Steve here new to forum here's the story - Crohns Disease Forum - Support group and forum for IBD, Ulcerative Colitis and Crohn's Disease

Queastor · 03-05-2010, 01:35 AM

So yeah in a nutshell

and tired.

But onto my story. I think I was diagnosed Junior year in November. Junior year as in High school Junior year, which means I've had chrones for about 4 years now. I'm not entirely sure when I got it because I was in total denial and generally tried to avoid dealing with it which in terms of my discipline in taking my medication was a bit of a crisis.

I had blood in my stool and was referred to a GI specialist David Pratt, who has a really calm demeanor quite valuable in any doctor. So he ordered a colonoscopy and the barium treatment and viola I was diagnosed with chrones disease.

They found a fistula in my lower intestine and removed it on my first colonoscopy. In my second colonoscopy a year later they didn't find quite as much.

Lots of blood tests up to the present day and a gradual increase in Asacol medication. It took me a long time to get used to taking it.

My basic chrones battle has been with constant fatigue. Not as painful as much as what other people here go through I'm sure but draining nonetheless after 4 years.

It's possible it's the Azathioprine but I really feel that that medication helps with chrones so I hesitate to stop taking it.

I'm on the SCD diet right now also, although an in proportionally meat heavy version.

Oh and I'm definitely in a flare up, and it's probably been going a couple weeks.

dreamintwilight · 03-05-2010, 03:21 AM

Welcome, Steve! Hope you feel better soon

Pirate · 03-05-2010, 06:32 AM

Welcome Steve, you will get great advice and answers here and will meet a lot of great people.

Astra101 · 03-05-2010, 08:48 AM

Hi Steve
and welcome

Yes you'll get lots of help and support here, just fire away with questions, there's always someone here
Are you able to digest all that meat, just wondering if it's making you worse?
I hardly eat red meat now, big no no for a Crohnie!
good luck
Joan xx

imisspopcorn · 03-05-2010, 07:08 PM

Steve....The fatgue has always been the hardest for me to deal with mentally and physically.....There is a thread devoted to it on here...You are not alone.

Jennjenn · 03-05-2010, 07:12 PM

Welcome

Queastor · 03-05-2010, 11:27 PM

Quote:

Originally Posted by Astra101

Hi Steve
Are you able to digest all that meat, just wondering if it's making you worse?
I hardly eat red meat now, big no no for a Crohnie!
good luck
Joan xx

It probably is giving me trouble actually. Eggs and fish seem to go down much smoother. I think I'll try switching it with Pollock this week.

My Butt Hurts · 03-06-2010, 12:01 AM

Hi Steve - welcome to the forum!

alexandros8 · 03-06-2010, 01:12 AM

Hi Steve,

Fatigue is something that has really been hard on me too. Especially at our age, when everyone else has ton of energy- so I completely understand. Exercise helped, but didn't cure it. Same with taking vitamins. What actually helped me the most was switching from 6MP to the biologic, Cimzia- I saw my energy level go way up. I think its more so your Crohn's and not your medication. Having inflammation in your body drains it, plus you don't get many of the nutrients you need. But obviously keep doing what you're doing- hopefully it will work out. Maybe ask your dr. about different meds? Good luck.

Alex

Nancy Lee · 03-06-2010, 01:40 AM

Hello Steve and welcome to the forum!!

Queastor · 03-06-2010, 05:26 AM

Thanks for the warm welcome.

Astra101 · 03-06-2010, 08:37 PM

Hi Steve
Hope you're feeling ok?
Yes, about meat, I'll eat a steak now and then, its delicious, but I suffer for it!
I have found that fish, especially salmon, tuna, prawns and cod, and eggs, rice and chicken and new potatoes are easy to digest.
Try it and see if it helps you (Oh and the omega3 is good for us too)

03-05-2010, 01:35 AM	#1
Queastor New Member Join Date: Mar 2010 Location: Ames, Iowa Posts: 5	Steve here new to forum here's the story So yeah in a nutshell and tired. But onto my story. I think I was diagnosed Junior year in November. Junior year as in High school Junior year, which means I've had chrones for about 4 years now. I'm not entirely sure when I got it because I was in total denial and generally tried to avoid dealing with it which in terms of my discipline in taking my medication was a bit of a crisis. I had blood in my stool and was referred to a GI specialist David Pratt, who has a really calm demeanor quite valuable in any doctor. So he ordered a colonoscopy and the barium treatment and viola I was diagnosed with chrones disease. They found a fistula in my lower intestine and removed it on my first colonoscopy. In my second colonoscopy a year later they didn't find quite as much. Lots of blood tests up to the present day and a gradual increase in Asacol medication. It took me a long time to get used to taking it. My basic chrones battle has been with constant fatigue. Not as painful as much as what other people here go through I'm sure but draining nonetheless after 4 years. It's possible it's the Azathioprine but I really feel that that medication helps with chrones so I hesitate to stop taking it. I'm on the SCD diet right now also, although an in proportionally meat heavy version. Oh and I'm definitely in a flare up, and it's probably been going a couple weeks.

