Drink Water - Crohns Disease Forum - Support group and forum for IBD, Ulcerative Colitis and Crohn's Disease

fenway1971 · 02-17-2010, 01:50 PM

Just got back from GI. Endoscopy was normal...no more GERD. Colonoscopy looked great too...inflammation is now very mild (down from severe 18 mos ago). Better yet, Vit D back to normal and all other blood is good. What a journey to get here. Still on 6-mp indefinitely.

I still feel fatigued and doc says it's dehydration. Explains vision issues recently and inability to get out of bed in mornings.

Her advice...drink two large sports bottles of water a day, up to 2 liters total. That's a ton more than I usually drink. More if/when I'm flaring. More if I consume more than two glasses of caffeine or alcohol.

Thought I'd pass this good advice along.

Peaches · 02-17-2010, 01:55 PM

Thanks for the info Fen. It makes sense. I have recently given up all carbonated drinks (sugar free sodas basically) and started only drinking water. While I feel that this is better for my body - I do catch myself not drinking as much - because it isn't sweet. Sweet is the devil, I swear!!! I'll have to buckle down and try and drink more.

So glad everything looks great for you - I know you are h-a-p-py!!!

Lishyloo · 02-17-2010, 02:55 PM

Great advice for all of us Fenway... I drink possibly way too much 4-6 litres per day... but I am sure it cleanses...

I should cut the carbonated drinks though - I'm a big fan of diet cola - at least an additional 2 litres per day...

imisspopcorn · 02-17-2010, 02:58 PM

Let me know if it improves the fatigue....I'll try anything

Peaches · 02-17-2010, 03:02 PM

:Pop scurries off to insert IV line and hangs 4 liters of fluid:

:Tells hubby "but honey - I HAVE to sit at the computer (on the forum) all day long - it's the only place I have to hang my IV!!":

fenway1971 · 02-17-2010, 03:12 PM

Quote:

Originally Posted by Lishyloo

Great advice for all of us Fenway... I drink possibly way too much 4-6 litres per day... but I am sure it cleanses...

I should cut the carbonated drinks though - I'm a big fan of diet cola - at least an additional 2 litres per day...

Lishy,
The diet cola (if it's caffeinated) may actually be dehydrating you and offsetting the extra water you drink. Coupled with diarrhea and sharting, you could be less hydrated than you think.

Pop,
I'll report back in a week.

Lishyloo · 02-17-2010, 03:15 PM

yeh.. you are most likely right... my pee is the same colour as my poop in the mornings... just thought I'd share... damn I'm classy!

Peaches · 02-17-2010, 03:21 PM

OMG Lishy really??? Girl - we are gonna be on you now. You KNOW that isn't healthy!! Unless you are pooping clear or slightly yellow watery poop (as in what your pee should look like!)- you need a rework on your drinking habits or your kidneys are gonna jump ship!

imisspopcorn · 02-17-2010, 03:23 PM

I gave Batfen a mission...

fenway1971 · 02-17-2010, 03:27 PM

Whoa, Lishy! That ain't good. Cut out the soda!! But do it slowly...caffeine withdrawal headaches suck.

Pop - I like missions!

Lishyloo · 02-17-2010, 03:27 PM

ok - I promise...

I think part of the problem is the night sweats... so during the day it's nice and clear... then in the night I am waking up completely drenched - I never knew people could sweat so much! And then the morning pee is.. well.. brown... once I start drinking it clears again...

I am such a sexy girl! Poop, Sweat, Pee.... so lucky I'm already married becuase I think I'd seriously struggle to get a date the way I am now!

imisspopcorn · 02-17-2010, 03:28 PM

I'd date ya Lishy....you are too funny, I couldn't resist all your charms.

Jennjenn · 02-17-2010, 03:32 PM

I am happy for you Fen that the tests came back looking good!

Sue-2009 · 02-17-2010, 04:29 PM

LOL you guys...You know, hydration is a huge issue with us. Because of the Pouch, I have to always always hydrate. I get one bad bout of "D" and I'm in the hospital for dehydration. G2 is a good source, its low in sugar--although the acid might bother some. And, there are some other ones out there--but, you drink these kinds of drinks for athletes and such...and boom, you'll feel better. Sue

pain in the butt · 02-17-2010, 11:34 PM

thanks for advice . and the laughs, glad things are better.

