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Recent content by valleysangel92

  1. valleysangel92

    Losing friends

    Hello, I am so sorry that people who are supposed to be your friends are behaving this way. It sounds like your friends are what we in the UK call fair weather friends, they are happy to be around when things are happy and light or when they benefit from the friendship but quickly loose...
  2. valleysangel92

    Calprotectin levels in normal range. Does this happen with Crohn's when you aren't on meds?

    Hello, Looking at the combination of calprotectin and the biopsy results along with the capsule Endoscopy it does seem like you may have crohns disease. Very often diagnosing these Conditions is about pulling together information from various sources and eliminating other Illnesses. With...
  3. valleysangel92

    Ensure

    I didn't enjoy the taste but it helped me gain weight when I was struggling to absorb nutrients from normal foods. I've only ever used it as a supplement though as when I did a full liquid diet I used modulen which tasted a little better and can be mixed with milkshake powders for flavour.
  4. valleysangel92

    Desperately waiting for Crohn's treatment

    The nurses probably wouldn't start any treatments without your nephew being seen but will understand the urgency of getting seen and may be able to pull strings or move him up the waiting list based on his symptoms. They may also be able to find out what consultant your nephew will be under and...
  5. valleysangel92

    Desperately waiting for Crohn's treatment

    Hello, I'm sorry to hear that your nephew is dealing with this. Waiting times are a big problem in the UK and unfortunately it seems there isn't going to be much improvement for a while. Do you know where your nephew has been referred to? They may have I B D nurses available who would possibly...
  6. valleysangel92

    Amitriptyline

    Hi there, sorry its taken a little while to respond, what symptom is your doctor hoping the amitriptyline will help with? I personally take it to help with another condition called cluster headaches and in my case the main aim is helping with sleep. I know for some people it can also help with...
  7. valleysangel92

    My Novel, Pain in My 🍑

    Hey there, sorry its been so long before you got a reply, you have quite the story. I just wondered if there has been any progress or if your situation has improved at all . If not are there any other symptoms leading you specifically to inflammatory bowel disease or if there is anything we...
  8. valleysangel92

    Is This a Crohns Flare?

    Hello, sorry I'm late to the party but wanted to add just incase it is helpful for the future or for anyone else. Inflammatory bowel disease is such a patient specific condition that it can be difficult to assess things like calprotectin levels against other patients. My doctor always says that...
  9. valleysangel92

    Cured?

    It is great to see that you are doing better! Have your doctors suggested any monitoring going forward to make sure that this is definitely not inflammatory bowel disease related and doesn't reoccur? I hope you continue to feel well and can continue to heal but do think On-going monitoring would...
  10. valleysangel92

    Diagnosed

    Hello, unfortunately diseases that impact the digestive system are famously difficult to get assessed and diagnosed. It is not uncommon for patients to have symptoms for years before diagnosis. Do you mind me asking what testing you have had so far and what symptoms you're dealing with? It...
  11. valleysangel92

    Hello again

    Hello everybody Just thought I'd update as it's been a while Unfortunately the flare continued and eventually got worse. I started to struggle to eat and drink, began to loose weight and the pain became increasingly hard to manage. I contacted my GP (as I still had a few weeks before my gi...
  12. valleysangel92

    life with Crohn's

    Hello Crohn's disease is a very individual illness, unfortunately there's no one size fits all so we can't tell you what will/won't work for you, but we can try to help you figure it out. One of my biggest tips regarding food is to keep a food and symptom diary. Write down what you eat and...
  13. valleysangel92

    Newbe

    Hello Sorry I haven't replied sooner, I've been pretty sick and haven't checked in for a while. Have you had any of your test results back yet? IBD can vary a lot from person to person, because of this, treatments vary in success too. For some people, the first treatment they try will work...
  14. valleysangel92

    Calprotectin level question

    Hi, I agree, it seems like your daughter still has active inflammation going on which is likely to be causing her symptoms. Unfortunately it can take up to 3 months for drugs like Remicade to really get into the system, so while it's really unpleasant the fact she's still having symptoms...
  15. valleysangel92

    Onset of tongue ulcers and throat pain prior to biopsy of Jejunum

    I totally understand, I went undiagnosed for almost 5 years and by the time I knew what was wrong I was desperate for help and to just feel better, most of us here can relate to that in one way or another. It's really hard waiting for treatment when you're struggling but having a good idea of...
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