03-05-2010, 03:21 AM	#2
dreamintwilight Senior Member Join Date: Feb 2010 Location: Palatine, IL Posts: 1,376	Welcome, Steve! Hope you feel better soon __________________ Marisa Stomach cramps/pains starting in July '09. Hospitalized New year's Eve '09 with abscess in lower right quadrant. Diagnosed with Crohn's February 2010. Partial obstruction April 2010. Currently On Humira - 40mg/week and Imuran - 75 mg/day Supplements Women's multivitamin, Vitamin D w/ calcium, Vitamin C, Krill oil w/ primrose, Culturelle probiotics http://www.facebook.com/#!/profile.php?ref=profile&id=5005978

03-05-2010, 06:32 AM	#3
Pirate Senior Member Join Date: Oct 2009 Location: Freeland, MI. Posts: 1,167	Welcome Steve, you will get great advice and answers here and will meet a lot of great people. __________________ I'm the Captain of my own pirate ship. You'll find me on the POOP deck! Greg Yancer Diagnosed w/ CD Febuary 1986 No surgeries Current meds:REMICADE (CATS SCARE ME), Pentasa, Nexium, Probonics.

03-05-2010, 08:48 AM	#4
Astra101 Your Story Forum Monitor Join Date: Jan 2010 Location: St. Helens, Merseyside, UK Posts: 2,043	Hi Steve and welcome Yes you'll get lots of help and support here, just fire away with questions, there's always someone here Are you able to digest all that meat, just wondering if it's making you worse? I hardly eat red meat now, big no no for a Crohnie! good luck Joan xx __________________ Joan Diagnosed 2005 (but symptoms for 15 years!) been on Azathioprine, Mercaptopurine, Budesonide Metronidozole, Bye Bye Prednisolone we're so over! Pentasa 2 (4 times a day) Multivitamins & Iron CalciChew + Vitamin D x2 Cod Liver Oil with Vitamin D http://www.facebook.com/#!/profile.p...4208290&ref=ts No-one should make you feel inferior without your consent!

03-05-2010, 07:08 PM	#5
imisspopcorn Punctuation Impaired Join Date: Aug 2009 Posts: 5,945	Steve....The fatgue has always been the hardest for me to deal with mentally and physically.....There is a thread devoted to it on here...You are not alone. __________________ ~~~~~~~~~* Instead of hiding in the darkness of a grey cloud, why not look for the silver lining?

03-05-2010, 07:12 PM	#6
Jennjenn Senior Member Join Date: Feb 2009 Location: N.Y. Posts: 580	Welcome

03-06-2010, 12:01 AM	#8
My Butt Hurts Squeals-a-lot! Join Date: Aug 2007 Location: Upstate New York Posts: 3,854	Hi Steve - welcome to the forum!

03-06-2010, 01:12 AM	#9
alexandros8 Senior Member Join Date: Feb 2010 Location: Atlanta, GA, USA Posts: 100	Hi Steve, Fatigue is something that has really been hard on me too. Especially at our age, when everyone else has ton of energy- so I completely understand. Exercise helped, but didn't cure it. Same with taking vitamins. What actually helped me the most was switching from 6MP to the biologic, Cimzia- I saw my energy level go way up. I think its more so your Crohn's and not your medication. Having inflammation in your body drains it, plus you don't get many of the nutrients you need. But obviously keep doing what you're doing- hopefully it will work out. Maybe ask your dr. about different meds? Good luck. Alex __________________ 26M - Atlanta GA. Diagnosed with Crohn's in 2001. Ileocolectomy in February 2010.

03-06-2010, 01:40 AM	#10
Nancy Lee Senior Moderator Join Date: Nov 2006 Location: Windsor, Ontario Canada Posts: 1,676	Hello Steve and welcome to the forum!! __________________ FaceBook- http://www.facebook.com/home.php#/pr...48&ref=profile YouTube- http://youtube.com/user/nancyleeould

03-06-2010, 05:26 AM	#11
Queastor New Member Join Date: Mar 2010 Location: Ames, Iowa Posts: 5	Thanks for the warm welcome.

03-06-2010, 08:37 PM	#12
Astra101 Your Story Forum Monitor Join Date: Jan 2010 Location: St. Helens, Merseyside, UK Posts: 2,043	Hi Steve Hope you're feeling ok? Yes, about meat, I'll eat a steak now and then, its delicious, but I suffer for it! I have found that fish, especially salmon, tuna, prawns and cod, and eggs, rice and chicken and new potatoes are easy to digest. Try it and see if it helps you (Oh and the omega3 is good for us too) __________________ Joan Diagnosed 2005 (but symptoms for 15 years!) been on Azathioprine, Mercaptopurine, Budesonide Metronidozole, Bye Bye Prednisolone we're so over! Pentasa 2 (4 times a day) Multivitamins & Iron CalciChew + Vitamin D x2 Cod Liver Oil with Vitamin D http://www.facebook.com/#!/profile.p...4208290&ref=ts No-one should make you feel inferior without your consent!