: 4,213
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I did sort of the same thing Farm, I had a thread here last year for my one year anniversary, but only this time for my flare up, not diagnosis, and it was a lot of retrospect and introspect, and I felt saddened more than anything, maybe because anniversaries are times for celebration, and it was one of sorrow and rage for me instead. Keep the chin up, fight the good fight.
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![]() -diagnosed with Crohn's Disease in Sept. 2006, currently 27 years old ![]() "Chuck Norris can kill two stones with one bird." "Men with Spartan lives, simple in their creature comforts, if only to allow for the complexity of their passions." -The X-Files, S4 |
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#14 |
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Senior Member
Join Date: Nov 2009
Posts: 360
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You are amazing!!! Keep the positive posting for us newbies...It is at times so overwhelming....Sue
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#15 |
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Sports Crohnie
Join Date: Aug 2008
Location: New York, NY
Posts: 1,834
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Well said, my friend. This disease is a monster at times but we can't let it conquer our spirits. Now go drink some beer.
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Fen Crohn's Colitis (2003-present) Kidney Stones (1998, 2003, 2008) Medication 6-MP (2009-present) Vitamins/Supplements Multivitamin, Vitamin D, Turmeric Super Powers I am Batman
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#16 |
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Captain Insaneo
Join Date: Jun 2009
Location: NC
Posts: 6,359
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Get the H E double hockey sticks off my thread you holistic spammer!!
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#17 |
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Senior Member
Join Date: Aug 2009
Location: North Carolina
Posts: 2,994
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Haaa - that's funny - I was like WHA......nice picture.....seems very soothing Farmie - maybe you should try it.
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#18 |
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Captain Insaneo
Join Date: Jun 2009
Location: NC
Posts: 6,359
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Does she come with it??
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#19 |
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Punctuation Impaired
Join Date: Aug 2009
Posts: 5,945
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Bahawaha.....
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~*~*~*~*~*~*~*~*~* Instead of hiding in the darkness of a grey cloud, why not look for the silver lining?
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#20 |
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Senior Member
Join Date: Nov 2009
Location: Norcal
Posts: 134
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Yes Farm, she does...
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~Rhonda She was not quite what you would call refined. She was not quite what you would call unrefined. She was the kind of person that keeps a parrot. ~ Mark Twain |
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#21 |
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Senior Member
Join Date: Aug 2009
Location: North Carolina
Posts: 2,994
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Well then, I want the guy version......
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#22 |
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Punctuation Impaired
Join Date: Aug 2009
Posts: 5,945
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Aww Farm she's gone. I think you hurt her feelings!
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~*~*~*~*~*~*~*~*~* Instead of hiding in the darkness of a grey cloud, why not look for the silver lining?
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#23 |
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Senior Member
Join Date: Oct 2009
Location: Freeland, MI.
Posts: 1,167
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Nice post Farm. I have had 22 such anniveraries and the 23 will be Feb 5th. I have never liked these dates and have always suffered some of my worse bouts of depression . The only thing I ever took away from them was I was still alive and still had CD.
I believe this year will be differant because of all you guys. I never had others that really understood what I go through. My wife is the best, but she can only see the surface of this horrible monster. With you and the rest of my new Crohnie friends I have a whole new world to learn from. Thank-you Farm and everyone else for really educating and befriending an old Chohnie.
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I'm the Captain of my own pirate ship. You'll find me on the POOP deck! Greg Yancer Diagnosed w/ CD Febuary 1986 No surgeries Current meds:REMICADE (CATS SCARE ME), Pentasa, Nexium, Probonics. |
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#24 |
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Captain Insaneo
Join Date: Jun 2009
Location: NC
Posts: 6,359
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I'm happy to report that my Crohns has *seemed* to have calmed down over the past couple of weeks. I'm not a band-wagon jumper by any means, but I finally ordered some probiotics and they have helped a lot.
The rest of life is extremely crazy at the moment, so I'm not around as much. To all you fighters I say, Keep your head and chin up. It can and will get better eventually.
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#25 | |
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Senior Member
Join Date: Feb 2010
Location: A small Midwestern town, U.S.A.
Posts: 237
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Quote:
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Sabrina IBD diagnosed in 1990 at 8yrs old (currently diagnosed as Crohn’s) Blood clots 12/2009 (DVT and bilateral PE) Current Medicines: Prednisone: I'm done!!!! 6MP: 75mg/day Trazodone: 50mg/night (because pred messed with my sleep) Warfarin: alt 15/17.5mg (anticoagulant - because of blood clots) Ethel: “So, is everything okey-dokey?” Lucy: “No, it’s inky-stinky” ~ from an old I Love Lucy episode. |
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#26 |
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Senior Member
Join Date: Oct 2009
Posts: 283
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Thanks Farm. I was feeling pretty sorry or myself this morning. This post really helped. You've got to look on the bright side, even when this disease is getting you down like it is for me right now.
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#27 |
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Senior Member
Join Date: Feb 2010
Location: Pottstown, PA
Posts: 663
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Thanks for reminding us that there is always a silver lining.
- Amy |
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#28 |
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Senior Member
Join Date: Jan 2010
Location: Southern California
Posts: 450
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Jeannette ![]() Be careful about reading health books. You may die of a misprint. -Mark Twain |
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