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Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » Is a cutting seton supposed to hurt this much?!



11-26-2017, 04:04 PM   #1
harrietsweetharriet
 
Join Date: Nov 2017
Is a cutting seton supposed to hurt this much?!

Hi all, new here.

I was hoping to gain some insight around cutting setons...

I had a fistulectomy and a cutting seton placed 5 days ago. The pain from the fistulectomy has been manageable, for the most part, except when I have my packing changed daily by a nurse (that's not pleasant) My problem is with my cutting seton. I know they're supposed to be painful and uncomfortable, but mine is excruciating. I can't so much as move the threads around, let alone lightly pull them, without experiencing what I can only describe as being poked with a hot poker. It's seriously the sharpest pain, and makes me yelp and cry.

Is this the pain level I can expect for the remainder of my time with the cutting seton in, or is this residual pain from surgery? I'm taking a high dose of tramadol, and it works to numb the pain from the fistulectomy, but does nothing for the seton pain.

If this is the pain I'm going to experience for the foreseeable future, I might cry.
11-26-2017, 07:56 PM   #2
Trysha
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Sorry you are having such a hard time harrietsweetharriet
Perhaps you should be calling your doctor to let them know the pain is unbearable ,
maybe someone should make sure things are ok.
Feel better soon...
11-26-2017, 08:15 PM   #3
London
 
Join Date: Nov 2017
Sorry you are having such a hard time harrietsweetharriet
Perhaps you should be calling your doctor to let them know the pain is unbearable ,
maybe someone should make sure things are ok.
Feel better soon...
I agree... I would call your doctor as soon as possible. Hope you feel better
11-27-2017, 06:28 PM   #4
Starnett
 
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Just wondering how you are getting on? Hope you are feeling some relief. Iím coming up to 1 week since my surgery and have been experiencing some difficult pain but mine is more when having BMs and then for a time after this.

Not got any solution, just wanted to let you know there are people here for you if you need to vent. It can feel quite isolating as nobody quite seems to understand how invasive this surgery is or the impact it has if in so much pain.

Feel better soon and let us know how you are doing

Andy
11-27-2017, 06:44 PM   #5
harrietsweetharriet
 
Join Date: Nov 2017
Thanks all for your kind words and advice. It is comforting knowing there are people out here that have experienced the same problems as me.

Pain isn't quite as sharp today, which is promising... my nurse suggested maybe one of my sutures from surgery or from the seton itself is touching a nerve...if so, that would explain the severity of the pain. I'm going to see if I can hold out until my follow-up appointment with my surgeon next week. If not I will be calling him.
11-28-2017, 12:13 AM   #6
cmack
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I always found the first couple weeks the worst for pain. Cutting setons are pretty good at fixing things. Good luck.
11-28-2017, 11:24 AM   #7
Bufford
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I would call the doctor and ask for an opiate pain killer. For what you are going through the tramadol is not enough, nor does it provide that soothing feeling that I find is a big help physically and mentally. Pain control today is often not being taken seriously due to the politics that has prevented many from getting the proper pain relief that they need.
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