Hi Sandra,
I'm so sorry that you and your daughter are struggling with this! It can be a very difficult treatment but, if she can do it, I think it is so worth it. :ghug:
My son has his formula through the NG tube. Exactly as Twiggy described, he learned to insert the tube very easily (removing is simple) and, literally, takes only seconds to insert. When he did his initial treatment, six weeks of no food, formula only, he did it thru the NG tube overnight. He removed the tube each morning. He is also picky and I know, that even if I could convince him to drink one or two shakes, he would never have managed the daily full amount, especially not for that time period. I just looked up a demo of an NG tube insertion on You Tube for you and found a great demo, link just below. (And, this girl is AMAZING!!! What a great kid!) Just one comment, she did the insertion slowly (demo reasons??), it takes Stephen only secs.
http://www.youtube.com/watch?v=YJIFOCbPTjo
As far as the quantity, when on formula alone, Stephen's dose was 2000 ml. (3000 calories). As he did it overnight, his flow rate was 200-250 ml/hr (he did bump it up to 300 if he was in a real rush...), it normally took 8-10 hours. His current maintenance is 1/2 dosage, 5 nights a week with all regular foods added back.
Re the food cravings, my son was allowed clear fluids - broths, jello, popsicles, gummy candies, lifesavers (or other clear candies), gum (I was told to avoid gum with sorbitol as it can cause GI issues). He took broth to school to eat lunch with friends and I arranged for the school to keep some freezies for him.
If your daughter can manage the treatment, it is well worth the effort. My son responded very well and quickly and, thus far, his only medication is an antacid. He'd lost 20 lbs before diagnosis, and within 3 months had gained 30 lbs. Being a picky eater, I've always been concerned with his nutrition - this concern, at least, is now gone!
Also, a small bonus... if she has problems drinking the preps for MREs, she can ingest the prep through NG as well...
Good luck! I'm sure there will be even more parents who can offer their advice!
:ghug: