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Old 02-21-2010, 07:30 PM   #1
MaxLoaf
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Hi, my name's Max i'm 9.5 years old. I first had stomach aches at about September of 2008. Then, by christmas I started having really bad pains in my butt. My dad took me to the doctor and they found out I had a fistula.Then, the doctor took blood and ran other tests and found out I had crohns disease.since then, I have been having seviere stomach aches and have been on many meds including pentasa, 6mp, prednisone as well as multi vitimin,iron, and fish oil pills. Lately, I have been feeling better,my fistula cleared up and i have little pains in my stomach here and there.
I really enjoy reading all of your storys and im happy to be part of your community.
I hope you all feel better soon.
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Old 02-21-2010, 07:36 PM   #2
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I hope you feel better soon and welcome
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Old 02-21-2010, 07:36 PM   #3
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Howdy Max!
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Old 02-21-2010, 07:38 PM   #4
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Well hello Max... You are extremely adept at english... much better than most 9 year olds I know, you must pay attention in English class Welcome to the forum, I hope it helps you!
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Old 02-21-2010, 07:38 PM   #5
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Max.....I hope you feel better soon too.
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Old 02-21-2010, 08:08 PM   #6
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Wow Max - I bet you are top of the class at at school! I am so sorry you have been feeling so poorly recently, but glad you are now feeling a little bit better.

You are a very brave boy, and we are so pleased that you are a part of our community.

My sons are Tom (nearly 10) and Paddy (8.5), they both send you a big "Hi" and they hope you will be back to 100% as soon as possible!

Best wishes,

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Old 02-21-2010, 08:34 PM   #7
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Awwww - look at you! I think you might be our youngest member! I have a son who is 9.
Welcome to the forum Max. Feel free to ask any questions that you can think of, we'll help in any way that we can.
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Old 02-21-2010, 09:27 PM   #8
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Hiya Max

Welcome to the forum! Well done you for posting first time and we are glad you found us and enjoy reading here.

If we can help you or your parents in any way please just ask. We dont have all the answers but it does help to kick things round a little.

Glad you are feeling much better than before. Hope it continues.

Welcome again! ((hugs))
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IF YOU DON'T JUMP YOU WONT EVER LEARN TO FLY





Brittle asthma 1996, Hypothyroidism 1998, Severe Crohns ileitis 2006 , Severe IBS 2007, Inflammatory/Rheumatoid Arthritis 2008, Sebhorreic Eczema and Folliculitis 1992, Roseca, steroid induced acne and Hidradenitis Suppurativa 2008, Multiple allergies and food intolerances diagnosed from 2003. Newly diagnosed fibromyalgia Dec 2009. Newly diagnosed calcific tendonitis Jan 2010.
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Old 02-21-2010, 10:32 PM   #9
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Welcome to the forum Max. I am so sorry to hear that you have to have this disease. It is never a good thing and to have someone your age being diagnosed is a real heartbreaker.

Just remember that you can always jump in and ask any question you may have and someone will help you with an answer or where to go to get it.
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No surgeries
Current meds:REMICADE (CATS SCARE ME), Pentasa, Nexium, Probonics.
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Old 02-21-2010, 10:38 PM   #10
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Hi Max~! It isnt fun to have this disease so young... but looks like you are on vitamins to help your body grow healthy wise. If your tummy is sore a bit, stay away from dairy products and junky type foods, they can cause irritation and pain. Your parents are wonderful to get you help so quick.

I also see you want to build your muscles, good man! We also have body builder here and he will have some competition now . Welcome to the forum, so glad you have you here with us!
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Symptoms of Crohn's 35 years
DX in 1993
2 resections, 1993 & 2003
Been on too many drugs to list.
Methotrexate- didn't work. Quit June 2010
Nexium.& odd Flagyl, VSL#3 900 Billion probiotic bacteria & Pentasa, 3000mg daily
...winging it now.
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Old 02-21-2010, 11:06 PM   #11
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Hey max! good to hear from you!

wow your 9! i wish i could have got on a forum when i was 9! i was 8 years old when i got sick, and like you had to have lots of tests and start on lots of pills, but the doctors finally got a diagnosis and could start giving me the right medicines, i was lucky to have such great doctors and hope you do too, they will get to know you and your disease very well and hopefully be really helpful as you grow older like me

glad you are feeling better, rememeber if you want to ask any questions just go ahead!

