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02-11-2010, 10:58 PM   #1
crohnie2
 
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Prednisone

Started taking prednisone....does this medication make everyone gain weight? If so, how soon will you notice weight gain? I started taking it a few days ago and am currently taking 40 mg/day. What other side effects do you have?
02-11-2010, 11:08 PM   #2
Nyx
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I gained weight, but I needed to. I had lost 50lbs in about 2 months so really needed it back (I'm 5'10" and weighed 126lbs at that time....scrawny!). I also got 'moon face', facial hair, and was manic (some people go the other way and get depressed). I found the side effects to vary in their appearance...the weight gain and mania came first, the facial hair and moon face came after about 2 months on the drug.

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02-11-2010, 11:12 PM   #3
crohnie2
 
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I've lost a little weight from Crohn's, but not that much (maybe 5 lbs). I'm only supposed to take it for a month. I am completely exhausted, but at night I somehow feel like I have all this extra energy and then cannot sleep. Then I wake up the next morning and am exhausted.... and the cycle continues. Can't wait to be done taking this!
02-11-2010, 11:19 PM   #4
imisspopcorn
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The medicine made me gain weight because it caused me to have food obsession.....That's the only way I can describe knowing where every last morsel of food was in the house.....I gained weight because I stuffed my face. It was directly related to the Prednisone. I wouldn't have gained the weight If I hadn't over eaten.....I also cleaned every nook and cranny three times over<<<<I really miss that part!
02-11-2010, 11:19 PM   #5
Nyx
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Oh yeah...I had insomnia too...My doctor recommended taking the prednisone as early in the day as possible. I tried taking it at about 7am and I managed to get to sleep most nights by midnight or so and got about 4 hours sleep. That's one of the more irritating side effects....
02-11-2010, 11:33 PM   #6
pain in the butt
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I started on Oct. and so far gain weight with I don't need., insomnia, a weird neck /between shoulderblades kinda pain like i need to hunch over hard to explain,depressed,fat face,very moody , heart feels like its racing, and harder to stay focused,and my eyes are more blurry. Gook Luck ! Hopefully you won't get any of this.
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Currently on- prednisone tapering - Bentyl-mesalamine enamas-Calcium-lorazepam-pristic-vicodin as needed-imodium as need -multi vit.-imitrex as needed

Past med. cholestyramine-Entocort-Asacol -flagal - cipro-vancomiacin-aricept-and awhole lot more
02-11-2010, 11:34 PM   #7
shazamataz
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Yup, the insomnia is pretty bad! But you should find you get lots done while on the high dose!

As IMP said, it gives you a HUGE appetite, but I expect you will only gain weight if you eat far too much! I found I was obsessed with food on the higher doses and put on some much needed weight, but this reduced over time.

The mania/wired feeling can be a bit scary so keep an eye on how you are feeling. It is normal to be quite jittery and anxious. When you taper down you can get depressed so keep an eye on this as well. Good luck!
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02-11-2010, 11:35 PM   #8
shazamataz
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Ooh, and I got the hairy face but not the moon face!
02-12-2010, 01:58 AM   #9
MINI Cooper
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I was one of the few that slept like a baby on Pred lol
Also one of the few that did NOT gain weight. I NEEDED to gain
weight, as I was 74 pounds at the time, but just didn't happen for me.
The drug itself did nothing good for me whatesoever.

But I got moon face a month or so into the Pred
and hair in weird places.
and horrific joint pain when weaning off IV Pred.
and Acne that last almost a year even after I was done with Pred
that nothing would get rid of.
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02-12-2010, 02:58 AM   #10
Nic
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I was also one of the lucky few that slept really well while on Pred. I did gain some much needed weight, but lost it all after I tapered off No moon face or random hair, although I did notice that I had to shave much more often!! I too had the joint pain, and it still continues since being off of it. The Acne was the worst part for me and I struggled with it for awhile after tapering off as well. I was put on Entocort after the Pred and it actually had a worse effect on me than the Pred did!
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Previous Meds: Imuran, Azathioprene, Prednisone, Entocort, Pentasa

