05-02-2010, 04:34 AM   #1
Join Date: May 2010
Location: Sheffield, United Kingdom


I'm 23 years old, living in the UK and was diagnosed with Crohn's in December 2003 when I was 16 years old.

Fortunately I haven't had any bowel surgery but I have problems with peri anal disease. I had an peri anal abscess in 2005 which left me with a fistula. Last year I had an examination under anaesthetic (EUA) and a seton suture and malecott drain put in. The drain thankfully fell out 1.5 days later. However, I had the same thing done on 23rd March this year. I expected the drain to stay in for 2 weeks but 6 weeks later it is still in. Went in to hospital on 30th april for another EUA and (fingers crossed drain out!) But unfortunately they just put another drain back in! Got to have another EUA in 2-3 weeks. Not very happy as I can't work when I have got it in and have now been off for over 7 weeks.

Medication wise:

Currently taking Humira (have been for the last 2 years). Vitamin B12 injections.

Previously on Pentasa, Azathioprine (gave me hair loss), 6 MP, prednisolone, budesonide.

I have just changed doctors so am hoping that after having no real periods of remission we might be getting somewhere. However, saying this I have still managed to complete a nursing qualification, travel around the world and run guide groups.
05-02-2010, 05:01 AM   #2
Senior Member
Join Date: Mar 2009
Location: United Kingdom

My Support Groups:
Welcome, another UK Crohnie!

Seton's and fistulae are a real pain, not surprised you can't work with the drain in.
05-02-2010, 06:58 AM   #3
Crohn's 35
Inactive Account
Join Date: Oct 2009
Welcome to the forum, glad you found us, sorry you are having a hard time. Changing doctors can sometimes be a good thing. A fresh set of eyes can make a big difference. Hope you get some relief soon. Humira didn't work for me, and 2years is quite a long time. Keep us posted.
05-02-2010, 07:56 AM   #4
Astra's Avatar
Join Date: Jan 2010
Location: St Helens, Merseyside, United Kingdom

My Support Groups:
Hi Terri
and welcome fellow Brit (where are you?)

Sorry you're having such a bad time of it all, but glad you found us, feel free to vent or grumble wheneva!
Lots of support and advice for you.
And well done for all you've achieved!
See you around the forum
lotsa luv
Joan xxx


Dx Crohn's in TI 2005 symptoms for 15 years prior

BEEN ON -Azathioprine, 6MP, Prednisolone, Pentasa, Budesonide, Metronidazole, Humira, Methotrexate,

NOW ON -Amitriptyline 25mg
21/02/14 Right hemicolectomy surgery


No-one should make you feel inferior without your consent!

05-02-2010, 02:46 PM   #5
Senior Member
Hedgehog's Avatar
Join Date: Apr 2010
Welcome Terri Ann,

I haven't had any absesses or fistulae but they sound awful. Hope you get some relief soon,
The fox knows many things but the hedgehog knows one big thing. Archilochus

Diagnosed March 1st 2010


Calcium supplement
Fish oil supplement
05-02-2010, 08:26 PM   #6
Chief Dandelion Picker
Entchen's Avatar
Join Date: Mar 2010
Welcome! Wow, have you been busy, and accomplishing so much since being diagnosed with Crohn's! I'd love to travel the world some day. What is your favourite place to visit?
Dx: Moderate Crohn's in 3 locations
Doctor's orders: 200 mg Imuran
Have used: 4500 mg Pentasa, 4500 mg Salofalk, Flagyl, Cipro, 50 mg Prednisone, 9 mg Entocort.
Turned my Crohn's life around: ginger for nausea.
Claim to fame: "loopy and floppy" colon
05-03-2010, 04:30 AM   #7
Join Date: May 2010
Location: Sheffield, United Kingdom
Thanks for the support.

I live in South Yorkshire, UK.

My favouite place is India. I have been 3 times since diagnosis and not had any problems whilst out there. I must be lucky as I can eat hot and spicy foods no problem, in fact sometimes its the best things I can manage. Seems strange when its something that is usually suggested to be avoided.

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