Crohn's Disease Forum » Support Forum » Undiagnosed Club » I have lot of extraintestinal manifestation but they canít find Crohn


07-31-2018, 10:39 PM   #1
AshRyzE
 
Join Date: Sep 2016

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I have lot of extraintestinal manifestation but they canít find Crohn

Hello,

Iíve made a post of my story and itís still happening. Theyíve ran every test to check whether I have IBD and everything came back negative, yet I have very serious intestinal issues even deemed exceptional for IBS.

Recently Iíve started having extra intestinal symptoms that look like IBD or at least immune : a not yet diagnosed hepatitis, psoriasis, episcleritis, arthritis, hiddradenitis suppurativa, asthma, anemia, erythema nodosum, several string like mouth ulcers...

Theyíre finding me a lot of diseases but the thing I suffer the most from is my gastrointestinal issues yet they seem unable of diagnosing it. Itís apparently IBS, but rarely an IBS has been found to be associated with the other diseases, to be 24/24 365 days a year, to be associated with Cdiff and to now cause specks of blood in the stools and fever, and 10+ BM a day unresponsive to anti-diarrheal. Moreover doctor did a trial and twice the symptoms have disappeared after prolonged corticosteroids treatment,

Doctors donít want to run anymore tests on me but after reading on the web, Iím getting always more certain itís IBD or another autoimmune condition of the bowel.

I need help.
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Crohn's Disease Forum » Support Forum » Undiagnosed Club » I have lot of extraintestinal manifestation but they canít find Crohn
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