Rob · 02-17-2010, 11:42 PM

I've found drinkin hydralite etc sometimes helps
has a diff taste too plain water to so breaks up the monotony

kenny · 02-17-2010, 11:43 PM

I had everyone gang up on me about the water thing when I was getting over the surgery. The homecare nurse, My GF, her Mom, My mom and anyone else you want to throw in there. Every time I start to back off now, I begin to pay for it.

shazamataz · 02-18-2010, 12:20 AM

Good news on all the tests Fen!!!!

And good advice about the water. I KNOW I don't drink nearly enough, mostly because I end up peeing all the time. I wonder if you adjust over time if you keep drinking it and get used to the extra so don't pee so much?

I find drinking hot water when I feel like a hot drink helps a bit. Takes a bit of getting used to tho!!!

pb4 · 02-18-2010, 06:15 AM

Yes, good news, and I drink plenty of water daily, with all the pills I take it's hard not to LOL...it really does help, with everything.

Astra101 · 02-18-2010, 09:53 AM

and Pentasa makes you dehydrated too, it says so on the leaflet in the box of em

rygon · 02-18-2010, 10:35 AM

For hot drinks i have green or white tea (less caffine and tastes better i reckon than normal tea). Rooibos (red tea) is nice and caffine free.

I have no idea how much water i drink but its loads more than any of my mate i know

soupdragon69 · 02-18-2010, 11:04 AM

Fen great results!! Very pleased for you.

Yep water is the main thing we need. Currently with my elemental I am supposed to have 3litres elemental a day and then another 2-3 litres water on top with not eating!!

In general I manage a total of approx 4-5lts a day so not too bad I guess.

Trying to keep myself busy at the mo and distract my mind from the tummy rumbles due to no food. It will get better in a few days... just taking it one hour at a time at present.

My Butt Hurts · 02-18-2010, 12:04 PM

Quote:

Originally Posted by Astra101

and Pentasa makes you dehydrated too, it says so on the leaflet in the box of em

Wow - never heard of that and I've been on Pentasa for years. Eek.

Fen - glad you're hearing some good things. I'm sure you updated somewhere about your cough, but I don't recall if it's better.

If people are having trouble with straight water, maybe you could try unsweetened Kool-Aid powder with Stevia. It's not bad at all.

Peaches · 02-18-2010, 01:43 PM

Wow - Kool-Aid has come a long way - didn't realize they were using Stevia! Have to give that a try. Water can get pretty boring.

My Butt Hurts · 02-18-2010, 07:52 PM

No - I don't think they have that just yet. If you buy the unsweetened packets of Kool-Aid, most people add sugar. I used them with Stevia packets instead of adding sugar.

Peaches · 02-18-2010, 08:14 PM

Got it. Makes more sense - I was thinking Kool-aid had gotten progressive LOL!

imisspopcorn · 02-18-2010, 08:29 PM

I haven't tried Stevia yet....Splenda messes with my gut. Let me know how it works or if anyone else out there has had problems with it.

Peaches · 02-18-2010, 08:34 PM

Mmm, I *seem* to do ok with it - but I don't use a lot of it to begin with. I do ok with Splenda - but not with whatever that stuff is they put in the Sobe Life Waters - which is supposed to be more friendly to your gut - go figure!

Honestly - I'm trying to cut all the non-natural stuff out. Stevia is natural - so I will do that if I need to.

GoJohnnyGo · 02-18-2010, 08:41 PM

I've been drinking far less coffee. Some days I even do without. I'm drinking a bit more tea -- green and/or herbal teas like Yerba Mate.

I've never really been a soda person. Plain water works for me. Really top-notch tap water where I live.

