Share Facebook


01-08-2010, 03:23 AM   #1
Daydreamer88
New Member
 
Daydreamer88's Avatar
 
Join Date: Jan 2010
Location: Black Diamond, Washington
Humira

My Doctor is thinking of switching me to humira. I'm terrified of needles and don;t think I can inject myself.

What are somethings you all have experienced and is it worth it?

I need some advice other then my Doctors.
01-08-2010, 03:51 AM   #2
shazamataz
Senior Member
 
shazamataz's Avatar
 
Join Date: Aug 2009
I can't comment on the Humira but I have been doing my own B12 shots and actually find it not too bad. Just get in and get it over with! That said, the Humira ones may be quite different!
Anyway, lots of people here have experience they can share
__________________
Farting is FUN
01-08-2010, 04:20 AM   #3
beth
Senior Member
 
Join Date: Mar 2009
Location: United Kingdom

My Support Groups:
It's not like an injection a nurse gives you. It's a pre-loaded pen type thing, very easy to use. Really.
01-08-2010, 09:48 AM   #4
katiesue1506
Senior Member
 
Join Date: Nov 2006
I always told myself I'd never be able to inject myself with anything either. Like Beth says... its a preloaded pen type thing so it doesn't FEEL like a real injection to your mind when you do it. You don't even see the needle. Its painful because the med stings when it goes in, but after 10 seconds of that its all done and over with. I've been on Humira twice and I'm currently using it. The worse humps to get over are the two loading doses, after that its a piece of cake to do one injection every other week.

Actually now that I think about it, the only pain I do remember is the stinging of the medicine, I don't think I even feel the needle. Its much easier once you jump in and do it. And if it makes you feel better, you are more apt to do it anyhow. Good luck!

Only thing I noticed while using it is I get a little raised swollen area at the injection site for a few days that itches. Thats all... goes away after like 3-4 days.
01-08-2010, 01:36 PM   #5
CrohnsHobo
Senior Member
 
CrohnsHobo's Avatar
 
Join Date: Nov 2009
Location: San Diego, California
I should be starting it next week :fingers crossed:
__________________
Diagnosed in 1996
Currently on: Nothing!
Colostomy surgery 4/24/12

Past Failed Treatments:
Prednisone
Remicade
Asacol/Lialda
6 MP
Cipro/Flagyl
Humira
Methotrexate
Cimzia
Azothiropine
Entyvio
Augmentin
Stelara
01-08-2010, 07:52 PM   #6
My Butt Hurts
Squeals-a-lot!
 
My Butt Hurts's Avatar
 
Join Date: Aug 2007
I felt SO much better when I first started Humira. A little 10 second sting was SOOOO worth it. Even though the shots were every two weeks, I felt so much better, I'd have done them every day if I had to.
I had my husband do them cuz I didn't want to do them myself.
I started feeling better on the 6th day after the first injection. It was amazing for 4 1/2 months until it kinda quit working.
You can watch a video on the injections at www.myhumira.com .
01-08-2010, 10:57 PM   #7
uab grad student
Senior Member
 
uab grad student's Avatar
 
Join Date: Dec 2009
I am on Humira and the injections weren't that bad. A nurse showed me how to do them when I did my first 4 loading doses. I injected in the stomach, some say the thighs are easier, but I think the stomach wasn't too bad.
__________________
Ashlee

December 2009--Diagnosed with Crohn's

Current Crohn's meds: entocort, remicade, 6-MP

Other stuff: pulmicort, pro-air, celexa

Current supplements: ferrous sulfate, folic acid, Vitamin B12, Calcium, Vitamin D, women's multi-vitamin, Florastor probiotic
01-13-2010, 07:01 AM   #8
danika
Member
 
danika's Avatar
 
Join Date: Jun 2006
I was on Humira for just over 12 months and after I had a resection in May 2009 I stopped it, I am now trying to get back on it and so am having a colonoscopy tomorrow. I never used the pens, they weren't available when I started and so I always used the syringes because that is how I knew to do it, I would find that some days I would have difficult injecting myself, and I am normally fine with needles, but it was more of a mental block and an emotional thing to do with why I had to do it. When I go back on it I want to get the pens, they seem pretty nifty.

