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Hello!

Hello!

I have Crohns diesase. I have suffered all of my life, but was only finally diagnosed in 2005.
When i was a child my parents were told 'your daughter has a migraine stomach and suffers with her nerves!' 'The pains in her joints are simply growing pains - she is tall for her age' 'don't allow her to eat ice cream - that is what is causing the upset tummy'......and so on.

In 2005 i was in and out of hospital and finally got a diagnosis. I could have kissed the consultant!!We had a long talk about treatment and meds, quality of life and the way forward.

Three years of steroids, antibiotics and Asathioprine, life became good.

I'd been in remission over a year, medication free - until last October. I was diagnosed with a tumour attached to a pelvic floor ligament, the size of an orange! It was benign (phew!)
BUT the op triggered the Crohns, not in the usual way like i had had it before - i wish i had taken shares in a loo roll company then!!!:poo: :poo:
Today i was informed by my Doc that the red painful area on my palm is my Crohns flaring, yes i've had tummy ache and a few mouth ulcers, i'm very tired with aching joints, but i thought that i was just a bit run down.
So now i'm waiting for an urgent appointment with a consultant at the hospital to get the treatment sorted out.

So that's my short story - not the worse case in the world, but in my world it's been pretty bad at times, and at the mo i'm feeling pretty yuk!

:sorry:
 
Welcome!!!

I've always been told that when I have a red painful area on my palm that it's viral. I get strange looks from doctors when I come in with weird rashes. They have no clue.
 

imisspopcorn

Punctuation Impaired
:welcome: Swift...I learn something new about this disease everyday...The palm thing is interesting. I am sorry you are feeling crappy. What meds are you on?
 
Welcome aboard swift

sorry too hear that ur not doin so wel ATM
but vent away anytime ya need we all understand

next time I hav a flare I'll hav check my palm
 
Welcome Swift,

i was a bit like you in the respect my parents had to fight and fight for me to get seen, started symptoms when i was 7, bloody diarrhea, poor diet, pain, and when i think about it had bad growing pains too. They got fobbed off with everything going, and plastered around for ages. they kept saying that i was far too young to get an IBD and its not an sensible diagnosis, til my mother finally lost it a year later and basically demanded if i didnt get transferred to Yorkhill ( the paeds hospital) for specialist investigation then she would go to the papers....1 colonoscopy and 4 weeks later i had a diagnosis...

...crazy how you have to fight so much sometimes....

i am so glad my mum is a hard woman with attitude...sometimes ;)

hope you get your treatment sorted out soon hun, and welcome to our lovely family!

:)
 
:welcome: Swift!!! I'm glad you have joined us. Hope things get turned around in the right direction for you again soon!
 
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