Oh man, that sucks. Maybe you can ask your rheumy doc who he would reccomend you see since he is retiring. I mean you need someone to watch over you with the Behcet's.
I am so sorry you are in pain all over. I also have A lot of pain as well. I get severe muscle pains all over and the bladder pain and the intestinal pain and now gyne pain, I mean geez, enough is enough.
Ughh, I dont blame you for having the hysterectomy with all the bleeding, that had to be God awful. Only a woman could understand that. I am glad you are feeling better in terms of the hyterectomy though, that is good. At least you wont be losing all that blood anymore. Do you think your UTI's were a result of the fibroids? I know you mentioned that you had to self cath, was it because you could not empty your bladder? I know cathing can cause UTI's in itself. I had to self cath and inject medicine into my bladder when my IC(interstitial cystitis) was at it's worst. I know I got some nasty UTI's just from the cathing process.
IS there No other doctors in your area?? Man, it seems like it is so hard to get good medical care these days. There just are no good doctors out there is seems and if there is, they all are far away!
I hope you get some pain relief soon...
I am recovering slowly but surly. I do not regret the decision at all. I was basically hemorrhaging each month. Plus the pain was horrible. I would have to wear super heavy overnight pads and a super plus tampon, and I would go through them every hour.
I am on lortab 10 right now, I stay in so much pain all over. This is mostly from my Behcet's though. My GI thinks that most of my intestinal issues are more from the Behcet's than from my CD so he is not willing to put on much to help. He is leaving it up to my rheumy, who is going Ito retirement. So right now I basically only have my GP to help me. Ugh it is so frustrating, there is not another rheumy near me that knows how to treat Behcet's so I am basically just slipping through the cracks.