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Crohn's Disease Forum » Treatment » Remicade/Infliximab » Anyone take Remicade for joints?


02-20-2010, 11:58 PM   #1
Mountaingem
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Anyone take Remicade for joints?

My flare started with low bowel issues-ulceration, pain, low grade fevers, night sweats. I've been on prednisone. cortifoam, and Rowasa, in addition to Methotrexate 20mg and Pentasa.

Then the joint pain in my hips/hands/feet/knees started and it is terrible, even painkillers aren't working. I am miserable and so sad because I'm in constant pain and exhausted.

My Rheumatologist put me on Arava and has suggested a large dose of Remicade to break the flare, then tapering off of it and staying on Arava.

Has anyone done this? Thoughts please.
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Last edited by Mountaingem; 02-21-2010 at 02:09 PM.
02-21-2010, 08:55 PM   #2
can1991
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Hi MountainGem, I am not able to help with your question, but am able to sympathize with you. I have been experiencing joint pain for over a year. At my worst, I could not lay down to sleep. I hope you get some relief and answers soon.
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02-22-2010, 04:19 AM   #3
shazamataz
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Hi mountaingem - is this something you've had for a while or have had before? It's just that Pred can sometimes cause joint pain and it may reduce once you come off it?
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02-22-2010, 04:26 AM   #4
Rob
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I've never hears of it being used that way
but that doesn't mean it can't be

I thought remicade was iv only??
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Tried remicade and didn't work
02-22-2010, 01:30 PM   #5
Mountaingem
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I've been off oral pred for a month but I still use cortifoam, would that count? The pain seems to be getting worse, gonna call Rheumatologist today.
Rob, the dr. wants to give me one high-dose infusion of Remicade and then a few lower-dose infusions, to taper, so to speak.
Anyone else ever heard of that/tried it?
02-22-2010, 03:59 PM   #6
shazamataz
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Can't help Mountain, but I hope they get it sorted for you ASAP!
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