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02-12-2010, 03:07 AM   #11
shazamataz
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Yup, I am down to a really low dose now but have been tapering the past 6 months. My skin was better than it had ever been for a while but now I'm spotty like a teenager and combined with the facial hair I feel super attractive
02-12-2010, 04:01 AM   #12
Samantha
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I've been on pred for 1 and a half months now and really don't need to gain weight!! I think I have picked up a bit of weight around my middle section, but not too badly. I am manic however and have terrible insomnia. Another side effect for me is terrible indigestion, oh and I deffo think I'm developing a moon face too. How wonderful this drug makes us look and feel
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02-12-2010, 07:58 AM   #13
Misty-Eyed
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Moon face, fat stomach and I used to get bad hot flushes on my cheeks in the evenings.

Oooh and food cravings for everything that was never satisfied.

On the plus side, I went back to feeling completely normal and full of energy again, on full dose, anyway.
02-12-2010, 08:05 AM   #14
Rob
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Predniscone = sleepless nights, weight gain, moon face and for me depression

not a fun drug but it does hav it's benefits of making you better
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Now on Vedolizumab MLN0002 - woohoo!! Hope this works
--------------------------------------------------------------
200mg immuran daily
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NO MORE PRED YAHOO!!!
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Tried remicade and didn't work
02-12-2010, 12:30 PM   #15
Peaches
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I'm a bit like Lishy in that I didn't really gain weight until the very end of my tapers usually for some reason. And many times I wouldn't gain any weight at all. It is about NOT over eating. The most hungry it ever made me was the first time I was on it and I really needed to gain weight because I was almost down to 100 pounds. But other tapers -not too bad really. When you are feeling hungry and you know you shouldn't be - try to drink water instead (I know - RIGHT - tell you body that LOL!!). I do get hyper and have insomnia on it. But I *try* to use that to my advantage when I can.
02-12-2010, 08:23 PM   #16
Astra
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Hi Crohnie2!
Yup its a classy drug alright!
But I am soooooooooooooooo well! No pain wotsoeva!
Start tapering off next week, been on 40mg for 4 weeks, so on for another 6 weeks then see what consultant wants to do next, he's suggested Infliximab.
I needed to gain some weight, had lost 2 stone since Aug 09, but my cravings are reducing now, but got the belly, the chipmunk look! Hey it's cool to look like Alvin!
Insomnia is the worse, but I do lots of jobs when the kids are in bed and sleep in the mornings when theyve gone to school.
Besta luck
Joan xx
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02-15-2010, 03:21 PM   #17
Rob
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Geez I forgot about the pimples/achne ya get with this

woke this mornin too look like I had chicken pox or somethin
ugly red blotches everywhere
grrr
jus got rid the last lot
guess I better see dr about gettin rid of them again with the antibiotics
02-15-2010, 04:10 PM   #18
shazamataz
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Yup,, I've gotten them really bad recently and I HATE it!!! tea tree stuff seems to help a little bit.
02-15-2010, 04:29 PM   #19
Rob
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Yea sux about some the side effects of this drug
spec seein the good it can do

guess I jus gotta live with it lol
02-15-2010, 06:57 PM   #20
RAW
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shazamataz said:
Ooh, and I got the hairy face but not the moon face!

I had a meltdown when the hairy face started. I have been doing electrolysis for a year now.
02-15-2010, 07:19 PM   #21
gibby
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Ah....back on prednisolone after managing to avoid it for the past 3 years or so, been mostly managed with predfoam enemas or supps, and since the azathioprine started around 8 years ago it reduced my prednisolone courses ALOT, but now i am bak on them, after failed enemas and a prednisolone blast...back on a month course to start then will taper down after i see the gastro which is another HUGE story...

Just waiting for the symptoms to creep back in, the moon face, my little bitty moustache...not cool for a lassie such as myself with pale skin...i would get absouloutley exhasuted come 3pm, would have myself a wee avo nap....not so good when i am working a 12hour shift in a busy ward but cant be helped....ooh and the few times i have been on prednisolone since being on azathioprine i notice my hair thins and falls out...blocked shower drains....my hair was doing so well too...started to fall out already and only had a 5 day blast of 40mg last week. started my long course today....so more to come..

never was conscious of any mood swings or manice episodes, but to be fair maybe i didnt realise! high pressure job where everyone can have mood swings so maybes i just fit in!

dreading the weight gain and fat face tho....was just losing the chirstmas pounds with my 4 week flare up diet...
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Lovely Meds...
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*Asacol PR when flaring +/- prednisolone

02-15-2010, 08:49 PM   #22
ameslouise
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I was wondering where my new case of zits was coming from! I didn't realize this and the hiar loss were pred side effects!

