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02-05-2010, 04:00 PM   #61
Fog Ducker
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Thats good news Nessa!
Keep us posted on what the GI says.
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Dx UC: 2006. Dx CD: 2008
Current Meds: Remecade 800mg evry 6 weeks, Methatrexate 7.5mg once a week oraly, Asacol 800mg 3 times a day.
02-05-2010, 07:52 PM   #62
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Yay Nessa for him feeling better! That abscess must have been so very painful for the wee mite!

You seem to be very on to it with this so he is lucky. I do hope it's not IBD but definately get to a GI ASAP!

Stay well Aiden!!!!
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02-05-2010, 09:04 PM   #63
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Nessa...You have a great spirit! He is a lucky kid to have a positive Mom. It sounds like he is on the mend...You probably need a hug! Kids are amazing. Good spirited & adjusted kids don't happen by accident. Sounds like he is handeling it well too! Peace, Sue
02-07-2010, 08:17 AM   #64
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Ugh - I absolutely hated reading this thread. I'm so glad that he is feeling a bit better though.
Hope it continues! Thinking about your little guy.
02-09-2010, 12:27 PM   #65
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Whats the latest? How's he healing up? All going ok?

Got the appt for the specialist yet???

Am I being way too pushy here?? It's the mum in me!

HUGS

Lishyloo
02-09-2010, 12:34 PM   #66
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The abscess seems to be REALLY draining itself now! Still taking his antibiotics as prescribed and the little bunny is feeling good again, yay! No appointment with the specialist just yet. I haven't checked with his insurance yet to see if we need a referral, but I'll be checking into it more in depth within the next several days/week.
02-09-2010, 12:40 PM   #67
farm
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Nessa, this entire thread brought tears to my eyes. My greatest fear is passing this monster on to my son.

I over-react and have put him through CT scans, X-rays, etc for stomach problems.

I'm glad he's feeling better. Keep us updated.
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02-09-2010, 12:43 PM   #68
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oh gawd, I forgot you have to faff about with the whole insurance thing.

Seems totally alien and outrageous to me that you have to jump through what sounds to me like administrative hurdles to get treatment... and you get bills???

I think it would be the ultimate kick in the ass to have to stump up cash for people interfering with my bum hole!

Back to the point though.... So glad he is doing well - isn't it amazing how quickly kids bounce back eh Nessa!

Of course he is receiving the best possible care from his brill mum!

Well hopefully the insurance stuff will be ok and you can just get the whole picture (hopefully a totally blank canvas with nothing to worry about).

HUGS to both of you!

Lishyloo
02-09-2010, 12:48 PM   #69
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Thanks a lot, guys! Yes, Lishy he is definitely bouncing back. I think his little classmates missed him, too LOL.

Ugh, I know what you mean, Farm. I get this ugly knot feeling in my stomach every time Aidan bolts up in the middle of dinner to tear up the bathroom. I've tried telling myself that it's just a phase and it'll pass, but I know otherwise. =/
02-09-2010, 01:01 PM   #70
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Hang in there Nessa....I have one who can't sit through a meal either.
02-10-2010, 11:41 AM   #71
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Nessa..I would get that knot in my stomach too. Part of being a good (paranoid) mom. (or dad) We have a right to it...from what we have all been through!! I don't always post, but I read...give him hugs from us...and get a hug from him from us. I say it all the time...throw what you've got at me...but, please,please leave my kids alone. Peace, Sue
02-11-2010, 02:43 AM   #72
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Hey Nessa, I'm glad you are getting this sorted now. When I was first dx'd at 14 I had been so constipated I didn't go for a month and a half. I was in utter agony and ended up having three or more fissures all at the same time. I kept telling my parents I was fine but they eventually took me to the doc against my will and I was dx'd. I think the reason I have so much scarring in my anal canal is because of my stubborness not to go to a doctor. Bless you and your child. I'll be praying for ya'll
02-11-2010, 07:33 AM   #73
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He was messing his pants a bit too right V? Did that go away when they treated the abscess? I was hoping that the pain and whatever was scaring him into not using the potty when he needed to, and that was the reason for that.
Did they mention what the abscess might be from? Can you just get those for no underlying reason?
Hope he keeps feeling so much better, and this is just a one time thing.
02-11-2010, 08:11 AM   #74
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Thanks again to everyone for the good thoughts and prayers

Jill, the messing of his pants seems to happen really infrequently. Now granted, he wears darker boxer shorts (because tighty whiteys are for babies, duh!), so it's sort of hard to tell how badly he's messing them up. He hasn't had any accidents since we've been treating the abscess, but he still seems to have non-solid poops from what I can tell -- I think a majority of his bm's are happening at school.

