Thanks for the prayers JS. :biggrin: I really appreciate them. :soledance:
I thought I'd share a bit about my family and me.
IBS still acting up. Still bloated. Still doing lots of large, semi-firm stool even though I've been on Miralax and doing small loose tiny stools for over a month now. Doc said the blood test for Celiac came back neg. Doesn't mean I don't have it. Doc said a colon biopsy would be the final test for it. She is checking for some food allergies via blood tests, but there is a bunch more food I think she will have to check. I think I will visit the dietitian again to figure out what foods to test for allergies. I'm also going to make a list of the foods I avoid eating and why. Vitamin C chew-ables cause my stomach to burn like crazy and gives me GERD. I also avoid anything corn like the plaque. Got off of all high fructose syrup etc... What a difference it makes. I now have an appetite for proper foods. People don't realize that high fructose corn syrup causes you to feel real hungry and crave sweets and high calorie foods. I don't drink any soda. It's full of high fructose corn syrup. I lost a bit of weight and was then within normal weight limits for my age.
We have switched to cooking more natural foods and avoiding the processed ones. I can't let hubby go grocery shopping because he comes home with lots of processed foods like chicken pot pies, fried chicken strips, frozen red potatoes with seasoning (Yuck! They make me sick!) I also can't eat hamburger hardly at all. Just doesn't digest. My daughter is an awesome cook and I can eat her chicken pot pie with no problem. All natural ingredients.
The picture of my family on the couch was taken this past March. See how thin I am? (I have glasses) Since starting my IV hydration therapy I have been able to gain weight. The other picture is from last week at a family camp. Check out the website
www.joniandfriends.org Because of your daughter, your family is eligible to attend the camp next summer. The camps are all over the U.S. as well as International. I had so much fun last week. I don't think I've smiled so long or laughed so much in ages. I haven't seen my daughter so happy in over seven months. The guy in the wheelchair is the camp doc. He is amazing. The girl in the red/dark pink shirt is an RN and was assigned to be my daughter's STM (Short Term Missionary). The other gal was my STM. She was to help me with whatever I needed and to assist me walking when my family wasn't around.:soledance:
The boy in the middle on the couch is my oldest son. He is in the Air Force.:medal1::biggrin:
The thin boy with glasses in both pictures is my son with GI issues etc... He had an NG-tube at four months of age, J-Tube at two years of age and then a year later we switched to the G-tube. Eventually he ate orally and did his supplements as I had previously mentioned.
My daughter was having severe tail bone pain this past January. We were told once again that she had a bruised tail bone. Poor child couldn't sit on her bottom much less barely walk. She had been having intermittent pain since she was about eight or nine years old. She went through a growth spurt in Jan. That's why I think her pain got worse. She then spent the night and next day in the ER on Feb. 13th & 14th due to a ruptured, blood filled, ovarian cyst. They gave her all sorts of pain meds before they finally gave her morphine. She continued to have major pain and was barely able to walk. Sitting on her bottom was out of the question. Both of her hips hurt so much from laying on them. She was diagnosed with a hooked coccyx and coccyxiodinia and sent to PT. Months went by and she was still having coccyx pain as well as severe pelvic pain and more sore spots had developed on her spine. The GYN puts folks on birth control pills for ruptured cysts as well as very heavy periods. Both of which she has. Finally, the GYN did exploratory surgery because the birth control pills weren't working and the poor girl was having 12 day long heavy periods as well as still having severe, debilitating, pelvic pain and coccyx pain. I had read up on adult coccyx pain and discovered it could be caused by constipation. I took my daughter, Melissa, to the GI doc. Next, the gyn decided to do exploratory surgery since nothing was improving for Melissa but getting worse. The gyn doc found two para-tubal cysts which could have cut off circulation to her ovary had they been allowed to remain and continue to grow. They also found another cyst on her ovary as well as an adhesion that had one end attached to the colon and the other end to the pelvic wall. The gyn doc cut off the adhesion (some sort of membrane) from both the colon and the pelvic wall, then cauterized them. She said that the colon dropped a long way. The doc also found that Melissa's colon was more than twice the size it's supposed to be. Back in May, blood work indicated inflammation of the gut. Melissa has severe constipation and takes 4 Senokot and 1 Amitiza in the morn; 3 Ducolax Laxatives and 1 Amitiza at night and still struggles with doing a BM. She was on Myralax, 3 1/2 capfuls daily, but eventually we had to stop it because it wasn't helping and her bottom was getting sore and raw like mine. We both used/use Extra Strength Cortisone Cream to attempt to heal up the bottom.
I'm sure you can figure out who hubby is. :wink:
I hope I didn't bore you.:boring: That would be terrible.:ywow:
Have a wonderful week!
I can't wait to hear how Em is doing.
By the way, how is Em's sister handling all this. It can be hard on other siblings when one sibling needs so much attention and care.
Prayers, NL