02-17-2010, 01:50 PM	#1
fenway1971 Sports Crohnie Join Date: Aug 2008 Location: New York, NY Posts: 1,834	Drink Water Just got back from GI. Endoscopy was normal...no more GERD. Colonoscopy looked great too...inflammation is now very mild (down from severe 18 mos ago). Better yet, Vit D back to normal and all other blood is good. What a journey to get here. Still on 6-mp indefinitely. I still feel fatigued and doc says it's dehydration. Explains vision issues recently and inability to get out of bed in mornings. Her advice...drink two large sports bottles of water a day, up to 2 liters total. That's a ton more than I usually drink. More if/when I'm flaring. More if I consume more than two glasses of caffeine or alcohol. Thought I'd pass this good advice along. __________________ Fen Crohn's Colitis (2003-present) Kidney Stones (1998, 2003, 2008) Medication 6-MP (2009-present) Vitamins/Supplements Multivitamin, Vitamin D, Turmeric Super Powers I am Batman Last edited by fenway1971; 02-17-2010 at 01:53 PM.

02-17-2010, 02:55 PM	#3
Lishyloo Senior Member Join Date: Jul 2009 Location: Hertfordshire, UK Posts: 617	Great advice for all of us Fenway... I drink possibly way too much 4-6 litres per day... but I am sure it cleanses... I should cut the carbonated drinks though - I'm a big fan of diet cola - at least an additional 2 litres per day... __________________ Lishyloo x Pentasa turned out to not be a miracle bum cork, entocort was useless, azathioprine turned me into the vomit monster, mercaptopurine 100mg made my liver go toxic, now on Pred 30mg, Tramadol 100mg, waiting to start remicade and taking any digestive health supplements I can get my hands on! Waiting eagerly for surgery on 22nd March! Sharting is such sweet sorrow... Laughter is the best medicine!

02-17-2010, 03:15 PM	#7
Lishyloo Senior Member Join Date: Jul 2009 Location: Hertfordshire, UK Posts: 617	yeh.. you are most likely right... my pee is the same colour as my poop in the mornings... just thought I'd share... damn I'm classy! __________________ Lishyloo x Pentasa turned out to not be a miracle bum cork, entocort was useless, azathioprine turned me into the vomit monster, mercaptopurine 100mg made my liver go toxic, now on Pred 30mg, Tramadol 100mg, waiting to start remicade and taking any digestive health supplements I can get my hands on! Waiting eagerly for surgery on 22nd March! Sharting is such sweet sorrow... Laughter is the best medicine!

02-17-2010, 03:27 PM	#10
fenway1971 Sports Crohnie Join Date: Aug 2008 Location: New York, NY Posts: 1,834	Whoa, Lishy! That ain't good. Cut out the soda!! But do it slowly...caffeine withdrawal headaches suck. Pop - I like missions! __________________ Fen Crohn's Colitis (2003-present) Kidney Stones (1998, 2003, 2008) Medication 6-MP (2009-present) Vitamins/Supplements Multivitamin, Vitamin D, Turmeric Super Powers I am Batman

02-17-2010, 03:27 PM	#11
Lishyloo Senior Member Join Date: Jul 2009 Location: Hertfordshire, UK Posts: 617	ok - I promise... I think part of the problem is the night sweats... so during the day it's nice and clear... then in the night I am waking up completely drenched - I never knew people could sweat so much! And then the morning pee is.. well.. brown... once I start drinking it clears again... I am such a sexy girl! Poop, Sweat, Pee.... so lucky I'm already married becuase I think I'd seriously struggle to get a date the way I am now! __________________ Lishyloo x Pentasa turned out to not be a miracle bum cork, entocort was useless, azathioprine turned me into the vomit monster, mercaptopurine 100mg made my liver go toxic, now on Pred 30mg, Tramadol 100mg, waiting to start remicade and taking any digestive health supplements I can get my hands on! Waiting eagerly for surgery on 22nd March! Sharting is such sweet sorrow... Laughter is the best medicine!

02-17-2010, 01:55 PM	#2
Peaches Senior Member Join Date: Aug 2009 Location: North Carolina Posts: 2,994	Thanks for the info Fen. It makes sense. I have recently given up all carbonated drinks (sugar free sodas basically) and started only drinking water. While I feel that this is better for my body - I do catch myself not drinking as much - because it isn't sweet. Sweet is the devil, I swear!!! I'll have to buckle down and try and drink more. So glad everything looks great for you - I know you are h-a-p-py!!!

