I was diagnosed last April, but suffering strange symptoms for 6-7 years prior to this. I was also misdiagnosed and mistakenly treated for H Pylori from June 2015 to when I received a correct diagnosis (somebody thought it might be a good idea to take some biopsies rather than assume by that stage.)
Prior to diagnosis I was vomiting sporadically, but I would also have periods lasting 5-7 days where I would vomit up almost anything I ate or drank. Most of the time it was just liquid and bile by the looks of it. I always put these down to sickness bugs as they cleared up in a few days. I also had a fever, chills etc which is what made me think it was a virus or something. Little did I know! I’ve yet to experience remission, the inflammation has gone from severe to moderate with Azathioprine, lots of steroids and a liquid diet. It isn’t quite enough to get my Crohn’s in check so I’m waiting to start remicade.
Food can pass through to my stomach now, but it can be slow. Depending on what I eat I can get pretty awful heartburn and reflux from the ulcers. Initially I could barely eat a few mouthfuls of anything without feeling like I’d eaten a 7 course meal. I could literally feel the food weighing down as it was bottlenecking through the inflammation, and if I continued to eat anyway I would vomit up completely undigested food. This has improved to a degree, I still have a reduced appetite, but I can physically eat a decent portion. I currently only eat one meal a day, but I try to make sure it has a good variety of food and I eat a decent amount. I also drink juices or supplement this with ensure plus.
I saw a specialist dietitian for 12 months, I can’t recommend this highly enough. It was a HUGE eye opener and she was incredibly informative and really knew what she was talking about. I’m about to be referred back to them again as I’m going to do another liquid diet to try and calm this flare I’m in. If this is an option for you I would definitely recommend seeing one.
Surgery has not been discussed with me as I haven’t exhausted my options with drugs yet, however I too have heard that duodenal surgery is avoided if at all possible these days.
I hope that helps!