Share Facebook


12-07-2017, 11:13 PM   #1
Dollyxdior
 
Join Date: Dec 2017
Miss

Hey.. I'm new to this. But was misdiagnosed in 2014 the consultant sed I was over reacting and sed I had IBS.. So in 2016 my mum demanded I had an MRI scan and I have crohns its so bad they can't operate.. I have strictures and deep scaring and my life is tried humira worst thing ever.. Allergic to steroids.. So I'm on fortisip drinks and amoxicillin to help with the inflammation around my strictures
I have 2 years to live
Unless some amazing thing happens.. I've been thru so much and I have no idea how to work this

Last edited by Dollyxdior; 12-07-2017 at 11:58 PM.
12-07-2017, 11:17 PM   #2
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Welcome. I hope they can get your Crohn's disease in remission soon.
12-07-2017, 11:58 PM   #3
Dollyxdior
 
Join Date: Dec 2017
Hey.. I'm new to this. But was misdiagnosed in 2014 the consultant sed I was over reacting and sed I had IBS.. So in 2016 my mum demanded I had an MRI scan and I have crohns its so bad they can't operate.. I have strictures and deep scaring and my life is tried humira worst thing ever.. Allergic to steroids.. So I'm on fortisip drinks and amoxicillin to help with the inflammation around my strictures
I have 2 years to live
Unless some amazing thing happens.. I've been thru so much and I have no idea how to work this
Hello


12-07-2017, 11:59 PM   #4
Dollyxdior
 
Join Date: Dec 2017
Hi

12-08-2017, 08:31 AM   #5
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
I am sorry. I missed part of what yiu write. Sending support and prayers.
12-08-2017, 08:32 AM   #6
eleanor_rigby
Senior Member
 
Join Date: Aug 2012
Location: Cheshire, England, United Kingdom

My Support Groups:
sorry to hear what you have been going through.
Why do you only have 2 years to live? There are several drugs out there that could help you and get the inflammation under control, after which they could operate.
__________________


History:
2nd Generation affected

Symptoms since 08/2006 (age 17)

Emergency open bowel resection after perforation in 12/2011 (age 22) (wrongly diagnosed as burst appendix ). Three years remission following this unmonitored

Diagnosis:
Perforating small bowel Crohn's Disease 01/2016 (terminal ileum, duodenum)
Coeliac disease (age 26)

Meds:
50mg azathioprine (down from 75mg after my WBC dropped)
Gluten-free diet
12-08-2017, 09:31 AM   #7
Dollyxdior
 
Join Date: Dec 2017
They can't operate
12-08-2017, 09:32 AM   #8
Dollyxdior
 
Join Date: Dec 2017
I can't work this... Its saying wrong time.. And im lost 😞
12-08-2017, 09:35 AM   #9
Dollyxdior
 
Join Date: Dec 2017
Do I need some kind of app to work this
12-08-2017, 09:37 AM   #10
Dollyxdior
 
Join Date: Dec 2017
People's posts seem to b like last year is there anyone that can suggest a different crohns site or help me out Thanq
12-08-2017, 03:48 PM   #11
ronroush7
Forum Monitor
 
ronroush7's Avatar
 
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
Maybe you should see another doctor.

Last edited by ronroush7; 12-08-2017 at 04:08 PM.
Reply

Thread Tools


All times are GMT -5. The time now is 12:48 AM.
Copyright 2006-2017 Crohnsforum.com