Earlier this month, I had my annual colonoscopy, which I guess to be my one-hundred millionth. Maybe that’s why they went back-to-back with an endoscopy as if I had won some kind of scope lottery. I figure I’m a pro at this point, with bragging rights to the early 90’s hospital prep, when the nurses would walk into your room where you’re watching Ghost and episodes of the new dreamy George Clooney ER show, and dump gallons of tepid prep on your bedside table like they’re carting barrels of crude oil around. Continue reading
Crohn’s Disease really is the gift that keeps on giving. It doesn’t stop for Christmas, it doesn’t give you a break during the summer, and doesn’t ‘rise again’ during Easter because it’s always there anyway. It is relentless and punishing and about as far from the spirit of Christmas as you could get.
Regardless, I’m looking forward to the festive season this year, but I can’t quite settle into the idea of fun and lights and laughter yet because, as always, I still have various medical bits and bobs to get through. Continue reading
Is it just me or does ongoing holiday stress start to eat away at your willpower and make it easier to turn your cheek to those stringent Crohn’s diet recommendations? Let’s blame it on endless holiday social situations where we’re faced with platters of nuts, fried foods and other awful sights.
At a holiday party earlier today I tucked a few morsels of “bad” food on my flimsy paper plate to avoid snide looks by coworkers who question why I’m so picky and not appreciative of their simmering Crock Pot concoction. Continue reading
It’s sadly very easy to feel alone and isolated in living with a chronic illness like Crohn’s Disease. Even if you are surrounded by loving family and friends, who are more than willing to offer unconditional support and understanding, it can sometimes feel you are acting to appease them rather than sharing the worst parts of your condition. Continue reading
Runaway Train. That’s how I feel sometimes. Like a runaway train of invisible to the eye invaders are ravaging my body. Sometimes the secondary illnesses that tag along over the years with an autoimmune disease become more stressful than the disease itself. Fear of the unknown is one of my biggest challenges, and every time I learn of some new ailment attacking my body, I peer into a void of what-if’s all over again. Continue reading
It’s incredibly difficult to cope day to day with Crohn’s Disease; or with any Inflammatory Bowel Disease, or chronic illness for that matter. The very experience of having to deal with all the rollercoaster-like ups and downs these conditions come with, both mentally and physically, is completely and utterly knackering. Throw having to try and live a normal life outside of your defunct body into the mix and suddenly it’s a feat of human endurance that Rocky Balboa would struggle to take on. Continue reading
Change can be tough for Crohnies. We find comfort in routines, because we are able to accommodate our vast and varying needs with practice over time. If you always take the same route to work, school, or your kid’s soccer match, you know where the closest healthy food options are, the cleanest restrooms, and the exact travel time in case you need to race home. Continue reading
- That wee curly bit of hair in my fringe that NEVER sits right no matter what I use on it.
- Rudeness and/or lack of manners.
- Racism, Sexism, (any ‘ism basically).
- Having Crohn’s Disease.
Some things I love:
- Listening to the same song over and over and over until I hate it.
- Having Crohn’s Disease.
It’s very important to remember in living with a chronic illness, that you are not alone. I don’t mean that solely in the sense of you as the patient having someone to support and care for you, but in remembering how your illness inevitably affects those around you.
Often in my lowest moments, my main thoughts drift to what an absolute pain in the neck I must be for my partner. Continue reading
One of the most infuriating aspects in living with IBD is in trying to find the resources to educate and inform yourself on your condition. The first stop in learning more about your particular ‘brand’ of IBD is, more often than not, your doctor. However sometimes even your own practitioner doesn’t have the level of understanding or knowledge you may need. Continue reading