• Welcome to Crohn's Forum, a support group for people with all forms of IBD. While this community is not a substitute for doctor's advice and we cannot treat or diagnose, we find being able to communicate with others who have IBD is invaluable as we navigate our struggles and celebrate our successes. We invite you to join us.

Search results

  1. Bufford

    Technology, need Help with Avatar

    I've tried posting an Avatar to get rid of that ugly question mark. Long ago I simply gave up on pictures, so I tried to do a simple text, still no go. In any case I have no clue how to do this. I tried clicking on custom, and then tried to upload a small quote from 'my documents' and then...
  2. Bufford

    Daylight Saving Time messes up life

    Right now I've been in remission for the past couple of months and have a good sleeping routine where I am getting 8 hours of sleep with only a couple of interruptions to urinate, drink water and feed the wood furnace. But when my head hits the pillow I am back into deep slumber. Now comes the...
  3. Bufford

    Appliance not sticking

    I have been having leakage issues with Hollister and tried out Convatec. While the center ring glue sticks better than Hollister the adhesive paper part of the flange of Convatec does not stick well at all and starts pulling back and appart within minute of application. Then the only thing...
  4. Bufford

    The Computer hate it or love it?

    I wish they could make computers that do only one task and do it well. I retired before the computer made its way into my workplace except for one we used for building security. Otherwise my job at the steam plant was hands on, with a tad of instinct and a lifetime of experience. Once retired...
  5. Bufford

    Stoma very large

    I've had a stoma for 15 years now, and over the years the thing is getting bigger and have had to go up in sizing the hole for the flange. I'm at the maximum size according to Hollister at 57 mm or 2 1/4 inches. I cannot go any larger on my flange and they are sending me some new products to...
  6. Bufford

    Daylight Saving Time

    I find the spring time change very difficult to cope with. Every year its the same thing, I am in a good cycle of sleep, and bowel habits only to have it upset and turned over by springing an hour forward. A half hour would not be so bad, and do it on the first day of summer, I would consider...
  7. Bufford

    Remicade not working

    I started to bleed again from my rectal area in the same manner as I was prior to treatment. I had my 3rd infusion last month, and I had already noticed inflammation and a bit of blood two weeks in after the 2nd infusion. After the 3rd infusion I started getting more inflammation in the area...
  8. Bufford

    Pouch drain too small and narrow

    I've had a colostomy for 15 years, for the most part i have been purchasing Hollister supplies as others like Convatec do not last as long. My beef is that the double system I use and all of the others have the same problem. The pouch drain is too small or rather too narrow. Its hard to avoid...
  9. Bufford

    Couldn't swallow waffles & Syrup

    Yesterday I toasted up a couple of waffles with pancake syrup and had to toss them into the garbage when I could not swallow them. The first bites were okay, but then the tingling began in the back of my throat causing me to cough and choke. There was no way of getting another fork full down...
  10. Bufford

    Remicade, 2nd infusion feeling lousy

    I had my 2nd infusion 11 days ago and feel lousy. Right after the infusion I got fatigued like the first one with the headaches, but as the days went on I noticed that my blood pressure has gone up, and it spikes badly when getting up and using the stairs. Feels like my heart wants to jump...
  11. Bufford

    Toothaches and Remicade

    I had my first Remicade infusion two days ago, and other than some fatigue on the first day I was okay. Last night I started having a tooth ache and most of my teeth are feeling very sensitive. Wondering if anyone else has experienced this and will it subside with time as the body adjusts to...
  12. Bufford

    Hello, I'm new here

    I found this site while looking for information about the side effects of Remicade. I'm retired in my late 50's and lived with Crohn's for most of my life. The big flare 15 years ago left me on the bag. I've tried various treatments and found that they are often worse than the Crohn's itself...
Top