Advanced Crohn’s diagnosed 5-15-18
Howdy all. I hope everyone is having as good a day as possible. I don’t know where to start. I am a 39 yr old male. I’ve been dealing with this most my life. I’ve had 3 fistulomies and currently have a seton. I was just scoped the 15th of May. The Dr was clearly quite rattled by what he saw. When he showed me the pictures of my distal ileum he kind of freaked out a bit. Told me he had never seen one that bad that wasn’t being removed. He referred me to an IBD specialist which will take a couple months to see. The biopsy and scope agree with a diagnosis of advanced ileitis with heavy scaring and active ulcers......
I am a single father and a hard worker and this is destroying my life. The diagnosis I guess is a blessing. At least now I know why I feel so bad. My entire life I have just lived with my symptoms. Through the marines through everything I just made it work. I know where every bathroom is everywhere I go, but fistulas? A seton? How is it possible to be a hard worker and commute an hour a day each way with this? I am beside myself. I am happy to have found this forum and appreciate all who post here. I have lost relationships and almost died over this disease. It’s good to hear other people’s stories to know I am not alone.
I would appreciate any advice anyone has on dealing with a seton and driving extended periods please and thank you.
Howdy all. I hope everyone is having as good a day as possible. I don’t know where to start. I am a 39 yr old male. I’ve been dealing with this most my life. I’ve had 3 fistulomies and currently have a seton. I was just scoped the 15th of May. The Dr was clearly quite rattled by what he saw. When he showed me the pictures of my distal ileum he kind of freaked out a bit. Told me he had never seen one that bad that wasn’t being removed. He referred me to an IBD specialist which will take a couple months to see. The biopsy and scope agree with a diagnosis of advanced ileitis with heavy scaring and active ulcers......
I am a single father and a hard worker and this is destroying my life. The diagnosis I guess is a blessing. At least now I know why I feel so bad. My entire life I have just lived with my symptoms. Through the marines through everything I just made it work. I know where every bathroom is everywhere I go, but fistulas? A seton? How is it possible to be a hard worker and commute an hour a day each way with this? I am beside myself. I am happy to have found this forum and appreciate all who post here. I have lost relationships and almost died over this disease. It’s good to hear other people’s stories to know I am not alone.
I would appreciate any advice anyone has on dealing with a seton and driving extended periods please and thank you.
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