Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » Fistula before being diagnosed?

02-10-2018, 03:06 PM   #1
Join Date: Dec 2017
Fistula before being diagnosed?

I started with stomach cramps which left me only to be replaced by diarrhoea which turned bloody for a few days then returned to normal colour back in October. It went away for a while before I got hit with another 2 week bout of diarrhoea again over Christmas. Once again it has stopped but I am waiting to be seen by a GI.
My new symptoms now are upper stomach aches which come and go and bubbly urine. I have heard the bubbly urine can be a fistula symptom. Is it then possible to have a fistula before being diagnosed?
02-10-2018, 03:55 PM   #2
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ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

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Everyone is different. I don't recall having bubbly urine with a fistula. I would wait for diagnosis by your doctor. I hope you feel better soon.
02-10-2018, 04:00 PM   #3
Join Date: Dec 2017
Thanks. I am really scared I not only have crohns but also a complication such as a fistula/stricture
02-10-2018, 07:31 PM   #4
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cmack's Avatar
Join Date: Aug 2014
Location: British Columbia

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Hi Anxious855,

I'm not sure about bubbly urine, I have had multiple fistulas but nothing changed in regards to urine. I hope you get things under control soon. Be sure to go see a doctor sooner if you are worried about waiting too long to see the GI.


02-14-2018, 03:42 AM   #5
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You can definitely have something before being diagnosed especially when you have to wait so long to be seen by a specialist. Hopefully either your GI or regular general practitioner will test for any fecal matter in your urine to see if that's the cause which is very possible if you have a fistula connecting to your urinary tract or do a Cystoscopy (scope of your bladder). "Bladder and intestine: "vesicoenteric", "enterovesical", or "vesicointestinal" Bladder and colon: "vesicocolic" or "colovesical" Bladder and rectum: "vesicorectal" or "rectovesical.""
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 75mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel (endometriosis), Tylenol 3 (Osteoarthritis), Zantac 150mg 2/day (acid reflux), Klonopin 1mg (Panic Disorder), Imitrex 25mg (migraines), Zofran 8mg (nausea)
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 19 years and counting.

Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » Fistula before being diagnosed?
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