hope to hear from you soon ,
Yvonne x
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Everything happens for a reason, no matter how crap it seems,it shapes you for better things in life. Keep smiling!
Dx UC 1991 when i was 8 years old:

Lovely Meds...
*8x500mg Pentasa (Mesalazine)
*3x50mg Imuran (Azathioprine)
*Mebeverine/Colofac PRN for pain
*and B12 injections every 3 months
*finished course of Pred in April
*onto a 6wk course of Asacol
more flares now so looking at changing meds...but to what?
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Old 02-21-2010, 11:24 PM   #12
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Welcome Max. You and my son are the same age. Looks like you are pumping a little weight in your picture?
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Old 02-22-2010, 12:26 AM   #13
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Hi Max, I have an 11 year old son! Welcome !
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Imuran 150 mg
Celebrex 2x100mg/day
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Old 02-22-2010, 01:01 AM   #14
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Welcome Max! I have a stepson who's 9 as well. Glad you found us, there are lots of people on here than help with any questions or support that you need. Good to hear that you're feeling better too...
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Crohn's Diagnosis: May 2006
Current meds: none
Surgeries: Colostomy, December 2009


Oscar is awesome! Loving my life with my stoma (with a hint of poo)!!

Add me on Facebook http://www.facebook.com/#!/profile.p...e&id=532805014
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Old 02-22-2010, 09:42 PM   #15
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Thanks for all of the good words !!
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Old 02-22-2010, 09:50 PM   #16
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Welcome aboard max

sorry too hear ya got lumped with this disease at such an early age mate
but luckily u hav been diagnosed an can set yaself up with the proper treatment an learn the right lifestyle too hav a good healthy life

hope ya find lots if of good info here like I hav
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Now on Vedolizumab MLN0002 - woohoo!! Hope this works
--------------------------------------------------------------
200mg immuran daily
1500mg mesalazine salofalk daily
30mg predniscone daily - started my taper now down to 20mg woohoo!! Only 5 weeks of pred to go!!!
Somac 40mg daily
--------------------------------------------------------------
Tried remicade and didn't work
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Old 02-23-2010, 12:35 AM   #17
tamesis
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Welcome Max!
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Currently awaiting an answer to my multitude of symptoms.....
Taking Tylenol 500mg 3 times a day, Buscopan 10mg three times a day, Probiotics 3 times a day, Multivitamin daily, Nexium daily, Cipralex 20mg daily, and trying Pred, 40mg daily.
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Old 02-23-2010, 01:31 AM   #18
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welcome max!
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I'm med free!

Meds:
Muti- vitamin supplements
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Old 02-23-2010, 05:11 AM   #19
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hi max, welcome!!
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Old 02-23-2010, 09:06 AM   #20
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hi and welcome, Max

glad you joined us - i hope this forum helps you, and if there's anything you need to know, just shout
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Old 02-23-2010, 11:05 AM   #21
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hiya Max!
and welcome brave little man
so glad you're feeling better with the Preds, you'll get lots of help from the friendly people here, good luck
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Joan

Diagnosed 2005 (but symptoms for 15 years!)
been on Azathioprine, Mercaptopurine, Budesonide Metronidozole,
Bye Bye Prednisolone we're so over!
Pentasa 2 (4 times a day)
Multivitamins & Iron
CalciChew + Vitamin D x2
Cod Liver Oil with Vitamin D

http://www.facebook.com/#!/profile.p...4208290&ref=ts

No-one should make you feel inferior without your consent!

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Old 02-23-2010, 01:21 PM   #22
merrywidow
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welcome max, you have made "my butt hurt" go all gooey over you!!.
and benson will be scared that you will beat him at weight lifting. i hope you get what you need from this forum. were a good bunch here.
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Old 02-25-2010, 12:46 AM   #23
MaxLoaf
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Quote:
Originally Posted by Erazer
hey max!!

what is your favourite subject at school?
gym and music
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Old 02-25-2010, 12:55 AM   #24
My Butt Hurts
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Quote:
Originally Posted by MaxLoaf
gym and music
YAY!!!!

(I'm an elementary music teacher, so I HAVE to like that ^ statement!!)
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Old 02-25-2010, 01:00 AM   #25
MaxLoaf
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I love to play the piano and my uncle is a jazz musician
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Old 02-26-2010, 10:36 PM   #26
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Hi MaxLoaf! I'm a new member here, too. Although I'm in my late 20s I've had Crohn's since I was 8 years old. I'm really glad that you are starting to feel better so that you can enjoy your hobbies!!!!!

--Sabrina
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