Coping with Chronic Illness - Crohns Disease Forum - Support group and forum for IBD, Ulcerative Colitis and Crohn's Disease

uab grad student · 01-27-2010, 04:29 AM

I recently read to really great books I checked out at my library:

The Anatomy of Hope: How People Prevail in the Face of Illness
by Jerome Groopman

Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties
by Laurie Edwards

Although neither of these books are about Crohn's specifically, they cover the psychological effects of having a chronic illness, and I particularly liked the book by Laurie Edwards b/c she talks about having a chronic illness in early adulthood. Many people think of chronic illness occuring later in life and it isn't uncommon to hear someone say, "oh you're young, you should be fine" or "you can't be that sick you are so young". Young professionals have additional obstacles that are only made harder by having a disease like Crohn's and she discusses ways to cope with having chronic illness specifically when you are young. I had never encountered a book like this one, and found it to be very uplifting.

imisspopcorn · 01-27-2010, 04:32 AM

Thanks for sharing UAB...That will be a great recommendation for all newly diagnosed Crohnies.

MsSickandTired · 02-09-2010, 03:23 AM

Thanks for the recommendations; I looked these up at my library today and will be reading them soon!!

uab grad student · 02-09-2010, 04:00 PM

Great Sharon! Let me know how you like them. ;-)

MsSickandTired · 03-03-2010, 09:53 PM

Ashlee, I just finished reading "Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties" by Laurie Edwards.

Thank you so much for recommending this book, I found it to be very helpful. Now I am going to read "The Anatomy of Hope". Thanks again.

uab grad student · 03-09-2010, 03:09 AM

I'm glad you liked it... I'm still getting used to having this disease, so they encouraged me quite a bit. :-)

01-27-2010, 04:29 AM	#1
uab grad student Senior Member Join Date: Dec 2009 Location: Birmingham, AL Posts: 269	Coping with Chronic Illness I recently read to really great books I checked out at my library: The Anatomy of Hope: How People Prevail in the Face of Illness by Jerome Groopman Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties by Laurie Edwards Although neither of these books are about Crohn's specifically, they cover the psychological effects of having a chronic illness, and I particularly liked the book by Laurie Edwards b/c she talks about having a chronic illness in early adulthood. Many people think of chronic illness occuring later in life and it isn't uncommon to hear someone say, "oh you're young, you should be fine" or "you can't be that sick you are so young". Young professionals have additional obstacles that are only made harder by having a disease like Crohn's and she discusses ways to cope with having chronic illness specifically when you are young. I had never encountered a book like this one, and found it to be very uplifting. __________________ Ashlee December 2009--Diagnosed with Crohn's Current Crohn's meds: entocort, remicade, 6-MP Other stuff: pulmicort, pro-air, celexa Current supplements: ferrous sulfate, folic acid, Vitamin B12, Calcium, Vitamin D, women's multi-vitamin, Florastor probiotic

01-27-2010, 04:32 AM	#2
imisspopcorn Punctuation Impaired Join Date: Aug 2009 Posts: 5,945	Thanks for sharing UAB...That will be a great recommendation for all newly diagnosed Crohnies. __________________ ~~~~~~~~~* Instead of hiding in the darkness of a grey cloud, why not look for the silver lining?

02-09-2010, 03:23 AM	#3
MsSickandTired Senior Member Join Date: Mar 2009 Location: Winnipeg, Manitoba, Canada Posts: 590	Thanks for the recommendations; I looked these up at my library today and will be reading them soon!! __________________ -Sharon _______________________________ Diagnosis: Crohn's Disease (May 2007) Meds: Humira (40mg/every 2 weeks), Methotrexate (15mg/once a week), Calcium (1,200 units), Vitamin D (1,000 units), Folic Acid (1mg)... NO MORE PRED, yippeeeee!

02-09-2010, 04:00 PM	#4
uab grad student Senior Member Join Date: Dec 2009 Location: Birmingham, AL Posts: 269	Great Sharon! Let me know how you like them. ;-) __________________ Ashlee December 2009--Diagnosed with Crohn's Current Crohn's meds: entocort, remicade, 6-MP Other stuff: pulmicort, pro-air, celexa Current supplements: ferrous sulfate, folic acid, Vitamin B12, Calcium, Vitamin D, women's multi-vitamin, Florastor probiotic

03-03-2010, 09:53 PM	#5
MsSickandTired Senior Member Join Date: Mar 2009 Location: Winnipeg, Manitoba, Canada Posts: 590	Ashlee, I just finished reading "Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties" by Laurie Edwards. Thank you so much for recommending this book, I found it to be very helpful. Now I am going to read "The Anatomy of Hope". Thanks again. __________________ -Sharon _______________________________ Diagnosis: Crohn's Disease (May 2007) Meds: Humira (40mg/every 2 weeks), Methotrexate (15mg/once a week), Calcium (1,200 units), Vitamin D (1,000 units), Folic Acid (1mg)... NO MORE PRED, yippeeeee!

03-09-2010, 03:09 AM	#6
uab grad student Senior Member Join Date: Dec 2009 Location: Birmingham, AL Posts: 269	I'm glad you liked it... I'm still getting used to having this disease, so they encouraged me quite a bit. :-) __________________ Ashlee December 2009--Diagnosed with Crohn's Current Crohn's meds: entocort, remicade, 6-MP Other stuff: pulmicort, pro-air, celexa Current supplements: ferrous sulfate, folic acid, Vitamin B12, Calcium, Vitamin D, women's multi-vitamin, Florastor probiotic