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Diary Inclusions

Creating a diary can help you in a variety of ways. The following are some of the variables you may want to keep track of and share with your doctor.

PAIN
  • Where is it located.
  • What is it like - stabbing, ache, constant, intermittent, etc.
  • Rate your pain on a scale of 1-10, with 10 being the worst pain imaginable.*(see comment).
  • Was there anything you did that relieved the pain - medication, hot packs etc.
  • Was there anything you tried that didn't work.
  • Is there anything that the pain stops you from doing - standing up, walking, sitting, etc.

OTHER INTESTINAL SYMPTOMS
  • Is your stomach noisier than usual.
  • Are you producing gas.
  • Is the gas offensive.

STOOLS
  • How often do you go.
  • How much are you producing each time.
  • What does it look like.
  • What consistency is it.
  • Is it offensive smelling.
  • Is there any blood or mucous.
  • What colour is it.

DIET
  • Are you following a diet or have you eliminated any foods from your intake.
  • Are there any foods that make your symptoms worse.
  • What is your appetite like.
  • Does your appetite fluctuate.

WEIGHT
  • Are you losing, maintaining or gaining weight.

OTHER SYMPTOMS
Do you have other symptoms that accompany painful episodes or do you suffer with other symptoms generally, such as:
  • headaches
  • eye problems
  • joint aches
  • vomiting
  • fever
  • sweats
  • rashes
  • mouth ulcers

MEDICATIONS
  • What time did you take your prescription medications
  • Did you take any over the counter medicines, even for something unrelated to your IBD
  • Have you been taking any supplements
  • What is your impression of the effectiveness of the medications you take. Are they making a difference.

This may seem like a daunting list, but by updating the diary regularly it will only take a few moments each time. You will also find ways of abbreviating things to speed up the process, for example writing BM instead of bowel movement. There are also smartphone apps which can help to speed up the process, for example CDDiary available on iPhone/iPad.

Take the diary with you when you visit any health professional, not just your Gastroenterologist.

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04-26-2011, 06:08 AM   #1
DustyKat
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*Many people find the 1-10 scale not a suitable measure of the pain they are experiencing particularly when you suffer with chronic pain. It is also a very subjective measure of pain...what is a 10 to one person may only be a 6 to another, however this is generally the way health professionals will gauge the extent of your pain.

This is a guide as to how you may use the numbers to rate your pain:

0-1 No pain
2-3 Mild pain
4-5 Discomforting - moderate pain
6-7 Distressing - severe pain
8-9 Intense - very severe pain
10 Unbearable pain

Perhaps it would be an idea to put this scale in your diary and then health professionals can gauge the level of pain you dealing with when reading the numbers you list.
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04-26-2011, 06:56 AM   #2
Keona
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This is great - thanks Dusty. Just wanted to add - it is also helpful to keep track of all your doctors appointments/telephone calls, tests you have had, and the results along with a brief synopsis of the discussion you have had. You can take this with you to ER or share with multiple doctors. After awhile it gets draining repeating your story and it is also an indication of how you are/are not being helped.
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04-30-2011, 07:34 AM   #3
Bren
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Location: Alkmaar, Netherlands
*Many people find the 1-10 scale not a suitable measure of the pain they are experiencing particularly when you suffer with chronic pain. It is also a very subjective measure of pain...what is a 10 to one person may only be a 6 to another, however this is generally the way health professionals will gauge the extent of your pain.

This is a guide as to how you may use the numbers to rate your pain:

0-1 No pain
2-3 Mild pain
4-5 Discomforting - moderate pain
6-7 Distressing - severe pain
8-9 Intense - very severe pain
10 Unbearable pain

Perhaps it would be an idea to put this scale in your diary and then health professionals can gauge the level of pain you dealing with when reading the numbers you list.

Thanks so much.
05-03-2011, 09:17 AM   #4
Mtchflknr
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Some doctors can also do pain test to see on a more specific level how much pain you are in.
as i was in so much pain for so long that my body was having a constant panic attack for days. After being test for the amount of pain my doctor basically told me i was in more pain then most women giving berth. I almost didnt believe him because i felt that amount of pain for day but he told me they are very accurate measurements.

A test like this my help you mostly just so you understand how much pain you are truly dealing with.
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05-15-2011, 04:40 AM   #5
rygon
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A free app for android phones is GI monitor, it allows you to monitor food intake, medicines (and when to reorder) BMs etc. The guy who made it also visits this website
05-18-2011, 10:25 AM   #6
Soybean
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A free app for android phones is GI monitor, it allows you to monitor food intake, medicines (and when to reorder) BMs etc. The guy who made it also visits this website
Really? How cool, I was looking for an app for my Android a couple of weeks back and after searching ye old faithful Google that's the one that came up. I think it's a fab app. If the guy who made it ever reads this thread I would like to say a big thank you

Soybean xx
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