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Crohn's Disease Forum » Treatment » Stelara/Ustekinumab » Stelara Fatigue and Increased Dosing :(


10-21-2017, 03:14 PM   #1
Crohnsmomof3
 
Join Date: Oct 2013
Location: Indiana

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Stelara Fatigue and Increased Dosing :(

I had my regular appointment with my GI this week and he wants to up my dose of Stelara from every 8 weeks to every 4 weeks. He wants to do this because about two months ago I ended up in the ER with a partial blockage. The weird thing is that the partial blockage seemed to come from nowhere. I was feeling great and then BOOM and then since then I have been feeling fine. I understand the idea of preventing these blockages, but I am worried about the fatigue that might come out of this dosing change.

I just had my shot last Saturday (after 8 weeks) and I have been napping almost daily to cope with this. I usually get fatigued/exhausted for a full week or two. I have been on Stelara since February of this year. So if I get a dose every 4 weeks will I be tired even more? Does anyone have experience with Stelara every 4 weeks? I am worried about quality of life/fatigue at this timing (4 weeks). I am wondering if I should discuss trying every 6 weeks first. Especially since I have been feeling fine since the ER visit. I cannot deal with sleeping my life away...
__________________
Leslie

Diagnosed: 2004
Abcess: 2011
TI resection 2013 (60 cm of small bowel)

Current: Stelara, Methotrexate, Questran, B12 injections, metoprolol, sertraline

Past medications: pentasa, remicade, humira, cimzia, imuran, prednisone, entocort, 6mp
Adverse reactions: Entyvio, Remicade, Humira, Cimzia, Imuran, 6MP

Diagnoses: Crohn's Disease, Iron deficiency Anemia, B12 Anemia, Osteoporosis, Migraines, Anxiety
10-28-2017, 01:48 PM   #2
newdiagnosis
 
Join Date: May 2017
Have you had your stelara levels checked?
10-28-2017, 03:29 PM   #3
Crohnsmomof3
 
Join Date: Oct 2013
Location: Indiana

My Support Groups:
Have you had your stelara levels checked?
I have not heard of this...I might ask my doctor. Is it a simple blood test?
11-01-2017, 01:10 AM   #4
newdiagnosis
 
Join Date: May 2017
Very few places do the test.
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Crohn's Disease Forum » Treatment » Stelara/Ustekinumab » Stelara Fatigue and Increased Dosing :(
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