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  1. Pangolin

    Modulen diet

    I'd say you have confirmation now that the Modulen diet helped and that he still needs treatment. What about going back to EEN while also pushing for something like Stelara?
  2. Pangolin

    Like father like son

    Crohn's, and typically there was no blood, but occasionally there was some.
  3. Pangolin

    Like father like son

    Shortly after my son started Remicade, when it was becoming obvious that it wasn't working very well, we switched his diet to EEN (all formula). I think that was the only thing that prevented a serious downward spiral and hospitalization until we eventually figured out other options. (what we...
  4. Pangolin

    Weird symptoms with Crohn's

    Have there been further investigations of the formerly strictured part? Does it look ok on colonoscopy/pillcam and MRI? It may be that the area continues to be a problem even if inflammatory numbers are low.
  5. Pangolin

    What's the story with Flagyl

    So, when my son was diagnosed with Crohn’s and an abscess, he was immediately put on flagyl (metronidazole) and given a feeding tube, and by the next day there was already a huge improvement (abdominal pain nearly gone). This led me to be very positively inclined toward antibiotics for...
  6. Pangolin

    Heard from Doc today

    Hopefully the crohnsinct family is doing well and not concerned with Crohn's at all anymore.
  7. Pangolin

    Waiting for Results

    Crohn's can have subtle, nonspecific symptoms even when a kid is actually really sick. It's not too uncommon for Crohn's to show up mostly with downstream effects like your son has.
  8. Pangolin

    Humira Fail What Next..

    I'd like to point out that MLP's son, my son, asadmom's son, and Scipio have all had positive results with Stelara. In my opinion, Stelara is a really good option, but Skyrizi may be just as good or possibly better.
  9. Pangolin

    Humira Fail What Next..

    The most common insurance requirement is that a patient must fail one anti-TNF before trying any other biologics. After one anti-TNF failure, usually all of the other options open up. This is very bad for patients because anti-TNFs are neither the most effective nor safest option, but the...
  10. Pangolin

    Humira Fail What Next..

    I would choose Skyrizi. According to the papers, it appears to be very effective, and it's more narrowly targeted than Stelara.
  11. Pangolin

    Stelara is working

    I'm actually a big proponent of EEN. EEN is exactly what many people need in many situations. However, it's not always the best option, and after some time and experimenting we eventually came to a better solution, at least for now.
  12. Pangolin

    Stelara is working

    Yes, he's still doing well. EEN was not as effective as Stelara in his case, and obviously it's a huge lifestyle impairment.
  13. Pangolin

    Modulen diet

    Symptoms are often subtle with Crohn's. In general, occasionally treating it when it flares up is not a preferred way of dealing with Crohn's. Some long-term treatment is usually required, and you'll want frequent monitoring along with that to make sure everything is on track (esr, crp, fecal...
  14. Pangolin

    Modulen diet

    I understand being optimistic that you can just take care of it with the special diet and that would be the end of it. In a lot of ways, Crohn's can seem like it *should* act that way, like a simple infection with an easy solution. His symptoms are probably already down a lot with the Modulen...
  15. Pangolin

    This doesn't sound like Crohn's, right...?

    Sounds like you have a somewhat high chance of Crohn's. Colonoscopy is a good idea.
  16. Pangolin

    Autism spectrum disorders and the gastrointestinal tract: insights into mechanisms and clinical relevance

    There's definitely a high correlation between autism/aspergers and Crohn's, but it's hard to know exactly why.
  17. Pangolin

    Broccoli sprouts diet protects mice from Crohn's disease, study shows

    Humans with high fiber diets have been found to get less Crohn's, too. Here's my guess on how this could work. Maybe the fiber and/or other components of the broccoli dilute and/or neutralize chemicals in the digestive system that would cause damage to tissues.
  18. Pangolin

    Skyrizi Beats Stelara in Several Key Factors in Head-to-Head Comparison Trial

    I'm just referring to insurance requirements and common prescribing patterns. These things take years to change. You're lucky that you've been allowed to get Skyrizi first.
  19. Pangolin

    Calprotectin level after stopping Remicade

    I'm curious, what was his plan when stopping Remicade, and why did he stop? Did he just want to see if he still needed it, or was the Remicade causing other problems? Sometimes, people can stop biologics and their Crohn's will stay in remission, but studies have found that a good looking...
  20. Pangolin

    Possible Crohns

    Wow that definitely all sounds like Crohn's. It's interesting to see how it can happen without very obvious symptoms. There is a chance that with the growth hormone and hopefully getting the Crohn's under control right away, he can catch up on growth and puberty. My son is currently catching up...
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