Crohn's Disease Forum » General IBD Discussion » Confused about blood test results


05-16-2019, 08:41 PM   #1
awoenker12
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Confused about blood test results

So today I got my results back from my blood test a few weeks ago. When I got this blood test, it was two days before my Remicade infusion. My doctor and I were suspecting that my levels of Remicade were starting to get low around week 6 since that is when some of my symptoms start to reappear (I discussed some of this in a post from a few days ago). I have noticed this pattern for the last three infusions. Currently, I am on the 8 week cycle of the standard dosage of Remicade. I am just confused since my symptoms reappear around week 6 but my levels are adequate and I have no antibodies. My doctor did decide to discontinue 6mp back in February, but I don't think that has necessarily been the issue. Any thoughts?
05-16-2019, 09:12 PM   #2
my little penguin
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What were your levels ?
Adequate may not be enough
Tagging crohnsinct
On levels
There are some studies where lower levels while in what was thought to be the normal range in the past were just not enough
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05-16-2019, 10:19 PM   #3
crohnsinct
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Echoing MLP here. The literature says 4-7 is adequate for Remicade levels, however, many GI's are saying that a good number of patients need higher levels to respond and they aim for at least 8-10. You may be one of those patients.
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Daughter O dx 2/1/12 at age 12
Crohns & Remicade induced Psoriasis
Remicade
Vit d 2000IU
Multi vitamin plus iron
Calcium

Previously used - Prednisone, Prevacid, Enteral Nutrition, Methotrexate oral and injections, Folic Acid, Probiotics, Cortofoam

Daughter T dx 1/2/15 at age 11
Vitaligo, Precoscious puberty & Crohn's
Remicade
Vit D 2000IU

Previously used, Exclusive Enteral Nutrition, Methotrexate (injections and oral), Folic Acid, Entocort,IBD-AID Diet
05-17-2019, 04:02 PM   #4
awoenker12
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My doctor didn't specifically give me a number for my levels of Remicade just only that my levels were adequate. I did however receive another phone call from him this morning saying that they didn't get the other results such as my inflammatory markers and CRP levels. Go figure.
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