As for the abscess, I googled "perianal abscess in children" and all I got back was Crohns related stuff, but in adults it can be caused by IBD, pregnancy, low immune system such as HIV, etc. The doctor really didn't shed much insight as to what she thinks might've caused it though. =/
02-11-2010, 08:13 AM   #75
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Geez Nessa, I just caught up on this thread! I'm sooo glad he is feeling better. Please please try and get him in to see a GI. My Mom was telling my husband about something exactly like that that she had in her twenties - she ended up having to have it drained. He raised his eye brow and said typically those only show up in people with IBD or people who have diabetes whose immune systems don't work correctly. I'm not trying to scare you (I mean, could you be any more prone to thinking this is CD right now?) - I just hope you can get him in to a really good pediatric GI and soon to rule things out. (((hugs))) for you both!!
02-11-2010, 08:25 AM   #76
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See Shantel, that's what I was thinking, too. I found it really odd that the only thing abscess/children related that came up in google was specifically IBD. All these medical studies plastered online everywhere talking about how they monitored x amount of children with Crohns and x amount developed perianal abscesses/fissures, etc. They all say the same thing: a perianal abscess is usually a secondary symptom of something larger.

At this point, I don't think it's a complete fluke he ended up with this in combination with the other symptoms, kwim?
02-11-2010, 08:31 AM   #77
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No honey - I would have to agree with you there - it sounds too Crohnsie to me :O( I'm sorry - I wish we could make something up that would fit the situation better, but I can't think of any. IMO he needs a complete work up with your history and sooner rather than later. I'm sad that he is having the abscess - I truly hope it isn't from a fistula - but what the heck else?? Poor baby, I hope he feels better soon!!
02-11-2010, 10:19 AM   #78
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Hey Nessa, Shantel - you have voiced exactly what I have been thinking. It's just too rare to get something like this without an underlying IBD.

What news on the insurance stuff?

Where I'm coming from is at least if it can be diagnosed SOON (compared to most people on this forum), you guys can get on with dealing with it and putting in place what you need to ensure he has a great life in spite of it.

Sounds stupid - but thank god he has you as a mum - you already know - there is no confusion, no misunderstanding - he has someone who will always understand.

I say this becuase it is only since I got sick last year that I actually realise what it must have been like for Paddy. All the times I dragged him out when he said his bum wasnt so good, and I said dont worry it will be fine - may be it will, but now I know myself what that anxiety feels like - he doesnt go out now if he doesnt feel right. Recently we BOTH had spectacular simultaneous sharting incidents waiting for a toilet at the hospital - we looked at each other and we both just knew.... strange though - it was a moment of great camararderie (how do you spell that word?) - you know - we had a deep understanding... the yeh I just pooped my pants too and I know how you feel moment deep in our eyes! Ahh the joy of bonding with your son over poop!

Im still praying for you guys - of course I want the answer to be that this is something completely random, but if not, lets get cracking on making the best of it.

Lishyloo xxx
02-11-2010, 10:35 AM   #79
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Yeah -there is still a chance it is just something rather than THAT - I'm *really* hoping for the random somethingness.....but better to know than wonder.
02-11-2010, 11:06 AM   #80
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He is going to need a referral after all.

I'm having one hell of a bad day and the stupid, little snarky insurance lady just got an ear full.

Time to get a second opinion, argh...
02-11-2010, 11:07 AM   #81
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So, you don't think your GP would give you a referral - even with your history and all?? Grrrrrr......
02-11-2010, 11:10 AM   #82
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Peaches said:
So, you don't think your GP would give you a referral - even with your history and all?? Grrrrrr......
I'm going to call his regular GP that he's been seeing (not the lady he saw for this appointment) and see if he can send a referral instead. I don't think it should be a problem... I hope.
02-11-2010, 11:11 AM   #83
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I wish we could ban referrals. Especially when it comes to kids.
02-11-2010, 11:17 AM   #84
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Isn't that the truth.
02-11-2010, 11:37 AM   #85
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Bunch of numpties. Outrageous that you have to jump through hoops like this.
02-11-2010, 11:45 AM   #86
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Today is just one of those days. I think I'm going to lock myself in the bathroom, cry like a baby, get it all out of my system and carry on with my day. I'm frustrated to the max from 3045803 things and this is just icing on the cake.
02-11-2010, 11:54 AM   #87
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**HUGS** Nessa, i'm so sorry you're going through this.
02-11-2010, 01:51 PM   #88
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HUGS, I hope he can get in to see a specialist soon. I have had a bunch of abscesses and they are never fun.
02-11-2010, 02:54 PM   #89
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(((hugs))))
02-11-2010, 04:22 PM   #90
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(((((HUGS)))))) Nessa. I hope you find answers for your baby soon, it must be so painful for you, especially with everything else going on! You are a strong woman though and he is lucky he has you to be his advocate
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