My son has been suffering from HS for 10+ years. He is classed stage III. He has taken, Accutane, Flagly, Doxicycline, prednisone, turmeric, low sugar diet.
He has had surgery to remove both armpits, by slicing his back and moving his skin forward to create armpits. His 1st surgery he De-hissed; two weeks after surgery. His seams re opened when they started to remove his staples. He ended up with a post surgical infection and a wound vac. His 2nd surgery his surgeon did not allow enough room for swelling and he had to undergo a surgical cut down without anesthesia 4 hour after surgery because of compartment syndrome. He spent 12 days in the hospital trying to save the flap, but eventually lost it and spent 6 weeks on a wound vac. He was just diagnosed with UC. His Dr is recommending Remicade.
I used to be in the business years ago, I was a buyer: pharmaceutical, chemical and botanical, for a company with 12 production lines and 5 research laboratories. I question every medication. My apologies is this upsets anyone, but if they do not know what causes UC and they do not know how to cure it, then why treat it with a drug that is systemic, not pin point. Why risk other organs?
30 years ago I watch my father being treated with tons of medications, diet etc, for a bleeding ulcer, only to find out years later is was h pylori and treatable with a antibiotic. He died of damage to his kidneys. My sister took a medication for weight loss which later was taken off the market; she died of heart failure due to that drug. My son was on Accutane, we now know it may lead to UC, we are in a lawsuit with the parent company. Drug companies are out to sell merchandise and if that merchandise has complications all the better, then they can sell you a second product to fix it. I feel like they have lost their way. Yes, there are medication that works, yes if you get a great doctor who can work through the BS you can get to that medication.
You can see what "incentives" your Dr is getting from the drug companies here.....
https://openpaymentsdata.cms.gov/
I am so confused, I want what is best for my son, but I am afraid of what remicade might do to his body down the road. What experience have other had with a UC treatment that worked or at least helped with the symptoms?