Hi Everyone. I have read a number of your posts and am very happy to find this forum.
I was diagnosed with UC last year, and symptoms lean towards Crohn's.
It only took 10 years of suffering, misdiagnosis, and seeing the "best" Dr in NYC to finally have someone suggest that I get the right tests.
My test results showed "mild" ulcerative colitis, but my symptoms are quite severe. I pretty much can't eat anything, ever, for the past 10 years without running to the bathroom. I haven't gone more than a few days in a row without being very sick in all those years.
A number of years ago it got so bad that I can't maintain a job in an office environment and started working from home. It is just too difficult for me to get on a subway, take a bus, get in a car to commute, or even walk somewhere because of the urgency of my condition. And in the office environment it is very difficult to function appropriately when you must spend most of the day in the bathroom. I am not really able to function, so I disagree that my condition is "mild".
Upon diagnosis of IBD my Dr. (a new one) only gave me the options of taking drugs. When I asked about diet and other options he said "just eat normally". Clearly he wasn't going to help me. I tried the drugs anyway for 6 weeks, Mesalamine, and it didn't help at all, except for giving me almost all of the annoying side effects and making me feel drugged all the time.
So here I am, seeking a new Dr. again, but at least I know what I have (although nobody can say "how" or "why" I am sick).
My goal is to find a good nutritionist (if anyone knows someone anywhere on the East coast, preferably Boston), and try first an elemental diet, followed by a LOFFLEX(?) diet. I recognize that this might make me feel better in the short term but not be permanent, but I feel so horrible all the time I am willing to give it a shot.
If anyone has thoughts about elemental diets, fasting, or juicing, I'd love to hear your advice and experiences.
Thanks!!
Kim
I was diagnosed with UC last year, and symptoms lean towards Crohn's.
It only took 10 years of suffering, misdiagnosis, and seeing the "best" Dr in NYC to finally have someone suggest that I get the right tests.
My test results showed "mild" ulcerative colitis, but my symptoms are quite severe. I pretty much can't eat anything, ever, for the past 10 years without running to the bathroom. I haven't gone more than a few days in a row without being very sick in all those years.
A number of years ago it got so bad that I can't maintain a job in an office environment and started working from home. It is just too difficult for me to get on a subway, take a bus, get in a car to commute, or even walk somewhere because of the urgency of my condition. And in the office environment it is very difficult to function appropriately when you must spend most of the day in the bathroom. I am not really able to function, so I disagree that my condition is "mild".
Upon diagnosis of IBD my Dr. (a new one) only gave me the options of taking drugs. When I asked about diet and other options he said "just eat normally". Clearly he wasn't going to help me. I tried the drugs anyway for 6 weeks, Mesalamine, and it didn't help at all, except for giving me almost all of the annoying side effects and making me feel drugged all the time.
So here I am, seeking a new Dr. again, but at least I know what I have (although nobody can say "how" or "why" I am sick).
My goal is to find a good nutritionist (if anyone knows someone anywhere on the East coast, preferably Boston), and try first an elemental diet, followed by a LOFFLEX(?) diet. I recognize that this might make me feel better in the short term but not be permanent, but I feel so horrible all the time I am willing to give it a shot.
If anyone has thoughts about elemental diets, fasting, or juicing, I'd love to hear your advice and experiences.
Thanks!!
Kim
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