02-17-2010, 02:58 PM	#4
imisspopcorn Punctuation Impaired Join Date: Aug 2009 Posts: 5,945	Let me know if it improves the fatigue....I'll try anything

02-17-2010, 03:02 PM	#5
Peaches Senior Member Join Date: Aug 2009 Location: North Carolina Posts: 2,994	:Pop scurries off to insert IV line and hangs 4 liters of fluid: :Tells hubby "but honey - I HAVE to sit at the computer (on the forum) all day long - it's the only place I have to hang my IV!!":

02-17-2010, 03:21 PM	#8
Peaches Senior Member Join Date: Aug 2009 Location: North Carolina Posts: 2,994	OMG Lishy really??? Girl - we are gonna be on you now. You KNOW that isn't healthy!! Unless you are pooping clear or slightly yellow watery poop (as in what your pee should look like!)- you need a rework on your drinking habits or your kidneys are gonna jump ship!

02-17-2010, 03:23 PM	#9
imisspopcorn Punctuation Impaired Join Date: Aug 2009 Posts: 5,945	I gave Batfen a mission...

02-17-2010, 03:28 PM	#12
imisspopcorn Punctuation Impaired Join Date: Aug 2009 Posts: 5,945	I'd date ya Lishy....you are too funny, I couldn't resist all your charms.

02-17-2010, 03:32 PM	#13
Jennjenn Senior Member Join Date: Feb 2009 Location: N.Y. Posts: 580	I am happy for you Fen that the tests came back looking good!

02-17-2010, 04:29 PM	#14
Sue-2009 Senior Member Join Date: Nov 2009 Posts: 360	LOL you guys...You know, hydration is a huge issue with us. Because of the Pouch, I have to always always hydrate. I get one bad bout of "D" and I'm in the hospital for dehydration. G2 is a good source, its low in sugar--although the acid might bother some. And, there are some other ones out there--but, you drink these kinds of drinks for athletes and such...and boom, you'll feel better. Sue

02-17-2010, 11:34 PM	#15
pain in the butt Senior Member Join Date: Jan 2010 Posts: 227	thanks for advice . and the laughs, glad things are better. __________________ Diagnosed- Colitis ????2007 Currently on- prednisone tapering - Bentyl-mesalamine enamas-Calcium-lorazepam-pristic-vicodin as needed-imodium as need -multi vit.-imitrex as needed Past med. cholestyramine-Entocort-Asacol -flagal - cipro-vancomiacin-aricept-and awhole lot more

02-17-2010, 11:42 PM	#16
Rob Senior Member Join Date: Feb 2010 Location: Australia Posts: 1,172	I've found drinkin hydralite etc sometimes helps has a diff taste too plain water to so breaks up the monotony __________________ Now on Vedolizumab MLN0002 - woohoo!! Hope this works -------------------------------------------------------------- 200mg immuran daily 1500mg mesalazine salofalk daily 30mg predniscone daily - started my taper now down to 20mg woohoo!! Only 5 weeks of pred to go!!! Somac 40mg daily -------------------------------------------------------------- Tried remicade and didn't work

02-17-2010, 11:43 PM	#17
kenny Senior Member Join Date: Aug 2009 Location: Brockville Ontario Posts: 754	I had everyone gang up on me about the water thing when I was getting over the surgery. The homecare nurse, My GF, her Mom, My mom and anyone else you want to throw in there. Every time I start to back off now, I begin to pay for it. __________________ Rectum? Damn near Killed'em Diagnosed July of 2009 / Surgery Oct 2009 / 175mg Imuran since Jan 2010

02-18-2010, 12:20 AM	#18
shazamataz Senior Member Join Date: Aug 2009 Location: New Zealand, Dunedin Posts: 3,672	Good news on all the tests Fen!!!! And good advice about the water. I KNOW I don't drink nearly enough, mostly because I end up peeing all the time. I wonder if you adjust over time if you keep drinking it and get used to the extra so don't pee so much? I find drinking hot water when I feel like a hot drink helps a bit. Takes a bit of getting used to tho!!! __________________ Farting is FUN

02-18-2010, 06:15 AM	#19
pb4 Senior Member Join Date: Feb 2007 Location: CANADA Posts: 560	Yes, good news, and I drink plenty of water daily, with all the pills I take it's hard not to LOL...it really does help, with everything.

