Share Facebook


09-30-2017, 04:56 PM   #1
Optimistic
Senior Member
 
Optimistic's Avatar
 
Join Date: Oct 2014

My Support Groups:
Enlarged spleen

Latest MRE shows nothing in way of Crohn's etc. However, spleen is slightly enlarged. It was slightly enlarged 2 years ago and has increased a bit.

Has anyone seen this? Have not talked to GI, just read report online. Quick scan of articles and journals isn't conclusive although there is much more for me to read.

I appreciate hearing anything the Brain Trust might know!
09-30-2017, 05:46 PM   #2
Maya142
Forum Monitor
 
Maya142's Avatar
 
Join Date: Jul 2013

My Support Groups:
Hmmm no idea...has he had mono recently by any chance?

That's all I can think of.

Really glad to hear that the MRE was clear though.
__________________
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
10-01-2017, 06:04 PM   #3
kimmidwife
Forum Monitor
 
kimmidwife's Avatar
 
Join Date: Sep 2010
Location: Florida

My Support Groups:
So I did a bit of journal searching and it seems that in very rare cases Crohn’s can cause some issues with the spleen. Hoping it is nothing to worry about.
Keep us,posted.
__________________

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
10-01-2017, 06:49 PM   #4
Optimistic
Senior Member
 
Optimistic's Avatar
 
Join Date: Oct 2014

My Support Groups:
Thank you both! Now that I am dealing with the EDS and maybe some early issues with pain in both knees, it is hard to keep track of what is causing what. So much of this is linked.

I'll hope dr calls early this week.
10-01-2017, 07:00 PM   #5
DanceMom
Senior Member
A had an enlarged spleen, probably due to a virus. The doctor discovered it during a physical exam. Most of the time it's nothing to worry about, especially if labs look good.
__________________
A is 12

Diagnoses: Immune Dysfunction, Hypogammaglobulinemia, Asthma, Allergies

Treatment: Hizentra, Flovent, Zyrtec, Cellcept
10-01-2017, 07:04 PM   #6
Maya142
Forum Monitor
 
Maya142's Avatar
 
Join Date: Jul 2013

My Support Groups:
Is your son seeing a rheumatologist or geneticist about the EDS? If so, perhaps it's worth asking the doc if the enlarged spleen could be related to the EDS, instead of the Crohn's.
10-01-2017, 07:13 PM   #7
Optimistic
Senior Member
 
Optimistic's Avatar
 
Join Date: Oct 2014

My Support Groups:
He has seen a Rheumatologist. I'll follow up with him on whether it could be the EDS. Interesting.

These kids have so many different issues. It is all related? Recent allergy testing showed problems with many of the things he avoids with SCD.

Trainers and an ortho wrote off knee pain (BOTH KNEES) to tendonitis from playing too much sports. Their reco was different forms of NSAIDs. Crazy. People do not understand Crohn's and all the connections.
10-01-2017, 07:23 PM   #8
Maya142
Forum Monitor
 
Maya142's Avatar
 
Join Date: Jul 2013

My Support Groups:
I honestly don't know if an enlarged spleen can be related to EDS - but all sorts of weird things can related to EDS, so I figure that there's no harm in asking!

My daughter's AS is so much worse than her Crohn's that she is allowed to take NSAIDs. Just wanted to mention that because NSAIDs aren't always an absolute no for people with Crohn's. Of course, they should be avoided if possible, but in my daughter's case, the benefits outweigh the risks.

There are several NSAIDs that are easier on stomach - Celebrex is generally what is used. Either Zantac or a PPI can be given to protect the stomach.

There is also Voltaren gel - since it's topical, less is absorbed. Most GIs are ok with that for joint pain and it really does help.

My daughter does not have EDS, but she is hypermobile. Physical therapy has made a HUGE difference for her - both for the hypermobility and for her AS.
10-01-2017, 07:48 PM   #9
my little penguin
Forum Monitor
 
Join Date: Apr 2012

My Support Groups:
The thing about food allergy testing is it is has a very high false postive rate for IgE testing (food allergies that can kill)
Ds tests IgE positive to a lot of foods that ARE NOT TRUE food allergies
He does have food allergebs to tree nuts and fish
Reactions plus postive tests and clinical history are needed plus a very good allergist
Who knows good allergies

Ds arthritis is also much worse than his Crohns
So he takes Celebrex as well

Definitely talk to a rheumo about his knees.
Ds has juvenile spondyloarthritis

Good luck
__________________
DS - -Crohn's -Stelara -mtx-IVIG
10-02-2017, 12:55 PM   #10
Farmwife
Forum Monitor
 
Farmwife's Avatar
 
Join Date: Apr 2012
Location: Michigan

My Support Groups:
Thank you both! Now that I am dealing with the EDS and maybe some early issues with pain in both knees, it is hard to keep track of what is causing what. So much of this is linked.

I'll hope dr calls early this week.
Truer words have never been spoken.
Welcome to my and many mamas life's on this forum.

EDS can affect the spleen for different reasons.
The vascular eds that affects the spleen is more serious.
What type does your child have? I thought it was type 3.

I'm not an expert on eds yet been have er been researching all aspects.
Unfortunately, I have to inform most medical personnel on what EDS is.
Her head doc is the expert in the state and is awesome and willing to explain things to me or send me studies.
__________________
I'm mom to............... Little Farm Girl 8 yr old
Ibd (microscopic)
(12/28/12),
dx Juvenile Arthritis
(12/13/13)
dx Erthema Nodosum
(8/13/14)
Bladder and Bowel Dysfunction
(10/14/13)
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 4 wks
Azathroprine started on 10/9/15
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine
Reply

Thread Tools


All times are GMT -5. The time now is 11:42 PM.
Copyright 2006-2017 Crohnsforum.com