So short story about myself. I got diagnosed with crohns at 15, I'm 23 right now, and I have had no surgeries up to this point and have only been hospitalized once.
Pre surgery: worst experiences of my life. All started in September. I started peeing air, stomach cramps and distention. I didn't say anything and hoped it would go away. Fast forward to January, I got a CT scan done and they said I had an inflamed bladder and gave me some antibiotics. The air in my bladder eventually went away. Fast forward to two weeks ago. Holy hell. I couldn't work, I was depressed to the point where I thought about suicide(I could never do that to myself, I have a fiance that I refuse to leave this earth. She is my ground). I was eating two pieces of bread and a half of sandwhich a day. I was smoking weed constantly and tripping on psychedelics to try and escape. Fast forward to the day I finally went to the hospital. I ended up throwing up and that was it for me. I had to go. Ends up I had a fistula from my crohns to my bladder, (I was peeing out chicken broth and beef broth while on clear liquids, and my stomach was so distended they were amazed I didn't pop and the obstruction was blocked throughout my entire bowels. I needed surgery to repair my blockage and the fistula.
Post surgery: don't get me wrong, it's the hardest thing I've ever had to do. You guys know how it is, catherter, learning to walk again, waiting to pass gas and bowel movement, luckily no ng tube or colostomy and the surgeon called it a "textbook" surgery. I was walking that night, bridge diet day 2, bowel movement day 2, by day 3 I was eating a low residue diet(which I was used to anyway) and I got discharged on Friday and I was doing laps around the floor of the hospital by the time I left. It has now Tuesday and I'm still on a low residue diet, but I can eat whatever I want and as much of it as I want. I mean as much as I want. I ate 3000+ calories today and 2600 yesterday. Thus morning I had my first normal stool and although it wasn't a solid log, it was more like Chetto shaped and a lot of it. I'm passing gas like crazy as well. Ive had 3 bowel movement today, the first I mentioned, the second was a little lighter colored, the second had what looked like my leftover inflammation coming out. Ill also mention I have no pain. I haven't had any pain meds since I left the hospital. I feel more regulated and normal and am in amazing spirits. I've just read other people's stories with the same surgery as mine, (laproscopic ileocecectomy) with crazy complications. They took out my appendix, 24cm of my small intestine, and my cecum. Am I just super lucky? Or what's going on here?
Pre surgery: worst experiences of my life. All started in September. I started peeing air, stomach cramps and distention. I didn't say anything and hoped it would go away. Fast forward to January, I got a CT scan done and they said I had an inflamed bladder and gave me some antibiotics. The air in my bladder eventually went away. Fast forward to two weeks ago. Holy hell. I couldn't work, I was depressed to the point where I thought about suicide(I could never do that to myself, I have a fiance that I refuse to leave this earth. She is my ground). I was eating two pieces of bread and a half of sandwhich a day. I was smoking weed constantly and tripping on psychedelics to try and escape. Fast forward to the day I finally went to the hospital. I ended up throwing up and that was it for me. I had to go. Ends up I had a fistula from my crohns to my bladder, (I was peeing out chicken broth and beef broth while on clear liquids, and my stomach was so distended they were amazed I didn't pop and the obstruction was blocked throughout my entire bowels. I needed surgery to repair my blockage and the fistula.
Post surgery: don't get me wrong, it's the hardest thing I've ever had to do. You guys know how it is, catherter, learning to walk again, waiting to pass gas and bowel movement, luckily no ng tube or colostomy and the surgeon called it a "textbook" surgery. I was walking that night, bridge diet day 2, bowel movement day 2, by day 3 I was eating a low residue diet(which I was used to anyway) and I got discharged on Friday and I was doing laps around the floor of the hospital by the time I left. It has now Tuesday and I'm still on a low residue diet, but I can eat whatever I want and as much of it as I want. I mean as much as I want. I ate 3000+ calories today and 2600 yesterday. Thus morning I had my first normal stool and although it wasn't a solid log, it was more like Chetto shaped and a lot of it. I'm passing gas like crazy as well. Ive had 3 bowel movement today, the first I mentioned, the second was a little lighter colored, the second had what looked like my leftover inflammation coming out. Ill also mention I have no pain. I haven't had any pain meds since I left the hospital. I feel more regulated and normal and am in amazing spirits. I've just read other people's stories with the same surgery as mine, (laproscopic ileocecectomy) with crazy complications. They took out my appendix, 24cm of my small intestine, and my cecum. Am I just super lucky? Or what's going on here?
I hope he gets better. I would also like to add that my crohns hasn't spread since I was 15, which makes me confident that it won't come back. But if it does, I know I can handle it again.