Crohn's Disease Forum » Your Story » Hey everyone


04-30-2010, 01:55 AM   #1
iannnn621
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Join Date: Sep 2009
Hey everyone

I've posted on here a few times but never "introduced" myself. I've never done so on forums but I think this is a good exception.

Well, my name's Ian and I'm 18 and live in Southern California. My whole ordeal started just after my 17th birthday when I started noticing some blood when I went to the bathroom but thought nothing of it really. It continued for another 3 weeks or so until I went to the doctors and was told "we'd keep an eye on it." It did nothing but get worse when I was going the bathroom 25-30 times a day. I finally to the emergency room, which was a truly lovely experience that resulted in 12 hours of sitting in a hall and an appendectomy late the night I arrived there. None of my bowel problems were even addressed, and I was told to see a doctor on the outside. My family and I have a hunch the removal of my appendix wasn't necessary...

So let's skip ahead 2 months when I got my first infusion of Remicade in the hospital right before Christmas of 2009. It was the first of an eventual 8 infusions (5 of them being double doses). I went into a brief 3 month remission after my second infusion on New Years, and thought the worst was over. Right after I flared up again, I started dating a girl which was the beginning of my first "serious" relationship. This was also when I started Prednisone again, which in the past has not helped me one bit, but rather just gave me a lot of acne and massively bloat my face. Throughout the whole 5 months of us being together I had never been more miserable with my Crohn's, which eventually resulted in the demise of our relationship. The next few months were very rough for me. In October I developed in abscess in my perineum. It developed to being around the size of my thumb making it impossible for me to sit down, and very difficult to walk and even lay around bed. I ended up getting it incised while I was wide awake in an un private hospital room with a whiny 20 something year old guy complaining about his recent appendectomy. I felt little sympathy after he requested I was making "too much noise" while many nurses were attempting to pack my wound full of gauze. The end of 2009 was quite rough to say the least. After this incident is when I started my Humira, and stopped having Remicade infusions. I was originally doing it one injection every two weeks, but later began every week due to my lack of response.

Well here I am 2 months shy of being 19, still on Humira and now on 6mp. I haven't been in remission for over a year now, and have hardly been free from problems. It's becoming harder and harder to get a good nights sleep and feel rested. Over the past 2 years I've had 6 colonoscopies, an endoscopy, sigmoidoscopy(that was pretty uncomfortable), an appendectomy, and a capsule endoscopy. Hopefully I'll reach solace one of these days, it's hard to keep a positive attitude about it but I've been doing my best.

Sorry for such a long post, but it feels good to write about it sometimes.

Last edited by iannnn621; 04-30-2010 at 03:34 AM.
04-30-2010, 02:41 AM   #2
David in Seattle
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Join Date: Feb 2010
Wow, Ian. All I can say is I'm very sorry to hear about your misery, and welcome to the group. People here are very supportive; I'm sure you'll find the time you spend here quite helpful, and I hope things improve for you very, very soon.
04-30-2010, 03:39 AM   #3
iannnn621
New Member
 
Join Date: Sep 2009
Thank you, I really appreciate it. Though it's been a rough road I'm determined to one of these days get my body back in balance or whatever caused my symptoms. Yes it seems to be, I've been reading a lot on here but not posting much as you can probably see
04-30-2010, 04:01 AM   #4
beth
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Join Date: Mar 2009
Location: United Kingdom

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Welcome Ian

04-30-2010, 08:19 AM   #5
Crohn's 35
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Join Date: Oct 2009
Hi Ian, welcome, you have been through what some of us also have gone through. Some people are sickly no matter what meds they are on, or diet they choose. I am sorry your relationship didnt work, and you know take it from me, it takes real love and patience with a strong personalilty to stay and take you for better or for worse. There are far too many out there that don't know what true love is or some one never gets to experence it. In time you will find someone, and she will be there for you no matter what. Since there is no cure ...yet, you will have your ups and downs, and it is trying for us at times, and scary whether some men will admit it or not. Support means alot, and you have it here, we laugh, kid around, support and give our experiences here because not everyone is in an upbeat mood. Glad you found us. Hope you get relief soon!
05-01-2010, 05:05 AM   #6
Astra
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Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

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Hi Ian
and welcome back

Sorry you've been thro so much, and so young too!
I won't insult your intelligence by saying keep positive! It's really hard to do that isn't it?
Take each day at a time, and there will be someone out there for you one day, your last girl wasn't meant to be.
keep in touch, we can have a vent or a laugh when need be
fingers crossed Humira is 'the one'
lotsa luv
Joan xxx
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Joan

Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery




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