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  1. valleysangel92

    Hello again

    Hello there, a lot of members will probably remember me from a year or two ago, but I know there will be some new members who don't know me and it's also been a long while since I posted so I thought I'd do a kind of re-introduction. I'm Nicola , I'm 27 and I'm from the UK. I've had symptoms...
  2. valleysangel92

    Exciting new vedolizumab injections!

    Hi everyone I've been on vedolizumab infusions for around 4 years with great success, but recently we were really concerned I'd have to stop treatment because my veins are so badly damaged from years of IVs. We were also concerned about me having trouble getting to appointments due to the...
  3. valleysangel92

    Flaring again - Frustrated

    Hi guys. So, many of you will know my back story and know how long I've been struggling to get this beast of an illness under control. After a promising start on Vedolizumab, it appears the wheels have once again began to fall off the wagon. Initially, I experienced a decrease in pain, my...
  4. valleysangel92

    Finally diagnosed with arthritis

    Hi guys, Some of you might remember me posting a while back about some persistent problems with my Joints. I have had pain in my joints as far back as I can remember, it started when I was at least 12 years old. My main points of pain are my shoulders, my back, my hips and my knees and I...
  5. valleysangel92

    Hello all

    Hey guys, So I thought it was about time for an update on how things are going with me. As some of you will know, I have had quite a hard time finding a treatment that works for me which I don't react to in some weird way. I have tried Pentasa, Prednisolone, Budesonide, Azathioprine...
  6. valleysangel92

    Holding out a hand

    Hello everyone, For those who don't know me, my name is Nicola and I was diagnosed with Crohn's disease when I was 19 (I'm now 23). I have tried surgery, pred, budesonide, pentasa, azathioprine, 6MP and inflectra. The steroids work but are short term, and everything else has failed me in one...
  7. valleysangel92

    My inflectra diary

    Hello everyone. As some of you know I've had a hard time the past year trying to get onto a stable treatment plan. After having surgery 2 years ago I have tried pentasa, azathioprine and mercaptopurine. These haven't worked for me and it has been decided that I should now be put on inflectra...
  8. valleysangel92

    Back in hospital

    Hi all I've been having a lot of pain this week that's become progressively more severe and finally ended up at the doctors this morning. I got sent to my local hospital, who promptly told me they couldn't help and sent me to the one in the city. After bloods etc I've been admitted for IV...
  9. valleysangel92

    My current situation

    Hi all. I know it's been a while since I posted an update so I thought I'd let you all know what's going on with me. I'm currently flaring, it started with a 2 week hospital stay at the end of June that left me on steroids and pentasa. When I left hospital I was on 30 mg of prednisolone...
  10. valleysangel92

    Upper GI symptoms

    Hi all. As a lot of you know I recently spent time in the hospital (2 weeks) with a suspected crohns flare. Apart from a few deficiencies that are being taken care of my bloods came back clear and so did an MRI scan. I had the scan after 5 days on IV steroids so there may have been some...
  11. valleysangel92

    Spent the evening in hospital.

    Hello all, Some of you probably saw that I was struggling with pain last night and today it was no better. So I ended up going to my GP as an emergency. She was very concerned because I was highly tachycardic (even going over my usual highest level) so she sent me off to hospital. I spent...
  12. valleysangel92

    Thoroughly fed up.

    Hi guys. Feeling utterly fed up tonight. Many of us crohnies in the UK are still reeling from the travesty that is the British media. I have a very supportive family and boyfriend and after I made a blog post with a response and a picture of me showing my surgery scars an old friend told me...
  13. valleysangel92

    Ready to go back to 'normal'?

    Hey all I've been wondering for a while now if I'm ready to go back to some sort of 'normal'. Most of my symptoms have improved since my surgery last year, I'm not vomiting anymore, I've put on over a stone in weight (my clothes finally fit! :ylol2: ) and I have more energy. However, I still...
  14. valleysangel92

    Pain relief patches/Creams

    Hi all I've been having joint pain for a long time and the only pain meds that are working are cocodamol or stronger, while I do not take them any more often then I have to I don't want it to be a long term thing. I was wondering if anyone knew anything about over the counter pain patches...
  15. valleysangel92

    Update: Post rheumatology consult

    Hello all, I know a few of you are aware of the problems I've been experiencing wit my joints, including swelling pain and stiffness in multiple joints, if you aren't familiar with whats been happening, I've had severe pain in my hips, hands, knees, back, shoulders and ankles as well as my...
  16. valleysangel92

    What are your positives from IBD

    I know it might sound like a daft thing, but there's a lot of talk about what we don't like about IBD (and who can blame us) but I was wondering, what, if any, do you think are the positives? For me, it's made my relationship with my parents and my partner a lot stronger, I've always...
  17. valleysangel92

    Affordable smoothie recipes

    I've been considering trying smoothies as a way to get some well needed nutrients into my diet as I'm having problems with fruit and veg, even very well cooked soft fruit such as well cooked apples make my stomach very unhappy with me. I've looked up some recipes online but many of them seem...
  18. valleysangel92

    Severe pain but in remission.

    Hello all. As some of you know, last June I had a resection to remove part of my TI, and since then I've apparently been in remission. I've had bloods and stool checks and they've come back fine, but I'm still getting quite a large amount of abdominal pain. The pain is in the lower...
  19. valleysangel92

    Vitamin D supplements

    Hi all At a recent visit to my GI, he informed me that my vitamin D levels are currently low and he thinks this could be related to me feeling generally rubbish lately. He wrote me out a prescription for supplements and in his rush to move on forgot to tell me what medication it was (he...
  20. valleysangel92

    Anaemia - what's severe?

    I've had problems with anaemia on and off since I was around 13 , at that age, I tried out a few different iron supplements and finally found just one that I was able to tolerate. Since then I've tried others, and still only been able to tolerate one type (white sugar coated ferrous...
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