I also got hairy face (and knuckles - pretty, right?) and RAGE at higher doses.

Luckily no weight gain, but I also became vegan and gave up all processed foods so I think that combatted the weight gain.

And I sleep like a baby!

Good luck to you - Amy
02-19-2010, 01:20 AM   #23
Mountaingem
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Yeah, I've got pretty much all of that-pred turns me into an angry, furry, moon- and acne-faced eating machine...lol!
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02-19-2010, 04:02 AM   #24
Rob
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Well I spoke too my specialist today

I've been on 50mg a day and I'm about too start a new drug trial vedolizumab but I need too get down too 30mg - we thougt was 40mg but turns out it's actually a max of 30mg
prob is I gotta be on a steady dose of 30mg max for two weeks before I can start the trial
so I hav to taper prob is If I do I won't make the trial on time
so starting tomorrow morning I'm down too 30mg from 50mg
hopefully I don't get any weird side effect withdrawls
02-19-2010, 04:43 PM   #25
Astra
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Hi Rob
How you doing?
I've started to taper from 40mg to 35mg this week, feel quite jittery, wired and nauseous, but still feel better than I've done for years! No pain or D
Besta luck with your taper
Joan xx
02-21-2010, 09:13 PM   #26
crohnie2
 
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Thanks everyone for the responses. It is SUCH a hard drug for me to tolerate--I now have a terrible cold and can barely breathe.....on top of sleepless nights, night sweats, extreme irritability and overall exhaustion. I guess at least I will want to eat less now that I cannot taste from my cold!
02-21-2010, 09:24 PM   #27
Jennifer
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Stuff tastes terrible when it accidently hits your tongue. :P

I never got facial hair from it. O.o I did retain water and got stretch marks on my legs and hips and also got what people seem to be calling "moon face" but I hate the term.

I was very irritable and became depressed a lot but I think that was mainly because I was in high school and elementary school when I was on it and people would make fun.
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Diagnosis: Crohn's in 1991 at age 9
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Meds for CD: 6MP 50mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel, Tylenol 3, Omeprazole 20mg 2/day, Klonopin 1mg 2/day (anxiety), Restoril 15mg (insomnia), Claritin 20mg
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 17 years and counting.
02-21-2010, 09:34 PM   #28
Rob
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Wel dropping from 50-30 pretty much over nite has a few downers

i've noticed alot more frequancy today compared too the other
an man the pimples they seem worse now on lower dose than before??!!
No tank tops/ singlet tops for me til they dissapear from
my shoulders lol

I've had less energy too - allthougj I havnt had much energy for months
could be due too the increaesed d or could jus be in my head I'll see if things settle in next few days
02-22-2010, 01:48 AM   #29
C-Rohns
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My experiences with prednisone have been both good and bad. Good because it seems to work!! Bad because it makes me irritable, I don't sleep well, my tummy swells so big some days I look at least 3 months prego, my face puffed a little (not as noticable to others as it is to me) and my face breaks out. But I guess it could be a lot worse and im am thankful that it helps with my CD symptoms!
02-22-2010, 01:56 AM   #30
Mountaingem
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C-Rohns said:
My experiences with prednisone have been both good and bad. Good because it seems to work!! Bad because it makes me irritable, I don't sleep well, my tummy swells so big some days I look at least 3 months prego, my face puffed a little (not as noticable to others as it is to me) and my face breaks out. But I guess it could be a lot worse and im am thankful that it helps with my CD symptoms!
I was like that too at first, but after 10+ years of on again/off again with pred, I get way more side effects alot faster. The worst I got was hairline fractures in my hip/pelvic bones from osteoporosis, very painful. So for anyone who takes pred or Entocort with any kind of regularity I always recommend DEXA scans. It can find the osteoporosis early and the docs can get you on meds to reverse it.
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