Hi everyone,
I have Crohn's disease for 30 plus year and short bowel syndrome for 5 years.
During my last ileostomy revision, my surgeon bypassed a section of small bowel and gave me a mucus fistula. I've had an ostomy for 16 years so this didn't bother me but the location of the mucus fistula is what bothers me. He located it around my lower waist/upper groin area. Because of the location, he didn't pull the intestine thru the skin to create a stoma and left the intestine just below the skin and then cut a channel for the mucus to drain. I take Gattex injections to help with the short bowel syndrome and this has lead to a large amount of mucus output daily. My problem is that the channel the surgeon made for the mucus to drain, keeps closing and I've had to have it reopened 3 times in the last year. Has anyone out there with a mucus fistula experienced anything like this?
I have Crohn's disease for 30 plus year and short bowel syndrome for 5 years.
During my last ileostomy revision, my surgeon bypassed a section of small bowel and gave me a mucus fistula. I've had an ostomy for 16 years so this didn't bother me but the location of the mucus fistula is what bothers me. He located it around my lower waist/upper groin area. Because of the location, he didn't pull the intestine thru the skin to create a stoma and left the intestine just below the skin and then cut a channel for the mucus to drain. I take Gattex injections to help with the short bowel syndrome and this has lead to a large amount of mucus output daily. My problem is that the channel the surgeon made for the mucus to drain, keeps closing and I've had to have it reopened 3 times in the last year. Has anyone out there with a mucus fistula experienced anything like this?