01-26-2010, 04:25 PM
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#1 |
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Senior Member
Join Date: Nov 2009
Posts: 360
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CCFA supports
If you've joined CCFA or not, you can go to their sight and click into advocacy. It is a way to ask our reps to help more people know about auto immune disease and get much needed $$'s for research. Being a 5 year suffere from Colitis, newly diagnosed with Crohns, it never ceases to amaze me that we have to suffer this much from a disease that has been around so long! Please go into their site to get more support. I am going to forward the link to my family and friends to bug our reps to get it to pass.
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01-26-2010, 04:48 PM
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#2 |
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Senior Member
Join Date: Nov 2009
Location: San Diego, CA
Posts: 778
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I raised $4000 for the CCFA last year in my marathon run and have been an annual donor for about 15 years. It is a great organization and they offer a lot of great support programs and events.
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http://www.facebook.com/people/Chris-Auger/652606298 Diagnosed in 1996 Currently on: Humira- 1 shot every other week Methotrexate- 1 shot a week Prednisone 5 MG/day Past Treatment: Remicade Asacol/Lialda 6 MP Prednisone Cipro/Flagyl |
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01-26-2010, 05:19 PM
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#3 |
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Punctuation Impaired
Join Date: Aug 2009
Posts: 5,945
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http://www.crohnsforum.com/showthrea...ht=legislation
There is a link in this thread from CCFA that allows you to contact your representative about legislation for IBD. It is very easy to shoot an email to your legislators, and give a personal testimony as to how Crohn's has impacted your life. Thank you to everyone who has raised money for CCFA. It is a great source of advocacy for us.
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~*~*~*~*~*~*~*~*~* Instead of hiding in the darkness of a grey cloud, why not look for the silver lining? 
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01-26-2010, 05:57 PM
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#4 | |
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Your Story Forum Monitor
Join Date: Oct 2009
Location: North Western, ONT
Posts: 3,604
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Quote:
That is amazing!!!! Good for you!  If anyone is Canadian we have the CCFC, join it, or go on www.ccfc.ca Has lots of information and fund raisers in your area across Canada.
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Formerly: Pen Symptoms of Crohn's 35 years DX in 1993 2 resections, 1993 & 2003 Been on too many drugs to list. Methotrexate- didn't work. Quit June 2010 Nexium.& odd Flagyl, VSL#3 900 Billion probiotic bacteria & Pentasa, 3000mg daily ...winging it now. Last edited by Jettalady; 01-26-2010 at 06:04 PM. |
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01-26-2010, 05:58 PM
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#5 |
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Senior Member
Join Date: Nov 2009
Posts: 360
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Ditto thanks to all who have helped raised money. Hobo, you ran while you were in a flare?! Unbelievable! I have to stop feeling sorry myself and wallowing in my new diagnosis...All of you on this site are unbelievable. Especially, the ones that are young & were young at diagnosis! Unbelievable. I still can't believe that they don't have something that works better on these Auto Immune problems!!! Ugghhh!!!! Sue
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01-26-2010, 06:18 PM
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#6 |
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Senior Member
Join Date: Nov 2009
Location: San Diego, CA
Posts: 778
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Yes. I did the Las Vegas Rock and Roll marathon in December in full flare. I just popped a percocet before the race and toughed it out. I had trained though four days a week prior. Was not easy, but it was something I had to do for myself.
Plus I am a bit of a loner, so it was an attempt on my part to get out of my cave and meet people and make friends. Next up is a softball league starting next month. =p
__________________
http://www.facebook.com/people/Chris-Auger/652606298 Diagnosed in 1996 Currently on: Humira- 1 shot every other week Methotrexate- 1 shot a week Prednisone 5 MG/day Past Treatment: Remicade Asacol/Lialda 6 MP Prednisone Cipro/Flagyl |
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