It is amazing what you can do when it makes you feel better
01-18-2010, 12:07 AM   #9
imisspopcorn
Punctuation Impaired
 
imisspopcorn's Avatar
 
Join Date: Aug 2009

My Support Groups:
Just clarify with the pharmacy that you need the auto-injection pens. I got a mixture of both.....The doctor's office should have a starter kit with a pretend pen and instructions, if not, they can get them from a drug rep. Good luck.
__________________
~*~*~*~*~*~*~*~*~*
Instead of hiding in the darkness of a grey cloud, why not look for the silver lining?
01-18-2010, 06:45 AM   #10
uli
 
Join Date: Dec 2009
Location: Malmö, Sweden
Been on Humira for 2 months now ( 40mg every 2 weeks ) and it seems that my BM's has decreased some ( now 5-7 times daily ) and the "unstoppable aggresive diarrhea" has turned into somthing more easy to handle - which is a relief itself.
Although I seem to have pain in the left side of my stomach, especially just before a BM, which by the way still are bloody :-( I know that it can take several months for the Humira to show full effect but cant help wondering.

Anybody else recognizes this pain sensation ?

/Uli
01-18-2010, 08:27 AM   #11
luke
 
Join Date: Jan 2010
I've been taking Humira for about 2 years. At first I was taking it twice a month, but now my doctor has me taking it once a week. I've not seen any side effects yet from it other than the injection pain. B12 shots tickle compared to the Humira shots. I discovered that there is a major nerve that runs through the top of my thigh, so I just put the shot in my belly now. I also found that if you let it sit out for 20 minutes after taking it out of the fridge, it helps some with the pain. You have to hold the pre-loaded pen for about 10 seconds as the liquid goes into you. Kind of feels like molten lava being pumped into your veins.
The good news is that you normally take it only twice a month, so you tend to forget how bad it feels by the next injection. I don't know what it's doing to my body in the long term, but for the first year and a half it worked really well.
01-18-2010, 08:37 AM   #12
Crohn's 35
Inactive Account
 
Join Date: Oct 2009
Welcome Luke, perhaps you can tell us your story on your own thread!

I too was on Humira, I used the syringes because it hurt way less, it was good for 6 months, then weekly then it stopped working for me. I wish it did, because Cimzia is not in Canada I dont mind needles. Welcome, lots of information here!
01-18-2010, 09:11 AM   #13
Nytefyre
Senior Member
 
Nytefyre's Avatar
 
Join Date: Jul 2009
Location: Georgia
I was on Humira for almost two years. I started with one pen(40mgs) every other week, then on to one pen every week. For a month I took two pens every week. I never had any crazy side effects. It just stopped working.
I got used to giving myself the shot but it still stung for about 10 seconds after pressing the plum button. One good tip is to wait about 10-15 minutes after taking the pen out of the fridge. This allows the med to come to room temp and the shot then hurts less, at least it did for me. Good luck!
01-24-2010, 03:44 AM   #14
MetalCyborg
New Member
 
MetalCyborg's Avatar
 
Join Date: Oct 2008
Location: Los Angeles, California
@uli - i was on pred and switched to humira, and as im tapering off the pred i have the same pain as you - on the left side. my BMs are also bloody.
__________________
-- Diagnosed with Crohn's in August 2007...I'm now 21.
01-24-2010, 06:45 AM   #15
uli
 
Join Date: Dec 2009
Location: Malmö, Sweden
MetalCyborg, thanks for replying ! Good to know that someone shares your symptoms although circumstances could be better

Hope that the Humira would ease things !
01-24-2010, 02:06 PM   #16
MetalCyborg
New Member
 
MetalCyborg's Avatar
 
Join Date: Oct 2008
Location: Los Angeles, California
I think there was someone else on here who had kind of the same thing as me, but if i recall it was because he tapered of pred. i think he got diagnosed with IBS or IBD in addition to crohns.
01-29-2010, 12:54 PM   #17
J.P.
New Member
 
Join Date: Jan 2010
I just started humira yesterday after taking azathioprine for a while without any improvement. This self inject pen is pretty simple and I like it better than having to take pills every day..My doc says itll prob take 2-3 weeks to start working. Is he about right?
__________________
-John
Diagnosed with CD Sept 09
Currently on Humira, Azathioprine, Prednisone
01-29-2010, 02:05 PM   #18
CrohnsHobo
Senior Member
 
CrohnsHobo's Avatar
 
Join Date: Nov 2009
Location: San Diego, California
I started on Tuesday night. The injection pens were easy but I actually had an easier time injecting myself with a regular needle (I started Metho injections on Tuesday night also)
01-29-2010, 08:04 PM   #19
GoJohnnyGo
One Badass Dude
 
GoJohnnyGo's Avatar
 
Join Date: Aug 2008
Location: Calgary, Alberta
Going to get the TB test, then I'll be joining you guys.

It's for the arthritis in my case.
Reply

Thread Tools


All times are GMT -5. The time now is 02:54 AM.
Copyright 2006-2017 Crohnsforum.com