02-18-2010, 09:53 AM	#20
Astra101 Your Story Forum Monitor Join Date: Jan 2010 Location: St. Helens, Merseyside, UK Posts: 2,043	and Pentasa makes you dehydrated too, it says so on the leaflet in the box of em __________________ Joan Diagnosed 2005 (but symptoms for 15 years!) been on Azathioprine, Mercaptopurine, Budesonide Metronidozole, Bye Bye Prednisolone we're so over! Pentasa 2 (4 times a day) Multivitamins & Iron CalciChew + Vitamin D x2 Cod Liver Oil with Vitamin D http://www.facebook.com/#!/profile.p...4208290&ref=ts No-one should make you feel inferior without your consent!

02-18-2010, 10:35 AM	#21
rygon Senior Member Join Date: Jan 2010 Location: Grimsby Posts: 190	For hot drinks i have green or white tea (less caffine and tastes better i reckon than normal tea). Rooibos (red tea) is nice and caffine free. I have no idea how much water i drink but its loads more than any of my mate i know

02-18-2010, 11:04 AM	#22
soupdragon69 ele mental leprechaun Join Date: Dec 2006 Location: Leicestershire UK Posts: 1,356	Fen great results!! Very pleased for you. Yep water is the main thing we need. Currently with my elemental I am supposed to have 3litres elemental a day and then another 2-3 litres water on top with not eating!! In general I manage a total of approx 4-5lts a day so not too bad I guess. Trying to keep myself busy at the mo and distract my mind from the tummy rumbles due to no food. It will get better in a few days... just taking it one hour at a time at present. __________________ Jan IF YOU DON'T JUMP YOU WONT EVER LEARN TO FLY Brittle asthma 1996, Hypothyroidism 1998, Severe Crohns ileitis 2006 , Severe IBS 2007, Inflammatory/Rheumatoid Arthritis 2008, Sebhorreic Eczema and Folliculitis 1992, Roseca, steroid induced acne and Hidradenitis Suppurativa 2008, Multiple allergies and food intolerances diagnosed from 2003. Newly diagnosed fibromyalgia Dec 2009. Newly diagnosed calcific tendonitis Jan 2010.

02-18-2010, 01:43 PM	#24
Peaches Senior Member Join Date: Aug 2009 Location: North Carolina Posts: 2,994	Wow - Kool-Aid has come a long way - didn't realize they were using Stevia! Have to give that a try. Water can get pretty boring.

02-18-2010, 07:52 PM	#25
My Butt Hurts Squeals-a-lot! Join Date: Aug 2007 Location: Upstate New York Posts: 3,854	No - I don't think they have that just yet. If you buy the unsweetened packets of Kool-Aid, most people add sugar. I used them with Stevia packets instead of adding sugar.

02-18-2010, 08:14 PM	#26
Peaches Senior Member Join Date: Aug 2009 Location: North Carolina Posts: 2,994	Got it. Makes more sense - I was thinking Kool-aid had gotten progressive LOL!

02-18-2010, 08:29 PM	#27
imisspopcorn Punctuation Impaired Join Date: Aug 2009 Posts: 5,945	I haven't tried Stevia yet....Splenda messes with my gut. Let me know how it works or if anyone else out there has had problems with it.

02-18-2010, 08:34 PM	#28
Peaches Senior Member Join Date: Aug 2009 Location: North Carolina Posts: 2,994	Mmm, I seem to do ok with it - but I don't use a lot of it to begin with. I do ok with Splenda - but not with whatever that stuff is they put in the Sobe Life Waters - which is supposed to be more friendly to your gut - go figure! Honestly - I'm trying to cut all the non-natural stuff out. Stevia is natural - so I will do that if I need to.

02-18-2010, 08:41 PM	#29
GoJohnnyGo One Badass Dude Join Date: Aug 2008 Location: Canada Posts: 1,591	I've been drinking far less coffee. Some days I even do without. I'm drinking a bit more tea -- green and/or herbal teas like Yerba Mate. I've never really been a soda person. Plain water works for me. Really top-notch tap water where I live.