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03-26-2010, 06:35 PM   #1
Admiral Ruffles
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Join Date: Mar 2010
I hate prednisone

Hey all
I'm a new poster here and I have a simple question. I really dislike prednisone and every side effect it has. I'm just wondering if there are any other treatments for a crohn's flare up other than prednisone? Thanks.
03-26-2010, 06:48 PM   #2
Rob
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Join Date: Feb 2010
Possibly I'm not sure

but pred does seem too control/help fairly quickly
it just has alot of side effects like you said

I've had hospital administered hydrocortiscone before, but this is just like pred only alot stronger, also has lot the same side effects

hav you thought about trying a low fibre low residue diet while on a flare? That can help
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Now on Vedolizumab MLN0002 - woohoo!! Hope this works
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200mg immuran daily
1500mg mesalazine salofalk daily
Somac 40mg daily
NO MORE PRED YAHOO!!!
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Tried remicade and didn't work
03-26-2010, 08:49 PM   #3
Lydia
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Join Date: Mar 2010
IME Prednisone is used short term until other treatments start working. Right now I am on prednisone until I can get Remicade and then I can start tapering down. Have they given you anything else? Things like 6-MP or Azathioprine take about 2 or 3 months before you start seeing results so they usually give me pred to relieve the inflammation until then.

I really dislike the side effects to, but it really helps the symptoms. I used to get ativan to take along side it, but I forgot this time around. I really wish I would have asked because the anxiety sucks.
03-26-2010, 11:21 PM   #4
Creepy Lurker
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The only other thing I had prescribed that worked anywhere near as fast as pred was Metronidazole, an antibiotic that's occasionally used as a steroid sparing drug.
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03-27-2010, 12:44 AM   #5
misscris
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Join Date: May 2009
I have decided I hate Prednisone too. I was only on it for short term and I dont want to use it again for sure!
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Crohns Diagnosis: March 2009
Resection and Abcess March 2009

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03-27-2010, 04:05 AM   #6
Astra
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Location: St Helens, Merseyside, United Kingdom

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You could try Budesonide (Entocort) it is a steroid but milder than Pred.
Pred has it's horrible side effects at high doses, but during a massive flare with inflammation and pain, it is THE business!
and remember, once you taper down, the side effects go
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Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




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No-one should make you feel inferior without your consent!

03-27-2010, 10:50 AM   #7
theend2
Senior Member
 
Join Date: Mar 2010
Prednisone = Evil
When in flare = 100% needed.
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DX: Ulcerative Colitis (Pancolitis) - Jan 2007
DX: Gastritis - May 2007
DX: Osteoporosis April 2010
DX: Diabetes April 2010

Meds:
Did not work:
Apriso caused bad joint pains.
mesalamine - Asacol
6-mercaptopurine
azathioprine AZA
Entocort EC
Sulfasalazine
Remicade
Humira
Methotrexate

YES these are working:
Prednisone 40-60 mg daily. Down to 10/20mg
Cortfoam enemas
Protonix 40mg
Pain meds as needed.

Vitamin's:
Calcium
Vitamin D

03-27-2010, 06:09 PM   #8
Brad P
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Location: Newfoundland and Labrador
It's the drug we hate to love.
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CD since 1987 - yearly flares
Sept 2008 - Small Bowel Cancer -> Tumor removed Oct 1st, 2008 followed by aggressive chemo (FOLFOX) Dec - May, 2009. 11 treatments.
October 2009 - Back to work, life getting back to normal
March 8th, 2010 - off work due to Crohn's, scarred stricture.
May 19th, 2010 - Roux en Y duodenal bowel bypass surgery (gastrojejunostomy)
October 2010 - Fully recovered, back to work...again!
May-July 2016 - Bad Crohn's flareup (apparently)
03-27-2010, 06:33 PM   #9
Misty-Eyed
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Location: United Kingdom

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Yeah it pretty much saved my life, but the side effects were pretty nasty!
03-28-2010, 02:01 PM   #10
RobK
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Join Date: May 2009
Been off prednisone for about 10 months now with no flare ups...thanks to Low Dose Naltrexone (LDN)!

RobK
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Miracle Mineral Solution (MMS)
On Specific Carbohydrate Diet (SCD) but have started to introduce new foods
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